Problem after Problem

[Smiler99]

Long story short type 1 for nearly 3 years have had leaking insulin for nearly a year which is affecting my eyes now cause I am high alot of the time my diabetic team doesn't want ato do with me aside am not on a cgm, and I am still in honeymoon phase just..I am at the end of my tether I feel let down paddling backwards
My bg goes high after 4 hours I know its not my long acting

 

[EllieM]

Hi @Smiler99 I am sorry you are having trouble.

Just a couple of queries
1) Are you in the UK. If so you are entitled to a NHS cgm. Are you not using one because you don't like them?
2) What do you mean by leaking insulin? Are your insulin pens malfunctioning? If so you should get some new ones. Or do you mean that you are producing extra insulin sometimes because of your honeymoon and that is affecting your bg levels.

My bg goes high after 4 hours I know its not my long acting

Four hours after what? Food? Bolus? Basal?

Are you on a basal/bolus regime and carb counting to calculate your doses?

I'm afraid I don't quite understand your situation at the moment so I'm sorry I'm asking questions rather than giving you help.

 

[Smiler99]

Hi @Smiler99 I am sorry you are having trouble.

Just a couple of queries
1) Are you in the UK. If so you are entitled to a NHS cgm. Are you not using one because you don't like them?
2) What do you mean by leaking insulin? Are your insulin pens malfunctioning? If so you should get some new ones. Or do you mean that you are producing extra insulin sometimes because of your honeymoon and that is affecting your bg levels.


Four hours after what? Food? Bolus? Basal?

Are you on a basal/bolus regime and carb counting to calculate your doses?

I'm afraid I don't quite understand your situation at the moment so I'm sorry I'm asking questions rather than giving you help.

When I inject insulin in leaks out once I pull the needle out I use fine bd needles, it happens 2 to 3 times a week, I have tried i-Port but have the same problem.
I really don't like libra or dexcom g6 I would get stupid readings they would be 5 or more out and never catch up.

 

[Juicyj]

Long story short type 1 for nearly 3 years have had leaking insulin for nearly a year which is affecting my eyes now cause I am high alot of the time my diabetic team doesn't want ato do with me aside am not on a cgm, and I am still in honeymoon phase just..I am at the end of my tether I feel let down paddling backwards
My bg goes high after 4 hours I know its not my long acting

Hi @Smiler99 - what's your needle size and what method are you using to inject with ? Are you pinching the skin then holding your needle in to the count of 10 ?

Yes you can get a CGM - ask your team, Partha Kar advocates the use of a CGM for all insulin dependent diabetics, so ask your team for this.

Have you done any basal fasting tests to check your background insulin dose is right ?

Also honeymoon phases tend to last a few months at best a year, how does your team know you are still in yours ?

Yes not surprised you feel like your paddling backwards, I would do too in your shoes, however this can change, a CGM will help greatly, as will checking your basal dose is correct and getting your quick acting ratio set up correctly will also help, but all of this requires patience and adjusting one thing at a time, rather than grabbing the bull by the horns and trying to change everything at the same time, how proactive is your team in helping you, do you have one to one support with a DSN ?

 

[Juicyj]

I really don't like libra or dexcom g6 I would get stupid readings they would be 5 or more out and never catch up.

Yes if you are checking against a glucose meter the readings will be out, but you should only ever calibrate against a meter rather than constantly check against one, exercise, stress, eating carbs will accelerate the speed at which glucose travels, however a CGM is providing a moving picture rather than a snapshot reading which the meter does, it's information is invaluable, it's also measuring interstitial fluid rather than blood so there is a lag vs a meter reading.

Get a CGM as the information you get when you start understanding it better is vital for glucose control.