Petition

[Shar67]

https://petition.parliament.uk/petitions/123274

Can I ask you to please sign this petition (there's been a lot) let's make this one different by getting 100,000 signatures. 30 seconds is all it takes.

 

[Lamont D]

Done.

 

[LucyM88]

Done and shared on my Facebook.

 

[himtoo]

done

 

[MH2010]

Me & hubby have both signed.

Forwarded link to sisters and brother as well. X

 

[doolallylady]

Done & good luck

 

[ladybird64]

Shar, I don't think you're going to like my reply somehow. I agree that it should be recognised as a disability, but in the wording re DLA/PIP, it is asking for "blanket" consideration, ie because one person is awarded it, everybody should be - and I find it hard to agree with this. I understand about disability, and PIP and the bloody assessments, but it just isn't feasible to expect them to make identical awards because somebody happens to have a certain disability - if that makes sense? The wording on these petitions has to be spot on, absolutely precise but I think the part about benefits awards may let it down.

 

[Shar67]

IT is really hard to get a diagnosis of CP some people have taken 8/10 years often suffering horrendously.
The DLA or ESA and PIP have no common criteria when it comes to assessing if you are eligble. I know several people who had to appeal or apply time and time again. There is a young lady who has a feeding tube, weighs about 5 stone, has been in hospital for 9 months out of the last 12 and is deemed fit to work. It is still a fairly rare disease, only 5% of acute pancreatitis sufferers will develop chronic and chronic usually doesn't travel alone it can come with a whole heap of other problems, type 3c being one, there is usually a malabsorption of vitamins and minerals, which can cause, osteoporosis, etc.
In other illnesses and disabilities there isn't a blanket coverage for benefits, but they are recognised as being a small part of the criteria that is all that is being asked.
I was accepted for ESA not for the crippling sore joints, crumbling spine, constant vomitting (a very good dentist is keeping my teeth from breaking, vomit not being good for them) the nerve pain, insomnia, no I got it because I wet myself when I vomit, the most embarrassing but the least painful.

 

[ladybird64]

Shar, the only thing they are interested in is the points scoring, it is a misconception to believe that there is common criteria that will influence their decision, certain illness/disability equates to automatic entitlement, or at least a head start - that's not the case. They judge each case individually, not by common criteria. You may think I'm unsympathetic but I'm not, im being realistic. I have got a lot of personal experience of both ESA and PIP, plus the ensuing appeals processes. I have also had a lot of experience regarding the online petitions, which is why I inow that if the wording isn't right, it doesn't stand a chance of being looked at. This part:

The DWP need to be more consistent with their decision making, It's a fact that some sufferers recieve DLA/ PIP whilst others have theirs refused. It is unethical to award some and not others. Whilst we acknowledge sufferers may have differing severities and other conditions, this is not always the case when the decision is made.

is what will let it down as it is implying that blanket decisions are made, which will always be denied - if a points system is used, and all parts of the medical evidence are taken into account, then the decision IS looking at the differing severities and making the decision based on that. Not the condition but the person - that is what will cause probs with the petition.
I'm playing devils advocate here. Im more than happy to sign the petition but I'm pointing out where it has gone wrong. I know plenty of cases where the judgement was initially fit to work too, including my own daughter, who has been on DLA high rate care AND mobility since she was 5. I fought for 9 months to get that decision overturned so I get it. I get the injustice and the anger at a stinking, unfair system designed to attack the most vulnerable - but I'm a realist too.

 

[Shar67]

I know it is all weighted against getting benefits, the petition, had to go to an accessor to confirm it was allowable, which it is.
The forms to get benefits are also designed to make you fail, they use a 12 points system, get less than 12 you don't get the benefit, everyone that is applying for benefits should go to CAB for help.
I used to work as an advocate for benefit appeals so know how the whole thing works.

 

[13lizanne]

Done and shared with friends. Good luck @Shar67

 

[copepod]

DLA, now PIP; ESA etc are all awared on the basis of how a condition affects a person, not on the basis of diagnosis alone.
Sadly, I don't think this petition will help. Better to advise people to seek help from benefits advisors, welfare rights, CAB etc, when filling in forms, and when appealing afvrse decisions.

 

[ladybird64]

DLA, now PIP; ESA etc are all awared on the basis of how a condition affects a person, not on the basis of diagnosis alone.
Sadly, I don't think this petition will help. Better to advise people to seek help from benefits advisors, welfare rights, CAB etc, when filling in forms, and when appealing afvrse decisions.

Unfortunately, I think so too. The petition may well have been allowed but I've seen loads of these petitions, including many that are really poorly worded, and they're allowed - so that doesn't mean much I'm afraid.
Funnily enough I always advise people to go to CAB or equivalent too, yet in our case, they were absolutely useless and I had to appeal myself. Luckily, I think I was in the minority.