Spiker
Well-Known Member
- Messages
- 4,685
- Type of diabetes
- Type 1
- Treatment type
- Pump
Which is exactly why emails from Change.Org, Avaaz, etc are often treated as spam and blocked...
Which is exactly why emails from Change.Org, Avaaz, etc are often treated as spam and blocked.... Each time someone signs the ppl I'm petitioning get an email with the name of the person followed by a simple sentence asking to add the CGM to the program. Change.org does generate a list with names and city/postal code/country info but that's for me to download and, if needed, deliver to the petitioned parties in hard form. For now I would like to flood them with emails and see.
So you can get a pump paid for on OHIP (or whatever it's called now) but you don't want one and that's why you want a CGM?@azure no, I'm not on a pump. I'm so incredibly terrified of them.Just thinking/talking about one makes me feel nauseous and like I'm going to pass out. I know that everyone says they're wonderful and my head nurse has been trying to get me on one for over 10 years now, but I JUST CAN'T!
@azure no, I'm not on a pump. I'm so incredibly terrified of them.Just thinking/talking about one makes me feel nauseous and like I'm going to pass out.
[...]
I JUST CAN'T!
@bernasia if you look at the new NICE guidelines I think you will find that you qualify for CGM
So you can get a pump paid for on OHIP (or whatever it's called now) but you don't want one and that's why you want a CGM?
There is a lot of support for the idea of making CGM more widely available to T1s, but I am not sure this is a very good example to be honest.
All that a CGM is going to do is alarm during the night so you can take glucose. So it's going to give you bad sleep and yoyo blood sugars. It's not going to solve the problem. A pump would solve the problem. A CGM won't.
Also I don't believe that basal insulin can't be adjusted to prevent night hypos. Worst case, you run higher sugars at night. Much better than seizures. Again, a CGM *won't* solve this problem.
I never even considered it malfunctioning. I'm simply terrified of having some machine attached to me like a robot pumping me with meds nonstop. I have spoken to many pump users and everyone says what you say - it changed their life and is wonderful. I have yet to hear anything negative. I have seen lots of different pumps and have even taken a prototype home, however I still can't get over my fear!!Are you afraid it'll malfunction? That was my fear before I got one, but it was the only option for me to stop the hypos.
Once I'd had one shown and explained to me, I was A LOT happier. My first pump was 11 years ago and even then it had two microchips that constantly checked each other and that everything was ok.
I'd never give my pump back! It changed my life - literally.
I suggest you speak to people who have pumps, see some pumps, research online, etc. A pump could well be the answer you're looking for and is definitely worth exploring in my opinion. I felt a huge amount of freedom when I got mine, and coukd finally sleep properly at night.
She has a public health care provider/insurer, the government of Ontario, and she is lobbying that health care provider (via the petition) to change its policy and provide CGM, which it currently doesn't.Your health care provider should be able to negotiate with your health insurance company to cover the CGM. I had one covered about 8 years ago. It should be easier today
What, just like a CGM?I'm simply terrified of having some machine attached to me like a robot
I would definitely but where I'm currently living, pets are not allowed. Maybe when I move I will look into this further, although I know that they too are crazy expensive and highly doubt that the costs would be covered. But, like I said, I will look into it probably around this time next year after I move.I'm with Spiker on the pump - i'd rather have a continuous supply of quick acting being streamed into my system to regulate my blood glucose than being connected to a beeping machine, but that's given the choice. Ok here's a completely alternative suggestion.. how about a dog that's trained to smell when your BG starts to drop, I know in some countries this is possible, would you be receptive to this ?
Otherwise I would go for the pump if it's available, there must be a way to work through your anxieties regarding this.
I am sure that a medically required assistance animal will be legally exempt from your landlord's restrictions.I would definitely but where I'm currently living, pets are not allowed.
You have life threatening night time hypo seizures but you can wait a year to look into a possible immediate solution to your problem?Maybe when I move I will look into this further, although I know that they too are crazy expensive and highly doubt that the costs would be covered. But, like I said, I will look into it probably around this time next year after I move.
It's not that I don't WANT one, I'm really terrified of it. Please don't be jumping on me re this. I know my fears are irrational, but I can't control them. Yes I know a lot of newly diagnosed T1s have tons of fears and I did too. Before being diagnosed I literally fainted at the SIGHT of a needle. If I ever get over this fear, I will get a pump for sure because it would help me, not JUST with the seizures. In the meantime, my only other option seems to be a CGM and the alarm on it is exactly what I want/need. It will not give me bad sleep as I don't get seizures every night. They're very random and the alarm would wake me up before a seizure occurs. As with yoyo blood sugars, I have them anyways. A CGM won't enhance that. Yes, I get that a pump would help with that, but again, I'm really really scared.So you can get a pump paid for on OHIP (or whatever it's called now) but you don't want one and that's why you want a CGM?
There is a lot of support for the idea of making CGM more widely available to T1s, but I am not sure this is a very good example to be honest.
All that a CGM is going to do is alarm during the night so you can take glucose. So it's going to give you bad sleep and yoyo blood sugars. It's not going to solve the problem. A pump would solve the problem. A CGM won't.
Also I don't believe that basal insulin can't be adjusted to prevent night hypos. Worst case, you run higher sugars at night. Much better than seizures. Again, a CGM *won't* solve this problem.
Yes I do know. But the sensor is MUCH smaller than the pump that is attached into your skin, it's also much lighter and therefore you can't feel it as much. Plus it does not pump you with meds. Carrying a receiver in my purse or having it rest on my nighttable is not a prob.What, just like a CGM?
You know that the sensor is embedded under your skin all the time and you have to carry the receiver on your person 24x7 right?
Again, you're attacking me! You don't know my personal situation and this isn't fair. My landlord's restrictions aren't a legality. I'm renting a basement if you must know and the owner of the house does not want animals. I'm trying to purchase a house and then will look into a dog.I am sure that a medically required assistance animal will be legally exempt from your landlord's restrictions.
You have life threatening night time hypo seizures but you can wait a year to look into a possible immediate solution to your problem?
Sorry, this whole thing isn't adding up for me.
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