re please be careful..I'm leaving

Hi Maybird. Don't leave. I suspect that the fact that you started two simultaneous threads on the same issue meant that people thought they were being hectored. I have been abused and misrepresented here too -- it happens sometimes -- but as diabetics we all need to stick together.

Just because we don't always agree on things is no reason to leave a forum. I've upset people in the past I'm sure and I've disagreed with many but it's nothing personal ! At least you got people talking ! You were never going to get "yes or no" replies and I doubt you really thought you would. Anyway, I don't like people leaving our forum as you never know when you'll need it or someone may need you !
Mo


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Don't leave! like me you are fairly new and I know I am still trying to work out what to eat and what not. I am going to try LCHF for 3 months till my next test and see if it is working. if not I will look at something else. Unfortunately you don't fit into the need to lose weight category and having high cholesterol I can see your reluctance to eat high fat. My cholesterol was high (although I had a non fasting test!) but hasn't been in the past so I am hoping it will come down with the bs. What you need is some advice from people in the same situation ie with high cholesterol and no weight to lose. It must be hard for you as the standard response to high bs is lose weight and that will help. Carry on testing to see how foods affect your bs, eat ones that don't then see how your restest goes.

Maybird said:

I think it is best if I leave this forum as it seems that what I thought was in all innocence just a simple and sensible thing to suggest and what I would do myself but it put everyone up in arms about it and most got completely the wrong end of the stick and seemed to interpret it as... don't take any notice of any advice on here ...I was really upset that people could take it like that as it was certainly not what I meant at all and that you made me look like the bad guy
It was not even a suggestion that warranted such a volume of answers, a simple yes or no about it being a good suggestion or not was enough

I was in no way knocking the advice given on here I am sure you help a lot of people and that can only be a good thing and you of course should do that. I just thought it was a good idea to say with some of the advice you give...it may not work for everyone and to maybe check with your GP or DN before you start something new..if of course you trust them it seems many do not have very good ones..Of course I was not meaning that for every little bit of advice on here just the more serious stuff like complete diet changes etc.
I thought this was a forum where any advice or suggestions were welcomed but it seems not.
I have noticed it is mostly the same few people who answer the posts on here so perhaps they don't like anyone else suggesting things Anyway I will leave the forum as I feel I have been completely torn to bits on here by some of the not very sensitive members

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Maybird, you may be right about consulting the doctor before changing things, i dont know whats best for people to do, im just a dumb builder, im not an expert at anything health related, but warning people to not listen to peoples advice and experiences relating to db is in itself dangerous, love it or hate it lchf diets do wonders for many (not all) diabetics and i believe it is especially a good route for newly diagnosed people to try and get themselves on track, bearing in mind that when i was diagnosed i was in a deep dark hole and the people on the forum saved my life, the advice i tried was lchf and it worked so why wouldnt i try to help other people in that same hole, so when someone is fighting against you, saying be careful, this is not good advice, this is dangerous advice, ask your doctor not people on here, i would say is very upsetting, it is good advice, it does work, and most of all lchf isnt dangerous, there are people that disagree with this, thats fine! they put up evidence and a debate happens, the newbie gets to read all this stuff and make decisions, people say "im not medical" "ask you hcp" etc etc so often its boring, so there isnt any risk of people knowing that if they have a good doctor or dsn they should of course ask their advice, i would say its often the case that people find themselves here because they were not given any advice at all, my advice from my doctor was, and i quote "your a ticking bomb, you are within 5 years of major organ failure, no more mcdonalds for you" and i was sent home,

i dont mind you arguing against lchf at all, show the world why you think this isnt the way to go for you, why you think it and what benefits you have seen from your way of control, you can as many do put up links of clever folks agreeing with you, its all good and it all adds to the choices people have and stuff to learn about, i could be wrong, lchf could be wrong im just bassing my advice to people on what worked for me, i dont want to push something dangerous on anyone, i do agree we should take the advice of people on here and research it the best we can before making decisions.

i dont think you should leave, i dont believe anyone should leave, us all having different ideas is what makes this forum different to a blog, if there where a one size fits all treatment for db we could all sit here playing candy crush or comparing recipes.

im sorry if im rambling, anything i type that is longer than 2 lines starts to sound to me like im rambling

I really wouldn't take it to heart Maybird. I don't know how long you 'lurked' around the forum before posting but its always a good idea to read old posts and just read for a while first because otherwise you may misunderstand and be misunderstood.

ou do have to have rather a thick skin at times because you may unknowingky upse people with even well meant comments.

The fact is , as you realised , that many do not get the correc advice from their GP. In fact many T2s rarely see a GP about their idiabetes as it is alll lef to the Practice Nurse. Thiis means that the GPs lose ouch in a way with heir diabetic paients.
There is allso the fact that they are onliged to @toe the party line@ with regard to dietary advice ec ebven tthough many of hem know the official advice does not work and is even harmful to ohers.

In effect many people do not low carb in the strictest meaning of the term but merely reduce sarchy carbs. The exent o which they need or want to do his is up to the individual.
As Dillinger stated in his very helpful post on the subject recently. this can change for everyone from time to time.

It is the case with many chronic conditions- and many GPs would agree that sufferers lknow far more about day to day conrol than do the HCPs .
This is paricularly rue of diabees. I cannot imagine how my GP would react were I tto consult her on cutting out potatoes , pasta etc. How many Gops or other HCPs have ime for that these days? I would be asked why I hadn consulted the Nurse for a start/
I would never have thought to consult a dr about diet unless it was a very extreme diet.

Although some are very strict and others have to keep carbs to a minimum ,all LCHF means to most people is reducing carbs {esp starchy carbs} and not avoiding natural fats .
I see no cause for any sort of alarm here. On the other habnd , as you will now be aware the diet recommended by the NHS and DUK can be dangerous for individuals, I was one of hose individuals.
I have never been obverweight and followed a low Gi die for years before my accidental diagnosis. I was pumped full of inappropriate drugs and made to eat more carbs than ever in my life so that I could tolerate them. The result of all this {confirmed] was that I have neen fighing blindness for he past six years because my bgs were brough down too quickly.

There have been many , many similar tales on here .If the official advice worked for everyone there would be no need for these support forums . So as you vcan see urging people to return to he HCPs who offferd no or wrong advice originally was bound to upset a few people..

Really don't worry about it. Stick around , you may find and give support here. Because health is so vital there are ofen heated discussions . You will learn fast I am sure.

I'm sorry, but the prevailing opinion on the forums is that doctors are incompetent semi-vegetables who are conspiring to kill patients and hide miracle diets and treatment that would instantly wipe out diabetes at negligible cost, so do decideif you can handle the constant opposition you will face for not subscribing to these conspiracy theories.

AlexMBrennan said:

I'm sorry, but the prevailing opinion on the forums is that doctors are incompetent semi-vegetables who are conspiring to kill patients and hide miracle diets and treatment that would instantly wipe out diabetes at negligible cost, so do decideif you can handle the constant opposition you will face for not subscribing to these conspiracy theories.

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Looks like you've got a conspiracy theory of your own there, AlexB!

Don't leave maybird, your input is very good. I still say if I had found this site two years ago my brother would still be alive ,his doctor allowed him to walk about with blood glucose of 44mmols,because he had a loud voice and frightened the receptionists. he weighed 30 st and they ordered a ambulance at 4am, still had not arrived by 14.30 hrs I drove from Skegness to Loughborough ,pushed him my little wagonr and got him to the Leicester general in two hours, still waiting for bariatric ambulance, the hospital got him on insulin sent him home after two weeks gp never saw him, dead in three months.

2christine said:

Don't leave maybird, your input is very good. I still say if I had found this site two years ago my brother would still be alive ,his doctor allowed him to walk about with blood glucose of 44mmols,because he had a loud voice and frightened the receptionists. he weighed 30 st and they ordered a ambulance at 4am, still had not arrived by 14.30 hrs I drove from Skegness to Loughborough ,pushed him my little wagonr and got him to the Leicester general in two hours, still waiting for bariatric ambulance, the hospital got him on insulin sent him home after two weeks gp never saw him, dead in three months.

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thats awful sorry

that's the problem so am I ,if I had known about high bg may be causing anger, i could have explained it too him, if I had known so many things I have found out on this forum , and I am a nurse, and I knew nothing.

Maybird said:

Andy12345 said:

Maybird said:

I think it is best if I leave this forum as it seems that what I thought was in all innocence just a simple and sensible thing to suggest and what I would do myself but it put everyone up in arms about it and most got completely the wrong end of the stick and seemed to interpret it as... don't take any notice of any advice on here ...I was really upset that people could take it like that as it was certainly not what I meant at all and that you made me look like the bad guy
It was not even a suggestion that warranted such a volume of answers, a simple yes or no about it being a good suggestion or not was enough

I was in no way knocking the advice given on here I am sure you help a lot of people and that can only be a good thing and you of course should do that. I just thought it was a good idea to say with some of the advice you give...it may not work for everyone and to maybe check with your GP or DN before you start something new..if of course you trust them it seems many do not have very good ones..Of course I was not meaning that for every little bit of advice on here just the more serious stuff like complete diet changes etc.
I thought this was a forum where any advice or suggestions were welcomed but it seems not.
I have noticed it is mostly the same few people who answer the posts on here so perhaps they don't like anyone else suggesting things Anyway I will leave the forum as I feel I have been completely torn to bits on here by some of the not very sensitive members

Click to expand...

Maybird, you may be right about consulting the doctor before changing things, i dont know whats best for people to do, im just a dumb builder, im not an expert at anything health related, but warning people to not listen to peoples advice and experiences relating to db is in itself dangerous, love it or hate it lchf diets do wonders for many (not all) diabetics and i believe it is especially a good route for newly diagnosed people to try and get themselves on track, bearing in mind that when i was diagnosed i was in a deep dark hole and the people on the forum saved my life, the advice i tried was lchf and it worked so why wouldnt i try to help other people in that same hole, so when someone is fighting against you, saying be careful, this is not good advice, this is dangerous advice, ask your doctor not people on here, i would say is very upsetting, it is good advice, it does work, and most of all lchf isnt dangerous, there are people that disagree with this, thats fine! they put up evidence and a debate happens, the newbie gets to read all this stuff and make decisions, people say "im not medical" "ask you hcp" etc etc so often its boring, so there isnt any risk of people knowing that if they have a good doctor or dsn they should of course ask their advice, i would say its often the case that people find themselves here because they were not given any advice at all, my advice from my doctor was, and i quote "your a ticking bomb, you are within 5 years of major organ failure, no more mcdonalds for you" and i was sent home,

i dont mind you arguing against lchf at all, show the world why you think this isnt the way to go for you, why you think it and what benefits you have seen from your way of control, you can as many do put up links of clever folks agreeing with you, its all good and it all adds to the choices people have and stuff to learn about, i could be wrong, lchf could be wrong im just bassing my advice to people on what worked for me, i dont want to push something dangerous on anyone, i do agree we should take the advice of people on here and research it the best we can before making decisions.

i dont think you should leave, i dont believe anyone should leave, us all having different ideas is what makes this forum different to a blog, if there where a one size fits all treatment for db we could all sit here playing candy crush or comparing recipes.

im sorry if im rambling, anything i type that is longer than 2 lines starts to sound to me like im rambling

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Sorry but what makes you think I was arguing against low carb diets or any other diets come to that. My post was purely about checking with your doctor or DN before starting something new diet wise. Being new to all this I would have found that a very helpful suggestion if someone else had posted it on the forum. I am as I think many newbies would be a bit worried about changing what my DN recommended which I felt was good advice if I do need to change it though I will run it by her for her input
This whole thing has got totally changed now from what the original post was about.

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im sorry, ive done my best to explain why i got upset and dont want to argue, you can post whatever you like, ill try to not get upset by it again, best wishes to you

Hi Maybird please don't leave , I'm relatively new to all this but reading every ones comments and advice has been invaluable. As Ive said before I tried a few approaches re diet and have got a lower carb diet thats helping me. The way I see it my diet is healthy , Ive cut out the sugar , get my 5 a day and feel great.

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Look at Stephen Hawkin.... Drs told him he would be dead within a few years of his initial disgnosis... THEY WERE WRONG!!!

He has gone on n on beyond their given expiry date... GP's dsn's don't know it all. None of us do... However, we all have the capacity in us to make decisions, to check our bloods and do what is best for ourselves.... Nicely... Without falling out!!

I am not a fan of threats to leave.

I am sorry to say Maybird but a dose of you own medicine does you the world of good.
In other words stay with the forum.
It is not what you said, it is the way the readers have miss-understood you.

You have learned that there may be another way to have your comments read.

Whatever best of luck to you.

Roy.

Oh my... Take 2 days off and mayhem!! All i can say as a newbie us that this forum has given me more information help or advice mostly via a few individuals than i could ever have hoped for. I dont know if what im doing is right but in doing something at least. Others opinions freely given have inspired me to go and read and make my own mind up. We live in a democracy.. We are all entitled and have to remember that means we may not always like what we read.


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