Scared? Confused? Hope this helps

APR

Active Member
Messages
27
Type of diabetes
Prediabetes
Treatment type
Diet only
Dear All,

I know it’s completely normal to feel knocked off your feet by a diabetes diagnosis. I know I was – even when ‘only’ diagnosed pre-diabetic!

It took me a little while to discover what I needed to do to wrestle back control of my health from my rising blood glucose/sugar levels, and search for the answers to my questions as they arose. And once I discovered this site I found all the information you could need is contained in the forums and in the extremely helpful information for newcomers that Daisy1 seems to send to every new member who introduces themselves.

As I’ve read through the forums, I’ve noticed regular posts from new(ly diagnosed)comers who are understandably shocked, scared and confused and feel they don’t know where to start. So I wondered if it might be helpful to write a sort of overview of what I’ve learned. Something along the lines of the information I would have liked to have seen in one place when I first started searching. Of course, more experienced and much more knowledgeable posters have already noted all this information but I hope that by starting a new thread and bringing it to the top of the pile newcomers might be reassured a little before going into the forums and researching the topics in depth.

Note: This is really aimed at those who are diagnosed pre-diabetic or Type 2. If you are Type 1, on insulin or have specific queries about medication please reach out to other more experienced posters.

‘BG’ = Blood Glucose (i.e. Blood Sugar)

The importance of keeping a food diary

For the first month or more after diagnosis – or as soon as you are able to start – keep a food diary listing EVERYTHING you eat and drink and at what time.

The importance of testing

Unless you’re Type 1, it’s likely you’ve been told you don’t qualify for a free BG meter, you don’t qualify for free testing strips, and you really don’t need to test at all.

I think the polite response to that is Baloney! If you don’t test your BG, you can’t control your BG. Search the forums for info/recommendations for Meters.

FBG (Fasting Blood Glucose) – test first thing in the morning before eating anything – record in your food diary. Research ‘Dawn Phenomenon’ if necessary.
Before eating – test just before eating. This will be your ‘baseline’ against which you’ll measure your after eating tests. Record result in your food diary along with a description of everything you eat/drink.
1 hour after eating – test again. Record in your diary.
2 hours after eating – test again. Record in your diary*
* - if your 2-hour test result is LOWER than your 1-hour result you can stop testing. If your 2-hour test result is the same or HIGHER than your 1-hour test, keep testing every 30 minutes (and recording the results) until it starts to decrease.

The ‘ideal’ result would be to see only a small rise from your baseline test at the 1-hour mark and a return to/or very near to your baseline test at the 2-hour mark. A big rise at the 1-hour mark means you’ve eaten something (probably carbs – see below) that has ‘spiked’ your blood sugar. A long, continued rise past the 2-hour mark likely means that you’ve eaten something that is spiking your blood sugar but over a longer time (like a ‘slow-release’ whole-grain) OR that you’ve eaten something (such as fat – that will slow down the speed of the spike) alongside the food that’s causing the spike.

Keep a food diary/full test results for at least a month or two. It’s best to eat and test each meal at least 3 times within that time period as BG results will differ depending on the time of day and your physical/emotional well-being. The diary/test results combo will give you an extremely good idea of what spikes your blood sugar and, therefore, what you need to avoid eating in order to avoid the spikes and reduce your BG overall. Search the Forums for information re BG levels to aim for and the reasons why you don’t want to spike your blood sugar.

Dietary advice from the NHS

If you’ve had any dietary advice you’ve either been told to “carry on as you are, just eat ‘healthily’” – or you’ve been given more specific advice which likely tells you to eat (‘healthy’ amounts of) carbohydrates/starches* at every meal. (*Carbohydrates/starches are wheat/grain products (bread, pasta, pastry etc.), root vegetables, potatoes, rice, etc.)

Your food diary/test results will most likely show that when you eat carbohydrates/starches your blood sugar spikes/rises and is generally less controlled. So – against NHS advice – you could do what so many people do on these forums and follow a LCHF diet.

LCHF – Low carb – HighER fat

LCHF = Low Carb High Fat, but should really read as Low Carb HighER Fat. All that means is that when you reduce/remove carbs from your diet you need to replace them with something. And that something should be fat! I know, it’s shocking isn’t it?! You should not replace the missing carbs with greater amounts of protein. But ‘fat’ doesn’t mean any old fat. There’s a lot of information for you to look at about the whys and wherefores but what you need to know to start with is that you should NOT be eating Vegetable oils, hydrogenated and trans-fats. You should be eating good/beneficial fats – and they are saturated fats (yes, you heard right) such as Olive oil, coconut oil, lard (I know!), duck/goose fat, avocado.

I know it’s scary. We’ve all been told that fat – especially saturated fat – causes heart disease and does all sorts of nasty things to the body. Do lots of research – you’ll see that story has been pretty much completely debunked. Also search the forums for information about people who follow the LCHF diet and have lowered their Cholesterol levels – it’s not what you were expecting is it?

You’ll only know how many or how few carbohydrates your body can handle through testing.

LCHF isn’t the only answer – and it’s absolutely your choice as to whether you eat LCHF or not. All this is intended to do is to give you some starting information as to how you might best control – and eventually reduce – your BG levels. Search the Forums and other low carb diabetes info sites for lots of information/recipe ideas. http://www.dietdoctor.com/lchf is a great site with lots of information.

Sugar/Fruit

You already know to stay away from biscuits, cakes, sugar in your tea/coffee, etc. but fruit is healthy right? Well. Yes. And. No. The fruit we generally like to eat is the sweet stuff – apples, grapes, bananas, tropical fruits like pineapple and mango, etc. This is the sort of fruit you’re probably going to have to avoid like the plague to begin with. To see what you can and can’t eat – eat then test. Most of the advice on these forums and other sites will tell you that berries are your best bet – blue- straw- and raspberries. Again, each of us are different. Research information on sugar and carb levels in your favourite fruits – and then test yourself. Your food diary/test results will soon show you which fruits benefit you and which don’t.

Emotions

This was/is the big one for me. I knew – for years – that grain-carbs (wheat/oats particularly) made me unwell. I had severe IBS – pain, gas – bloating, full-on acid reflux every night – you name it I suffered with it. I knew why I shouldn’t eat sugar. But I was so addicted emotionally and physically that I couldn’t even imagine ever being able to give them up.

Despite training as a clinical hypnotherapist years ago to try to help myself, it wasn’t until I learned a technique called EFT (aka ‘Tapping’) that I was able to really get to grips with my emotions. And I’m still working on them. Don’t blame yourself because you know you should ‘do’ something about your health/diabetes but find you can’t. There’s nothing wrong with you and you are not morally flawed. Most of us learn – some to a greater degree than others – to use food to cope with life. We both soothe and reward ourselves with food – we commiserate and celebrate with it. And our ‘drug’ of choice usually comprises the very carbs and/or sugar that so badly affect our blood sugar. On a physical level these sorts of foods once eaten spike a release of dopamine in the brain – the pleasure chemical – and that only adds to the emotional comfort we receive from eating these foods. That’s why the idea of giving them up feels like death! But if you deal with the emotional reasons driving your addiction to/cravings for these foods you WILL be able to give them up. Some people find looking at pictures of diabetic complications is enough to shock them into action. Some people might consider therapy. Some read self-help books, some keep journals. I happen to tap! Do whatever works for you to enable you to take back control of your health. You are worth it and you can do it.

Little bit about me – I self-fund my own meter and testing strips (use TrueResult and buy (half price compared to Boots) testing strips via Amazon). Using a food diary/regular testing I’ve got my BG down to ‘normal’ levels – in fact haven’t gone above 5.5 at all over last four weeks or so. Latest HbA1c – 5.7%. Following LCHF diet – but not carb counting. Have lost weight but it’s slowing now – still got a lot to go so might just have to start thinking about portion control (gulp – baby steps people, baby steps!)

Please feel free to correct this post or add to it if I’ve missed out something important.
I hope it’s been helpful. Good luck.
 
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sunspots

Well-Known Member
Messages
302
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
Lovely explanation of how to start out! Pulling it all together like that looks a bit like a precis of 'Type 2 Diabetes - the first year' which I eventually found and read. But anything useful or memorable from it has been covered here by you. Great stuff.
 

SJC

Well-Known Member
Messages
683
Type of diabetes
Prediabetes
Treatment type
Diet only
Dislikes
Diets!
Good post :)
I don't understand the need to test after one hour though. Surely after one hour even a non diabetic will have a rise in BG. I can understand doing it after two hours and again after that if you feel it's on the rather high side. I am struggling to buy test strips too to be honest...a pack of 50 don't last long!
 

cold ethyl

Well-Known Member
Messages
3,210
Type of diabetes
Treatment type
Diet only
Great post. Particularly the bit about emotions and eating. Can so relate to that. I'm Low carbing, moderate fatting and keeping a weather eye on the calories as the fear of the DN's scales is hovering over me.
 

Daibell

Master
Messages
12,674
Type of diabetes
LADA
Treatment type
Insulin
A very good post. I might just query the sheer number of tests per day based on the cost either to the NHS or personally; I would reduce it possibly not doing the fasting (does it have any purpose?) and the 1 hour. Keeping a food diary is fine but it must include carb totals per day otherwise I'm not quite sure how you would use it?
 

SJC

Well-Known Member
Messages
683
Type of diabetes
Prediabetes
Treatment type
Diet only
Dislikes
Diets!
A very good post. I might just query the sheer number of tests per day based on the cost either to the NHS or personally; I would reduce it possibly not doing the fasting (does it have any purpose?) and the 1 hour. Keeping a food diary is fine but it must include carb totals per day otherwise I'm not quite sure how you would use it?

Hi
I am just using it for now to work out what foods I am reacting worse to. I don't know how to work out many carbs a day I should be aiming for ( considering I am trying to put weight on or at least keep it on).
 

Daibell

Master
Messages
12,674
Type of diabetes
LADA
Treatment type
Insulin
Hi. You might want to target somewhere around 200gm/day for starters and have enough protein and fats to give you all the nutrients and additional calories you need?
 
K

Kat100

Guest
Lovely to read your post , some of it applies to me ..... :) that is because we are all different complex individuals .....
 

lacasa

Member
Messages
12
Type of diabetes
Treatment type
Tablets (oral)
Thank you, your post was very informative for a new member. I shall follow your links to learn more.
 

Debmcgee

Well-Known Member
Messages
1,939
Type of diabetes
Prediabetes
Treatment type
Diet only
Hi
I am just using it for now to work out what foods I am reacting worse to. I don't know how to work out many carbs a day I should be aiming for ( considering I am trying to put weight on or at least keep it on).

Have you got my fitness pal app? I think it tells you on there what you need to aim for xx


Sent from the Diabetes Forum App

Diagnosed prediabetic Easter 2014. Just left to get on with it, no guidance or help from GP. Every day I'm learning something new.
 

Debmcgee

Well-Known Member
Messages
1,939
Type of diabetes
Prediabetes
Treatment type
Diet only
Agree with previous comments - it's nice to have a summary.

BTW olive oil is a monounsaturated fat and is very different to saturated fat so that could be misleading to some people.

Vegetable oils are polyunsaturated fat which, whilst not as good as mono, is still a healthier option to saturated fats.

X


Sent from the Diabetes Forum App

Diagnosed prediabetic Easter 2014. Just left to get on with it, no guidance or help from GP. Every day I'm learning something new.
 
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cazza54

Well-Known Member
Messages
136
Type of diabetes
LADA
Treatment type
Insulin
Dislikes
Turnips and Tuna fish!
Thank you, APR. For this newbie your post was very helpful.

I have been reading the forum avidly trying to discover as magic number of carbs to have each day and what you wrote makes sense to me. I have been keeping a food diary since my diagnosis almost 2 weeks ago, and testing extensively. I discovered that bananas and gluten free white bread spiked my BG as did a small baked potato, so they are now off the menu.

I will continue to test and record, at least until I see the DN next Thursday.

Regards, Carol
 

SJC

Well-Known Member
Messages
683
Type of diabetes
Prediabetes
Treatment type
Diet only
Dislikes
Diets!
I sat and persevered last night with myfitnesspal. Glad to say I worked it out and it's going to be very useful.
Can someone explain to me exactly which fats we are supposed to be eating because I am getting confused...again! If I eat low fat marg what's that? Thanks :)
 
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Indy51

Expert
Messages
5,540
Type of diabetes
Type 2
Treatment type
Diet only
I sat and persevered last night with myfitnesspal. Glad to say I worked it out and it's going to be very useful.
Can someone explain to me exactly which fats we are supposed to be eating because I am getting confused...again! If I eat low fat marg what's that? Thanks :)
Margarine - ugh! Processed nastiness at its worst.

The definitive guide to fats:
http://www.marksdailyapple.com/fats/#axzz33CJYxbGX
 
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lunarlinda

Well-Known Member
Messages
1,497
Type of diabetes
Treatment type
Diet only
Dislikes
Injustice, discrimination, greed, selfishness, WAR
SJC, how do you know it was the margerine that has kept your cholesterol low for years if you don't mind me asking? xx
 

SJC

Well-Known Member
Messages
683
Type of diabetes
Prediabetes
Treatment type
Diet only
Dislikes
Diets!
I don't of course. But I do know it didn't raise my cholesterol for a very significant number of years. I have just had a good read up about different fats and the argument for butter. I have some butter in right now and was using it occasionally when I joined the forum. I usually buy Bertoli because I was led to believe it had a good balance of the fats that are good for cholesterol. So, I have been doing a bit of Bertoli because it doesn't sit so heavy on my tummy, and a bit of butter but I am not putting lashings of butter on everything. The highest my cholesterol has ever been is 5.7 and that has happened in the last six months, at the same time as being diagnosed prediabetic.

There is much conflicting advice on the internet. There does seem to be a growing thumbs up for butter, BUT there also seems to be growing concern for the higher number of people having heart attacks since the LCHF diet became very popular. Now wether that's the low carb bit or the high fat I do not know. I am trying to weigh up wether I would prefer to die of a kidney related problem and end up on dialysis ( because of my kidney disease), or a sudden heart attack that could take me at a moments notice.

Life shouldn't be like this, but unfortunately it is. I had an Indian chicken curry last night and spiced aubergines. 4.8 BG before....4.8 2 hours later. I am contemplating living purely on Indian chicken curry !!!!!!! ;) Hey, I might even throw in a knob of butter!
 
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lunarlinda

Well-Known Member
Messages
1,497
Type of diabetes
Treatment type
Diet only
Dislikes
Injustice, discrimination, greed, selfishness, WAR
You could also die of stress and worry, or get run over by a bus. I think you were only doing what you thought best, which is what the media is still pushing as heart-healthy marg. I don't eat marge only butter, but in moderation. I'll have some of that curry please. xx