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Possible RH help please?????

J

jojobubbles

Member
Messages
9
Hi all, I have just joined this forum to see if I can get any advice as have been suffering with these symptoms for years but have gradually got worse. It starting initially when I ate pasta and would shake and get palpations. more recently it would happen every time I drink even half a glass of white wine. Now it has got so bad it happens every time I eat I feel shaky palpatations feel irritable and hungry. I have hear something about being insulin resistant but not sure what it is. I have started a low carb diet but feel in quite low mood with it maybe because I haven't got to grips with it but I am searching for an answer. I have had diabetic and thyroid tested and they came back fine and my dr even said having psychological counselling which I was disgusted with as I would love to eat a cake or a big glass of wine and feel fine. They are referring me to gaastoentroology but not sure if a camera would find anything anyway. I just feel at a loss. thanks for any advice given. Jo
 
jojobubbles said:
Hi all, I have just joined this forum to see if I can get any advice as have been suffering with these symptoms for years but have gradually got worse. It starting initially when I ate pasta and would shake and get palpations. more recently it would happen every time I drink even half a glass of white wine. Now it has got so bad it happens every time I eat I feel shaky palpatations feel irritable and hungry. I have hear something about being insulin resistant but not sure what it is. I have started a low carb diet but feel in quite low mood with it maybe because I haven't got to grips with it but I am searching for an answer. I have had diabetic and thyroid tested and they came back fine and my dr even said having psychological counselling which I was disgusted with as I would love to eat a cake or a big glass of wine and feel fine. They are referring me to gaastoentroology but not sure if a camera would find anything anyway. I just feel at a loss. thanks for any advice given. Jo
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Hi and welcome to the forum.
Please do ask your questions, but do have a good read of our RH forum.
I know what you are going through, I have been there.
Has your doctor asked for tests to diagnose you and what tests have you had that would consider RH as the cause of your symptoms?

Again welcome.
 
Sorry I went straight in there and thought i'd ask because I couldn't really see any posts that applied quite to my situation.

I have had fasting and no fasting diabetic tests over the years but it never comes back with anything, I have just started a ketogenic diet and taking apple cider vinegar magnesium probiotics and vitamin d plus good multivitamin, but just feel like I am guessing all the time and unsure if I went to see a private doctor for texting whether it would be worth the money. I just feel very desperate as its starting to effect my life in every way
 
The reasons I thought it was RH as a doctor many years ago mentioned it to me (not testing mind you) her just said change your diet to Low Gi. It is the shaking after food particular carbs yet sugar seems to stop the shaking for a bit. recently palpations agitation anxiety but for no reason and irritable
 
jojobubbles said:
Sorry I went straight in there and thought i'd ask because I couldn't really see any posts that applied quite to my situation.

I have had fasting and no fasting diabetic tests over the years but it never comes back with anything, I have just started a ketogenic diet and taking apple cider vinegar magnesium probiotics and vitamin d plus good multivitamin, but just feel like I am guessing all the time and unsure if I went to see a private doctor for texting whether it would be worth the money. I just feel very desperate as its starting to effect my life in every way
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As I said earlier, you need your own blood glucose meter. By testing regularly throughout the day, especially when you feel weird or ill, will show you if it is a blood sugar problem or not. We can help you with this if you ask.
 
Hi,
I would assume that the scope will be looking for a bacteria called heliocobacter pylori. As this is one of the causes of RH. But not the only one!
I have had this bacterial infection, it is similar to having ulcers.
There are many types of Hypoglycaemia.
You need the hospital tests that only endocrinologists can order. I would ask for a referral to a specialist in Hypoglycaemia.
Please do read our forum there is great information on all things to do with Hypoglycaemia.
Do answer the question about tests here, rather than the other thread.

Again welcome.

(Post moved by Moderator from deleted duplicate thread.)
 
Last edited by a moderator:
Sorry but I don’t get how you can get/feel palpation? Palpation are just a prosess were the doctor feels the chest with a hand for any condition. Sure you don’t mean palpitation?

Any way, increased or irregular heart beat are not a common symptom of hypoglycemia.

jojobubbles said:
It is the shaking after food particular carbs yet sugar seems to stop the shaking for a bit.
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Also, if you have a hypo, eating something (with glucose) will always help. If eating only helps a bit or slightly with your symptoms I don’t think it’s likely that you do have hypoglycemia.

Are you feeling any other symtoms? Your blood sugar have to get really low before you start shaking, and there is a couple of other symtoms you will see before you experience the shaking. Therefore I have to ask, do you feel anything else before the shaking kicks in?

I understand it is easy to assume that shaking can be a hypo, but there is more that happens than just the shaking if you experience a real hypo.
 
jojobubbles said:
Sorry I went straight in there and thought i'd ask because I couldn't really see any posts that applied quite to my situation.

I have had fasting and no fasting diabetic tests over the years but it never comes back with anything, I have just started a ketogenic diet and taking apple cider vinegar magnesium probiotics and vitamin d plus good multivitamin, but just feel like I am guessing all the time and unsure if I went to see a private doctor for texting whether it would be worth the money. I just feel very desperate as its starting to effect my life in every way
Click to expand...

In my experience a private GP, would be just as uninformed about hypoglycaemia, than your practice GP.
You can request a referral to an endocrinologist by emailing the hospital were one is practicing.
Google your local hospital. There will be a list of endocrinologists.
 
I think firstly I may need to get a testing kit and check it why I feel not well. to answer you question super does sort it out. The symptoms I get are shaky first then palpitations (sorry for the miss spell previously) which make me feel gives me anxiety yet makes me feel tired drained and low mood with a bit of agitation to throw in to the mix. so the main advice would be to see an endocrinologist?? I am sorry if I seem a bit vague I have been to countless dietician and all they do is say I am intolerant to loads of foods and I end up just eating meat fish and veg until I am that miserable I start eating carbs again only to find it starts happening again.
 
jojobubbles said:
I think firstly I may need to get a testing kit and check it why I feel not well. to answer you question super does sort it out. The symptoms I get are shaky first then palpitations (sorry for the miss spell previously) which make me feel gives me anxiety yet makes me feel tired drained and low mood with a bit of agitation to throw in to the mix. so the main advice would be to see an endocrinologist?? I am sorry if I seem a bit vague I have been to countless dietician and all they do is say I am intolerant to loads of foods and I end up just eating meat fish and veg until I am that miserable I start eating carbs again only to find it starts happening again.
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What might help to ask is when do you get unwell by carbs, right after eating or does it happen awhile after you have eaten?

As I said before palpitation are not a common symptom of hypoglycemia, but seeing an endocrinologist sounds like a good idea. Or getting a blood sugar test-kit to check when you feel off, to see if there is any connection to blood sugar :)
 
jojobubbles said:
I think firstly I may need to get a testing kit and check it why I feel not well. to answer you question super does sort it out. The symptoms I get are shaky first then palpitations (sorry for the miss spell previously) which make me feel gives me anxiety yet makes me feel tired drained and low mood with a bit of agitation to throw in to the mix. so the main advice would be to see an endocrinologist?? I am sorry if I seem a bit vague I have been to countless dietician and all they do is say I am intolerant to loads of foods and I end up just eating meat fish and veg until I am that miserable I start eating carbs again only to find it starts happening again.
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Everything you describe are symptoms of an imbalance in your blood.
I have a lot of intolerance to foods, so don't feel awkward or vague.
However, until you discover which foods you are intolerant to, a glucometer is essential in eliminating those foods which makes you feel awful.
If you look in our low carb forum, there are plenty of ideas and recipes in there, and doing without those foods which makes you ill, is not the end of the world.
You will have a decision to make sooner or later. I am assuming that because of those intolerances, either eat very low carb diet and be healthy or eat the food that makes you ill. And suffer, because it won't get better, in fact, because of my experience, it will only get worse.
It will take time and a true diagnosis will help but it is down to you to get your health back.
Cutting out the foods that you are intolerant to, is the only way to treat it!
And yes, ask for a referral.

Best wishes.
 
Like others before me said already, get a glucose meter and measure when you are experiencing symptoms. If it is above 70-80 it's most unlikely that you have reactive hypoglycemia.
Some people do have -reactive-hypoglycemia-like symptoms in the normal blood glucose range, but the higher your blood glucose level is, the less likely it is that you have RH.

As Emile said: What might help to ask is when do you get unwell by carbs, right after eating or does it happen awhile after you have eaten? ---> Reactive hypoglycemia does not happen right after eating, but typically 2 hours (or more) later.
 
Bryce74 said:
Like others before me said already, get a glucose meter and measure when you are experiencing symptoms. If it is above 70-80 it's most unlikely that you have reactive hypoglycemia.
Some people do have -reactive-hypoglycemia-like symptoms in the normal blood glucose range, but the higher your blood glucose level is, the less likely it is that you have RH.

Reactive hypoglycemia does not happen right after eating, but typically 2 hours (or more) later.
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That is not entirely accurate, you have described late reactive hypoglycaemia, there are other types where glucose dumping has an immediate effect within half an hour.
Hypoglycaemia can occur within an hour of eating.
You have to be careful, how you respond.

Best wishes
 
Lamont D said:
That is not entirely accurate, you have described late reactive hypoglycaemia, there are other types where glucose dumping has an immediate effect within half an hour.
Hypoglycaemia can occur within an hour of eating.
You have to be careful, how you respond.

Best wishes
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There is no such thing as late and early reactive hypoglycemia.
What you are talking about is dumping syndrome.

It should be separated from the diagnosis of reactive hypoglycemia.
 
Bryce74 said:
There is no such thing as late and early reactive hypoglycemia.
What you are talking about is dumping syndrome.

It should be separated from the diagnosis of reactive hypoglycemia.
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I apologize if I have misled you, yes they are different but dumping syndrome can be a symptom of RH!
I have late RH!
There is no such thing as early RH!
There are many types of Hypoglycaemia.
Reactive Hypoglycaemia is the name given to a group of conditions of which 'late' is all but one!
 
Lamont D said:
I apologize if I have misled you, yes they are different but dumping syndrome can be a symptom of RH!

Reactive Hypoglycaemia is the name given to a group of conditions of which 'late' is all but one!
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No, it is the other way around: hypoglycemia can be a symptom of dumping syndrome.

There is just reactive or postprandial hypoglycemia, and I have seen a few other names for it, too, and yes, there are a few known causes but many causes are unknown.
 
Bryce74 said:
No, it is the other way around: hypoglycemia can be a symptom of dumping syndrome.

There is just reactive or postprandial hypoglycemia, and I have seen a few other names for it, too, and yes, there are a few known causes but many causes are unknown.
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This can be debated like the chicken and egg problem, which came first?
Dumping syndrome can be a symptom, but it can be a condition.
Hypoglycaemia can be a symptom and a condition.
RH is a group of conditions with similar symptoms, but it too can be a symptom of other conditions.

Causes are many and more are being found.
Such as dumping syndrome, heliocobacter pylori, bad lifestyle and of course some unknown. But because there is no cure, as yet, treatment is important, and avoiding certain foods is the best advice. How intolerant you are, makes it difficult to be careful about how and what advice you give.
 
Hi all thanks so much for all your advice so far. I have ordered a glucose testing kit from Accu. I think I ordered the right thing and have been testing today on my mums my base level was around 5.0 then I had some white bakery bread with butter then it started to rise within that first hour to the maximum of 13.0 I am not sure what that means. What level does it need to be at to be reactive???? I really appreciate all your help. I think I am going to go back to my normal non kept diet and track each meal with the monitor as there is no point if I am avoiding everything as it won't spike. I even had palpitations after drinking quite a bit of coconut milk and I thought that was ok?
 
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