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Provisional Pump Start Date (and my journey to get there)!

Discussion in 'Insulin Pump Forum' started by Rokaab, Feb 26, 2020.

  1. Rokaab

    Rokaab Type 1 · Well-Known Member

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    So, after much faffing and cursing under my breath I am actually going to be getting a pump :) It has been a bit of a challenge though, this is what has happened:

    1. End of Oct: Persuaded the consultant I needed a pump (mainly due to my dawn phenomenon) - he said to book in to get a pump assessment meeting in 4 weeks
    2. Talked to the nurses about 20 mins after said consultants appointment (I have to go through the nurses for this) - appointments all booked up til the end of the year and they couldn't book any new ones cos they didn't have their new paper diary yet!!!! (talk about the dark ages!!!)
    3. Some time in Nov: got an appointment booked for the middle of January - ok, so a bit longer than 4 weeks huh! (they still didn't have their new diary yet - but put it on a bit of paper at the back of their current diary ...)
    4 Appointment in Jan - they said yes a pump would work for me but since I wanted one with sensors (my DP can be a bit variable - get it about 75% of the time, so extra insulin at 3am would cause issues if my DP didn't happen) I'd need a funding request which means I've got to see the consultant again - but but but, my consultant appt isn't til March/April ...
    5. Early Feb - on a Monday I morning rang up at just the right time to get an appointment that had been cancelled for later that day
    6. Consultant agreed that a Medtronic pump would be a good idea but to try without sensors for the time being (the default pump my hospital offers cant use sensors - and they only have one default choice - well its not so much a choice!) to see if it helps. Said the nurses would ring me back to tell me when to come in (he reckoned I could be on the pump in about a month). I think the plan for getting it without sensors first would be cos it'd be easier to persuade the CCG to pay for that and then add the sensors later if required.
    7. Rang them yesterday to see what was going on, apparently they haven't even ordered the pump yet ... (the consultant agreed to it 3 weeks ago!)
    8. So, they've now provisionally booked me in for about 3-4 weeks from now, but it may need to be cancelled if the pump hasn't turned up by then and if it hasn't it will be late April instead as Medtronic only come to my hospital once a month


    So yeah, a lot of faffing and trying not to make comments about incompetancy at certain points in time, but finally I'll get there :)
    Admittedly whilst I'm already excited about it and trying not to think it'll definitely happen in March, I realise it may not, but I'm crossing all my fingers.

    PS. Sorry if it sounded a bit like a rant, some of it has been frustrating to say the least
     
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    #1 Rokaab, Feb 26, 2020 at 11:37 AM
    Last edited: Feb 26, 2020
  2. porl69

    porl69 Type 1 · Well-Known Member

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    Congrats @Rokaab its a lot of faffle most of the time to get the pump BUT at least you are getting one. You will not regret it
     
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  3. Rokaab

    Rokaab Type 1 · Well-Known Member

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    Thanks, I'm getting excited about it now - I'm going to claim I'm a cyborg :)
    But yeah trying not to get too excited, cos I half suspect that the pump won't get to the hospital in time for my appointment in March
     
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  4. MeiChanski

    MeiChanski Type 1 · Well-Known Member

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    YASSSSS! I’m excited for you!
     
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  5. hh1

    hh1 Type 1 · Well-Known Member

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    @Rokaab congratulations! I'm okay with mdi and not sure I could cope with the calculations for a pump, but sounds as though it could make a big difference for you. Fingers crossed for 3-4 weeks!
     
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  6. Rokaab

    Rokaab Type 1 · Well-Known Member

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    And a quick update:
    I rang the hospital today and found out that they actually only ordered the pump yesterday :banghead:! When I talked to them about a week ago they said it'd take 3-4 weeks to turn up, so I'm now kinda doubting my start date which is only 2 weeks away :(

    But at least I did get the letter they sent me to take to the doctor for the new prescription, apparently unlike the consultants the diabetic nurses can't send it electronically to the docs, I have to collect it from there or they have to post it to me for me to take to the docs .....
     
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  7. hh1

    hh1 Type 1 · Well-Known Member

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    Fingers still crossed.....!
     
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  8. Rokaab

    Rokaab Type 1 · Well-Known Member

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    And as a quick update, I'm now very grumpy :(
    The pump has not arrived and wont arrive before the weekend, so appointment tomorrow is cancelled, next one I don't think is til the end of April, if any of us are even allowed out of our houses at that point.

    Grumble, grumble, mutter, mutter, grrrrrrrr!
     
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