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Nothing works...

Discussion in 'Type 2 Diabetes' started by bjroberts52, Oct 10, 2017.

  1. bjroberts52

    bjroberts52 Type 2 · Member

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    It's all in the title, but here's my history.

    I was diagnosed as having type 2 diabetes back in 2011. Within 3 months of my diagnosis, I had blown through the max dose of metformin. My docs added Glipazide to my regimen and that too only worked for about 4-6 weeks.

    Then I was put on Lantus. That work for a while. About 3 months to be exact. After the Lantus, I went to 70/30. That lasted about the same.

    Now I'm on u-100. I started out taking 5 units with meals and at bed. At this point, I'm up to 60 units at meals and at bed. This, however isn't working anymore either.

    I wake up with a BG over 280 and go to bed with a BG that errors out the meter.

    I have been waiting for 10 months for an appointment with an endocrinologist.

    My big question is what should I be asking?
     
  2. Indy51

    Indy51 Type 2 · Expert

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    Hi and welcome to the forum.

    @daisy1 will be along with some information for newcomers.

    In the meantime, it would probably help us to advise you if you tell us what dietary and lifestyle changes you've made?

    I'd also suggest you have a read around the forum and maybe sign up for the site's free low carb diet program:
    http://www.diabetes.co.uk/lowcarb/
     
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  3. bjroberts52

    bjroberts52 Type 2 · Member

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    Well, as far as dietary changes...

    I eat leafy greens, low starch, low sugar, higher protein foods. I walk about 5 miles per day. I drink a gallon of water per 24 hrs period. I have gone from 280 lbs to 223 lbs.

    Oh and I'm 6'1" tall and 40 yrs old.

    I'm also a chef by trade, so I don't eat processed foods.
     
  4. catapillar

    catapillar Type 1 · Well-Known Member

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    What insulin are you actually taking? U-100 just means there are 100 units per millimetre, which is how most insulins are concentrated. That would have been how lantus and how the 70/30 mixed insulin you were taking was concentrated.

    I'm assuming the difference with your new insulin is that it's a bolus insulin. Bolus insulin is usually take with a basal insulin (like lantus) so you would bolus for meals and take your basal at night. Are you following a basal bolus regime?

    You seem to be on a fixed dose of insulin with 5 units per meal? Are you counting carbs? Carb counting involves working out how many grams of carbs one unit of bolus can cover and adjusting your insulin dose to accommodate how many grams of carbs are in what you are eating.

    Have you been given any guidence on correction doses - ie how much 1 unit of insulin will lower your blood sugar?

    I think what you should be asking the endocrinologist is how to use your insulin.
     
  5. bjroberts52

    bjroberts52 Type 2 · Member

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    Actually I take 60 units of humalog with meals and at bed and 300 units of lantus 3x daily.

    I am very religious about carb counting more over, I also count sodium and other toxic minerals.

    I should also mention that in addition to being a chef, I am also a paramedic and my wife is a nurse.

    What we don't understand is why my treatments stop working so fast.

    I'm looking for ideas for something to bring up with the endocrinologist. I don't want to just go in blind. Nor do I wish to continue with the same old pattern. Starting a new and different medicine that may only work for a short time.
     
  6. daisy1

    daisy1 Type 2 · Legend
    Retired Moderator

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    @bjroberts52

    Hello and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions here as you like and someone will be able to help.


    BASIC INFORMATION FOR NEW MEMBERS

    Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

    A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 250,000 people who are demonstrating this.

    On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

    The role of carbohydrate

    Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

    If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

    The bad news

    Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

    The good news

    People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

    Controlling your carbs

    The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

    There are two approaches to controlling your carbs:
    • Reduce your carbohydrate intake
    • Choose ‘better’ carbohydrates
    Reduce your carbohydrates

    A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

    The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

    Choosing better carbohydrates

    The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

    Read more on carbohydrates and diabetes.

    Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

    Eating what works for you

    Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

    To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

    The blood sugar ranges recommended by NICE are as follows:

    Blood glucose ranges for type 2 diabetes
    • Before meals: 4 to 7 mmol/l
    • 2 hours after meals: under 8.5 mmol/l
    Blood glucose ranges for type 1 diabetes (adults)
    • Before meals: 4 to 7 mmol/l
    • 2 hours after meals: under 9 mmol/l
    Blood glucose ranges for type 1 diabetes (children)
    • Before meals: 4 to 8 mmol/l
    • 2 hours after meals: under 10 mmol/l
    However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

    Access to blood glucose test strips

    The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

    • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
    • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

    Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

    You may also be interested to read questions to ask at a diabetic clinic.

    Note: This post has been edited from Sue/Ken's post to include up to date information.

    Take part in Diabetes.co.uk digital education programs and improve your understanding. They're all free.
    • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why
    • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
     
  7. Kentoldlady1

    Kentoldlady1 Type 2 · Well-Known Member

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    May I ask how it was that you were diagnosed? Were you ill? And is there any history of any type of diabetes in your family?

    I know that you are careful about your diet, so may I ask how much carbs you have in a day?

    I hope your appointment with the endo is soon. Ten months is a very long time to wait.
     
  8. kokhongw

    kokhongw I reversed my Type 2 · Well-Known Member

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    That sounds like a lot of insulin for the amount of carbs you are taking...
     
  9. bjroberts52

    bjroberts52 Type 2 · Member

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    Yet, even thought I have cut out all grains and starchy vegetables and limit my intake to 2500 calories or less, when I take my humalog, it only reduces my bg by 15 points.
     
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