aphex2k
Well-Known Member
- Messages
- 216
- Location
- Rockingham, Western Australia
- Type of diabetes
- Type 1
- Treatment type
- Pump
- Dislikes
- People that talk with their mouths full of food.
I wondered if in these circumstances I should get hold of some ultra fast acting insulin like Actrapid or Apidra? What are your thoughts?
Hi @aphex2k I didn't get on at all with the mio, had lots of failures with sets not inserted properly and kinking and and also suffered rashes and lumps, I now use the Sure T which is a stainless steel tip and had very little issues with this, also much easier to insert.
Yeah the Mio seems hit and miss. They seem to be "miss" when I'm using the last one I have with me, but luckily I work in the community so I can nip home and pick up spares - not idea though.
I find the tubing is a much softer plastic than my previous Accu-Chek setup and I wonder if it might kink / occlude while I sleep as I put my pump just under my pillow.
I was looking at the Sure T but couldn't work out why there were 2 parts to it. The site says something about easier to clear blockages (what blockages? Never had one!). Are they easy to insert? And do they come with a ridiculous amount of plastic packaging? Pains me every time I throw another chunk of plastic destined for landfill.
Have you ever tried the Quicksets?Ok so I'm not having much faith in the Mio. This evening my levels have gone up and up. Correction bolus x 2 with no effect. So I remove the cannula to see a bit of fresh blood. By the time I've opened a skin cleaning swap there's a big bubble of blood and it's dropping down. ***. I've literally sat on the sofa this evening and listened to music. Nothing vigorous. I'm not sure what's happening or why I'm not having much luck with the Mio.
So I watched a couple of vids on the Sure T. Straightforward. But why is the connecter from the pump tuning to the connector a different fitting? That seems daft! Anyway, 6mm cannula went in no problem close to my belly naval area, and the other sticky bit further to the side. 60mm tubing to the pump. I carry my pump on my right side and the cgm on my left side. Might take a few attempts to get used to placement as I do tend to sleep right sided. Will see how I get on with this one.
Let's see how I get on with this method. I wonder if 6mm is too short and I'd be better off with 8mm? Time will tell. I'm fairly slim but I do have a bit of belly spread! Haha age gets to us all.
Another method.......? Looks like I'd need another plastic inserter tool? I'll see how I get on with the sure T. So far so good. Just woke up and it's still in place, I'm not slowly bleeding to death, and my bsl has been stable over night.Have you ever tried the Quicksets?
You could put on a temp basal while exercising. I lower mine to 50% when I'm at work.Still getting on reasonably well. It's warming up here (30c now) so my levels are going a bit ping-pong. High, correction, low, eat, high. This usually happens.
Installed a new sensor last night. Felt ok going in, then noticed I was bleeding all down my leg - quite a lot! I was sure it was level and went in right but due to the amount of blood and the soreness afterwards I removed it and put a new on in. Another $75 down the drain. I emailed them this morning to see if it can be replaced. Worth a shot.
Went down to 2.2 at 2.30 last night. I heard the beeps and the vibration, I was just super tired and kept turning off the alert, but the pump stopped delivery thankfully, and I dozed at 2.2 - 2.5 until 5am when I got annoyed by the beeping and got up, had a slice of bread with jam on and went back to bed.
Have found that 2 x 1 hour classes of muay thai drop my levels by around 4-5 so I have been starting the session around 10mmol/L and by the end of the sessions I'm down to around 5mmol/L which works for me. Doesn't seem to significantly drop much after this and I have dinner once I get in - I should have a shower but I think the hot water might lower me more, so a good feed gets priority.
Still doing the cannula on the right and the sensor on the left. Would be interested to hear where others put their sensors? I usually change the site so that a new sensor/cannula is a good 2-3cm away from the old site.
So a little update.
It's fair to say my control, even with my Spirit, was terrible.
I'm 5 days into my 640g and CGM. Wow.
First night I checked my pump. 7.2. But I felt low. A finger test showed me at 2.8. I thought that was odd, but I was paying more attention to the numbers, not the arrows. Quick lesson learned.
The CGM unit had a bit of blood around it, so I must have hit a blood vessel when it went in. I contemplated changing it but decided to leave it in. It wasn't sore and the readings appeared accurate.
Before disconnecting my old pump I checked my averages. Not impressive. 80% of the time I was higher than my range should be.
Five days in, my levels are 90% within range and I'm super happy. I've changed the cannula once and that was a breeze. I'll be changing the sensor tonight.
I'm really happy. I feel like this is a huge step forward and it's saddening that more people can't get this system through their health service. I am very fortunate to have health insurance (I live in Australia) and my "upgrade" was possible as I convinced my fund there was a clinical need to get CGM. I don't feel like the CGM is in the way, or have any trouble (2 small kids who like rough play and jumping on Daddy for cuddles etc).
Calibrating isn't a drama - it's all about timing. I got caught out once having to get up at 5am to do this but that was my fault for doing my evening calibration too early. I've had 2 alarms go off due to approaching low limit while asleep but as I'm a light sleeper, all good.
I carry the pump in a Spibelt around my waist. It's not perfect but it means there's no issues pulling down my shorts or toilet visits.
I find the option to put a "marker" on the pump when I eat things is great as I can see the effect of what I've eaten. I've done a few correction doses split at 60/40% and levels have corrected well.
All in all, I'm super happy. Glad to answer any questions if people are curious of want to know how I'm getting on. I'm also planning to get back into thai boxing and reached out to a Canadian UFC figher who is also T1 and uses a pump and CGM - I was surprised to get a long reply from him and it goes to show how well us diabetics across the world stick together to manage our illness.
Mark
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