• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

Out of my control.

Davidden

Member
Messages
20
3 weeks ago I was admitted to hospital for surgery on my left lung - a metastasis from a chondrosarcoma (bone cancer) on my right shoulder (removed, including my shoulderblade in 2021) - following surgery on the right lung (for a similar problem) in January. The hospital insist on taking control of all your meds while you are there, and despite filling in a list of what and when I was taking them, a "doctor" decided to alter these. The evening of the day before surgery I had to take a reduced dose (80%) of my insulin, Toujeo, which I take once a day at 20.00, though they were taking blood sugar readings every 4 hours. The whole time I was in hospital my glucose levels were all over the place, as high as 17, and never lower than 10 (my normal range is 8-10) and they were changing my insulin dose all the time - never giving me more than 34 units (I am on 50 once a day), and at times giving me a top-up of fast acting insulin by injection, and were even considering putting me on an insulin pump!
Eventually I queried this regime, and a "diabetic specialist" was sent to talk to me, explaining that I should be varying my dose on a daily basis anyway, and they had it under control! I was discharged 5 days after surgery and took back control of my meds again. Since then my glucose levels have dropped to between 6.5 and 9, back on my once-a-day regular 50 units of Toujeo.
In January while I was in the same hospital, but a different ward, my glucose levels were not an issue, being regularly within target, except for one evening when the reading was 6.0, and they refused to give me insulin, but instead gave me a biscuit!! They did, however, follow my normal regime of 50 units a day the rest of my stay. On the whole I am really happy with the treatment I received in hospital, and in no way am knocking the NHS, but do feel they do not really know how to deal with diabetic patients.
Just wonder if anyone else has had similar experiences during hospital stays when they take control of your meds. I can understand they need to know what you are taking in case there is a reaction with other meds they are giving you, but am surprised that they messed around with insulin doses for Type 2 diabetic.
 
3 weeks ago I was admitted to hospital for surgery on my left lung - a metastasis from a chondrosarcoma (bone cancer) on my right shoulder (removed, including my shoulderblade in 2021) - following surgery on the right lung (for a similar problem) in January. The hospital insist on taking control of all your meds while you are there, and despite filling in a list of what and when I was taking them, a "doctor" decided to alter these. The evening of the day before surgery I had to take a reduced dose (80%) of my insulin, Toujeo, which I take once a day at 20.00, though they were taking blood sugar readings every 4 hours. The whole time I was in hospital my glucose levels were all over the place, as high as 17, and never lower than 10 (my normal range is 8-10) and they were changing my insulin dose all the time - never giving me more than 34 units (I am on 50 once a day), and at times giving me a top-up of fast acting insulin by injection, and were even considering putting me on an insulin pump!
Eventually I queried this regime, and a "diabetic specialist" was sent to talk to me, explaining that I should be varying my dose on a daily basis anyway, and they had it under control! I was discharged 5 days after surgery and took back control of my meds again. Since then my glucose levels have dropped to between 6.5 and 9, back on my once-a-day regular 50 units of Toujeo.
In January while I was in the same hospital, but a different ward, my glucose levels were not an issue, being regularly within target, except for one evening when the reading was 6.0, and they refused to give me insulin, but instead gave me a biscuit!! They did, however, follow my normal regime of 50 units a day the rest of my stay. On the whole I am really happy with the treatment I received in hospital, and in no way am knocking the NHS, but do feel they do not really know how to deal with diabetic patients.
Just wonder if anyone else has had similar experiences during hospital stays when they take control of your meds. I can understand they need to know what you are taking in case there is a reaction with other meds they are giving you, but am surprised that they messed around with insulin doses for Type 2 diabetic.
All I know is I think usually the pre op procedure is that hospitals suggest you arrive with less injected basal insulin than usual .
 
This is an area of great interest to me - hospitals and care homes, where control is taken from the patient.

I cannot understand why, so that if the patient is compis mentis then why is control taken away ? Something needs to be aligned with diabetes care to review this as many are concerned about this and are fearful of experiencing this.
 
All I know is I think usually the pre op procedure is that hospitals suggest you arrive with less injected basal insulin than usual .
I can understand this - I was "nil by mouth" after midnight (effectively 19.00 as that was when we had dinner!), and in the end my surgery was not until late the following day, so I went well over 24 hours without any food intake.
 
All I know is I think usually the pre op procedure is that hospitals suggest you arrive with less injected basal insulin than usual .
I forgot to add - I hope the op went well for you and you are better now for it !
 
Thank you. They called me last week to say that both lungs are clear for now, but it could come back! Staying positive, though, and enjoying every day as it comes - life's too short not to!
Absolutely ! life is precious, take every day as it comes and make the most of it.
All the best to you.

Shoran
 
I can understand this - I was "nil by mouth" after midnight (effectively 19.00 as that was when we had dinner!), and in the end my surgery was not until late the following day, so I went well over 24 hours without any food intake.
No food for that long , I bet that was hard.
 
Shows how much knowledge they actually have. Toujeo is one of those insulins that takes 2-3 days to take effect when you alter a dose. It is not designed for different amounts every day.
I know there is a specific section in the NICE guidelines for type 1s in hospital stating we should be in control of our medicine and food choices if able to do so. But do not know what it says for type 2.
 
Hi
In the year 2000 i had an operation to remove a cist.
I rocked up at 7am with a level of 6.5 with no fast acting insulin on board.

When i came round after the op i found myself attached to a drip and was told the surgeon was concerned i might go hypo hence the drip.
I was 11.7 !!
I was not best pleased.

My last hba1c was 39 and i get told regularly by my NHS practice that my levels are too low!!!!

I have been type 1 for 50 years and never ever been hospitalised for a hypo.
Only last week the phlebotomist got all twitchy when i showed her my libre which said 4.0 and simply didn,t understand me when i said i had just eaten and was waiting for the libre to catch up.

I have got to an age where i get indignant and pompous very quickly .....lol

I wish you all well.

Tony
 
Hi
In the year 2000 i had an operation to remove a cist.
I rocked up at 7am with a level of 6.5 with no fast acting insulin on board.

When i came round after the op i found myself attached to a drip and was told the surgeon was concerned i might go hypo hence the drip.
I was 11.7 !!
I was not best pleased.

My last hba1c was 39 and i get told regularly by my NHS practice that my levels are too low!!!!

I have been type 1 for 50 years and never ever been hospitalised for a hypo.
Only last week the phlebotomist got all twitchy when i showed her my libre which said 4.0 and simply didn,t understand me when i said i had just eaten and was waiting for the libre to catch up.

I have got to an age where i get indignant and pompous very quickly .....lol

I wish you all well.

Tony
You have it under excellent control . Well done - good on you.
 
Back
Top