- Messages
- 3
- Type of diabetes
- Type 1
- Treatment type
- Insulin
Hi,
I'm new to this forum but after searching all over for answers i'm now registered here, hoping someone can help.
Let me start with myself.
I'm 25 years old.
I've had type 1 since i was 3.
I've never had good control.
I've relied more on my senses than testing my blood sugar for the last 14 years or so.
I do on average about 30 blood tests with my own machine a year.. (i know).
i have a terrible diet. not with food, just sugary drinks. I have an addiction to coca cola and red bull / lucozade. I get an enormous buzz from these drinks and even tho i've tried to stop or lower my drinking of them i simply can't. Trust me, i've tried. A LOT.
my food diet is healthy, but i eat a lot... a real lot.
I'm a slim build of 5'9.
I
Until recently, my worries towards my diabetes have been minimal. I'd say i'd think about it maybe once or twice a month, normally when eating something bad.
Recently its starting to scare me. I was told my kidneys were starting to leak proteins and had to get new medication to take along with my 2 injections a day..
As said, i'm quite good with my feelings.. i can tell when i'm low / high fine.
This changed recently... and now i really cant tell that well at all.
Going to sleep at night is a worry. I worry i'm going to go low..
i worry my girlfeind wont be able to deal with it.
For this reason i started looking at Pancreas transplants.. in my mind.. ending all the problems in one, for a small sacrifice of a month in hospital and maybe a different drug to take for the rest of my life.
After asking ym diabetes specialist about it.. I felt destroyed. I was told he was the head of Diabetes in my local area and he'd not even seen one ever done, nor reffered anyone for it. This news i didn't take well and when questioning further i was told after he'd looked into it that i'd have to be on dialysis with kidney problems before it would even be considered and having around 3 hypos a week, with absolutely no feeling of when it was coming on...
So, my thoughts were this: Why, in this day and age, do i have to wait for my body to get worse before something will be done to stop it?
WHY DO I HAVE TO RISK MORE HYPOS??
WHY DO I HAVE TO BE CLOSER TO A COMA OR DEATH BEFORE THE NHS WILL DO ANYTHING?
IT MAKES NO SENSE.
My question is this... how do i get myself further into this?
how do i get on the waiting list?
do i have to be referred by my doctor or is there another way?
do private hospitals do this?
Please, please help me if you can.
Thanks
I'm new to this forum but after searching all over for answers i'm now registered here, hoping someone can help.
Let me start with myself.
I'm 25 years old.
I've had type 1 since i was 3.
I've never had good control.
I've relied more on my senses than testing my blood sugar for the last 14 years or so.
I do on average about 30 blood tests with my own machine a year.. (i know).
i have a terrible diet. not with food, just sugary drinks. I have an addiction to coca cola and red bull / lucozade. I get an enormous buzz from these drinks and even tho i've tried to stop or lower my drinking of them i simply can't. Trust me, i've tried. A LOT.
my food diet is healthy, but i eat a lot... a real lot.
I'm a slim build of 5'9.
I
Until recently, my worries towards my diabetes have been minimal. I'd say i'd think about it maybe once or twice a month, normally when eating something bad.
Recently its starting to scare me. I was told my kidneys were starting to leak proteins and had to get new medication to take along with my 2 injections a day..
As said, i'm quite good with my feelings.. i can tell when i'm low / high fine.
This changed recently... and now i really cant tell that well at all.
Going to sleep at night is a worry. I worry i'm going to go low..
i worry my girlfeind wont be able to deal with it.
For this reason i started looking at Pancreas transplants.. in my mind.. ending all the problems in one, for a small sacrifice of a month in hospital and maybe a different drug to take for the rest of my life.
After asking ym diabetes specialist about it.. I felt destroyed. I was told he was the head of Diabetes in my local area and he'd not even seen one ever done, nor reffered anyone for it. This news i didn't take well and when questioning further i was told after he'd looked into it that i'd have to be on dialysis with kidney problems before it would even be considered and having around 3 hypos a week, with absolutely no feeling of when it was coming on...
So, my thoughts were this: Why, in this day and age, do i have to wait for my body to get worse before something will be done to stop it?
WHY DO I HAVE TO RISK MORE HYPOS??
WHY DO I HAVE TO BE CLOSER TO A COMA OR DEATH BEFORE THE NHS WILL DO ANYTHING?
IT MAKES NO SENSE.
My question is this... how do i get myself further into this?
how do i get on the waiting list?
do i have to be referred by my doctor or is there another way?
do private hospitals do this?
Please, please help me if you can.
Thanks