Please can you advise me?

[Geminigirl]

Hi, I haven't been here for a while.

I suffer from Anxiety and when I am faced with new meds I get very upset & stressed.

I have tried low carbing, lost some weight but my numbers haven't improved at all. I have just had an appt with my GP about my Fibro pain, also a horrid "vibrating sensation" in my foot and leg which he has said could be nerve damage due to high glucose levels. I also feel tired, thirsty and generally horrible every waking moment. TBH I told my hubby the other day I wish I could give up on it all.

I had my Glimeperimide increased from 4 to 6 mg per day three months ago but my HBA1C last week was 103 which I understand in old money is approx 11.6!!!

Anyway, saw the DB nurse today, she has sent off my urine and a blood test to check on my Kidney function and water because she wants me to try dropping my Glim to 3mg per day & add Jardiance. She has given me the booklet and we discussed side effects. I told her I pee a lot as it is and (sorry gents!!!) suffer from recurrent thrush & Vulvitis so am very worried about the main side effects of just that. I have of course "googled" the med & am absolutely terrified about the risks of DKA & bladder probs etc.

Since getting home I am gradually talking myself out of it. My husband has lost his temper with me because he said it is absurd I don't even want to try it. I just feel if I am already having "ladies probs" I certainly don't want to invite it. He doesn't understand my fears and my frustration.

I asked about night time Insulin but she flatly said no because I am overweight, she said its a last resort but I feel I am at a last resort. Meant to add, I asked if I could have the test done to see how yr Pancreas is doing and she said if I wasn't making Insulin I would be losing weight rapidly without trying....is that right?

Am I over reacting about this med? I am so upset I can't stop crying & have had a mother of panic attacks because I don't feel anyone understands how I feel. I also have two black arms where they tried to get a blood sample & a swollen hand because they had to use a butterfly to get a blood sample today.

Sorry to moan but I really feel at the end of my tether with it all.

Thanks for listening.

 

[beatya]

you take a lot of meds, and sounds like a lot of issues. i think ur diet needs more focus or explanation as to what ur doing, 1 of the comments u made about being thirsty and tired and peeing a lot makes me think ur losing electrolytes. salt. magnesium, potassium. a low carb diet tends to lack salt, i add a bit to my water sometimes and a while later feel better.
https://www.youtube.com/user/lowcarbdownunder lots of useful vids here https://www.youtube.com/user/drericberg123

 

[Geminigirl]

Thank you.

 

[ickihun]

I use multivitamins as I'm finding veg not great for my thyroid which is helping with some lost electrolytes.

Your team may want you to at least try Jardiance before considering an other med @Geminigirl .
I'm not saying do the same as me as I tried it even thou I was prone to thrush at around the 7.8mmol/l mark.
Jardiance gave me severe thrush but I know many on here that it hasnt or at least been managed to make jardiance work for them.

It is best to find out for yourself, we are all different. Your reaction may not be as severe as mine.
How about try it for 3 months with an understanding of quick access to thrush treatment if it does kick it off and stopping this med and other alternatives?
It does get bgs down and I lost about 7lb. So not all bad.

I think your anxiety is similiar to mine. Knowing too much!!!

I too wish I could go back to being nieve to some of diabetic related knowledge but definitely not the knowledge which keeps me from harm.
I've had to get my head around so much these past 3-4yrs when moving back to my hometown and face so much of my old families disfunction and lies. Diabetes is just apart of a mystery I've had to unravel.

I need you to be honest with me @Geminigirl what are you worrying about the most? Damage or death or just not being about to take this disease in hand?
Not many do tam the beast but definitely accept diabetes and all it entails.
The fact we both know its possibilities doesn't mean that Is our definite future.
I'm guessing with low carb and Jardiance you will smash those horrific high meter readings.

Is low carb not working it's magic or like e have you fallen ofg the wagon and hop on and off but know once treats in the house have left the building your bgs will be perfect again.

I'm a great believer in everyone deserves a break from diabetes when its maintenance is intense! We are onky human.
Nothing about me or you robotic eh?
Robots don't get anxious and cry when it just gets far too much for us.

I need you to take a sisterly hug from me and I need you to be reassured that you're more than capable of throttling this uncontrolled diabetes until it's not as needy in your life.

I'm sorry there are diabetics like me who have struggled with diabetes 40+yrs but to be honest I'm in far better position than some diabetics who aren't even diagnosed yet.
I keep thinking wow I've unknowingly ate protein as a treat rather than sweets or chocolate in my teens and may have even had it in remission unknowingly more than once.
My eyes are good, my numb toe is most likely from bulging discs rather than sugar and I'm tottering along nicely majority of the time. Insulin is harder than it needs to be as I'm trying to reduce it heavily before my op. An op for obesity and to take pressure off my back. If less meds so less pressure on kidneys and liver I'll be delighted.

You need to find your strategy and just keep plugging away at it, never giving up but giving yourself permission to have a break when needs be.
Do you think you could find a personalised strategy, just for you?

 

[Ambersilva]

you take a lot of meds, and sounds like a lot of issues. i think ur diet needs more focus or explanation as to what ur doing, 1 of the comments u made about being thirsty and tired and peeing a lot makes me think ur losing electrolytes. salt. magnesium, potassium. a low carb diet tends to lack salt, i add a bit to my water sometimes and a while later feel better.
https://www.youtube.com/user/lowcarbdownunder lots of useful vids here https://www.youtube.com/user/drericberg123

I sometimes add salt to my coffee!

 

[Resurgam]

I sometimes add salt to my coffee!

Me too - particularly in the summer I add a minute amount of salt - it is just enough to keep me from getting cramps. My husband tends to use lots of salt, but I don't like it in my food - I am a supertaster. In coffee, however I think it enhances the taste - and although I now get the grounds from Lidl and it is really good coffee, if I ever got any bitter coffee salt helps make it taste less so - but I can't drink famous name coffee providers coffee - it is just as horrible after the bitterness is removed as before.