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Pregnant and retinopathy

Discussion in 'Pregnancy' started by Lianne0204, Jul 24, 2019.

  1. Lianne0204

    Lianne0204 · Newbie

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    Good Morning,

    Just after a little bit of advice is anybody can.

    Found out a few weeks ago I was pregnant and think I’m around 6 weeks at the moment.

    Went to my first diabetes/antenatal clinic visit at the hospital yesterday and left really deflated.

    When I saw the consultant he was really negative and as I have proliferative retinopathy he said chances are I could go blind.
    I’ve had 2 sessions of slit lamp laser treatment and indirect laser treatment in theatre. I had a vitreous bleed about a week after but opthamologist said it was fairly normal.

    Anybody got any experience of this as I’m scared now and can’t relax?

    Thank you! X
     
    • Hug Hug x 1
  2. Muneeb

    Muneeb Type 1 · Well-Known Member

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    I don't have any experience, but recall Dr Bernstein talking about this. Maybe worth finding his book online if you don't have it, or watching his videos? Hopefully somebody here can help soon.
     
  3. hazyclaire

    hazyclaire Type 1 · Member

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    My retinopathy progressed to proliferative at around the same stage of my second pregnancy - 6 weeks - or at least that's when it was picked up on my annual screening. I think tightening up my control for pregnancy is what caused it to progress. I was rushed straight in to the specialist eye clinic for a laser appointment, but I didn't need it just yet. I was seen every month throughout pregnancy and each time was a laser appointment so they could do it straight away if needed, but it remained stable throughout and since (touch wood) and so I am now on 4 monthly reviews again and baby is now 26 months. I too was completely panicked and freaked out convinced I was going to lose my sight but it has been ok so far. I hope it will be the same for you! Good luck x
     
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