No known reason why but I am not a "TYPE" anything any more.

[ert]

Last year I posted this thread.....

Wow! My pancreas is producing Insulin Again!

I was diagnosed T1 just over 3 years ago. Usual symptoms and BS of 38. A week in intensive care with insulin being pumped in 3 ways including via my neck.:eek: On recovery I was on 40 Units of Lantus and 30+ Units of Nova Rapid with each meal. My NHS trust team trumpets the need for 225g of...

www.diabetes.co.uk

Only got to see the consultant again last week and the latest c-peptide test came in at 2.8. hba1c is 50. He confirmed that on diagnosis 4 years ago whilst in hospital with a DKA the test came back as negative.

I haven't used insulin for quite a while and my BG has been steady between 4 & 8.

I continue on a low carb diet and get Ketone readings between 0 and 1.4 and have lost over 3 Stone (20kg). I have carb tested when the craving gets bad and even with a bag of Fish & Chips (It was heaven) my BG is normal four or so hours later.

So I have been discharged from the clinic being told to forget about insulin, no need for any tablets, only test if I feel I should and he will write to my GP to do another blood test next year. He will also provide any evidence needed to get my full Driving Licence reinstated.



The consultant could give no explanation to why this has happened but I firmly believe that the change coincided with going low carb and yes I realise that others doing the same have had no such luck.

So thanks for all of you that gave me advice and support over the past few years and the best of luck with your own troubles.

You were clearly misdiagnosed originally supported by your current c-peptide test.

Research news - Simple, cheap C-Peptide helps patients get the right diabetes diagnosis and treatment - University of Exeter

www.exeter.ac.uk

 

[fairlyordinaryguy]

An HbA1c of 50 indicates that you may still be diabetic, but not needing insulin may indicate Type 2. If you keep up the low carb then you may find your levels drop below 48 but you need to keep an eye on things since they could go up again. The Consultant will discharge you from his clinic since he only deals with insulin dependant patients. Your GP should pick up as a T2D, since your HbA1c is above 48 and technically in the diabetic range.

When I worked in the labs (ancient inorganic chemist here) I was always taught that "science is the truth, don't let the facts disort the truth".

 

[jmg1303]

A HbA1c of 48mmol/moL is diagnostic of Type 2 diabetes so whether you are in ‘remission’ or not you still have Type 2 diabetes but are managing it on diet. If you ate fish and chips every night you would soon revert back to medications +/- insulin.

 

[Lynnzhealth]

I was first dx'd as T2D, after drinking the horrible glucose. Then two years later, after going on low carb and keeping BG in check, I suddenly went into a serious DKA episode. I spent 4 days in ER and had all the blood tests. Turns out I was actually T1D. It's been another 3 years and I've had lots of up and downs in BG daily. I know the weather affects my BG, and probably other health issues. It's a roller coaster ride for sure. I would love to keep my readings between 5-10 every day. Might help my mood swings, too.

 

[NicoleC1971]

I have read up on that and did not suffer from any of the symptoms.

I do have a type 2 friend who experienced a sudden bg spike after a viral illness which ended up with insulin jabs and a type 1 diagnosis however following further testing they said she was still type 2. Unlike you she has continued to take insulin, gained weight and struggled with the dosing based on eating carbs that she feels she can't do without.
I wonder what preceded your sudden crisis?
Well done on doing what works for you and yes you could go lower on the nba1c (normal range is 23-37) but other than eating even lower carb you could add exercise if that is not part of the routine? I hope that the medics will continue to look at your hba1c too and the low carb thing isn't just for diabetics, it is just an Eat Real Food philosophy where you focus on proteins and the natural fats that they come with!
And yes if you are older your slightly high hba1c may not kill you but I think you will now have a better old age given the changes you've already made!

 

[PeteN11]

I wonder what preceded your sudden crisis?

Thanks for your reply....

I really have no idea. My Mom had died a few months before. She'd had dementia for over 10 years, I was her only carer and it was pretty full on over the final few years but her death was more of a blessing than a tragedy for me. It also meant I could start regaining my lapsed offshore sailing qualifications to restart my career as a yacht deliver skipper and instructor which I'd had to give up. Things were looking good and I felt fine till the usual DKA symptoms started.

Like your friend I gained a lot a weight, over 20kgs, whilst using insulin. It wasn't helped by the Dietician who insisted that I eat 225 carbs a day but since going low carb all that extra weight has now gone although there is still more to get rid of.