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SCREAMMMMMMMMMMMMM!

I

Iolanthe

Well-Known Member
Messages
58
Location
Birmingham
Dislikes
Carrots, parsnips, beans and pulses. People who don't get to the point!
So just got a call back from my GP three messages left later. Earliest he will see me is next Tuesday, which I can't do, so how about a week on Saturday. I have told him just to forget it. I am not taking anything for BP or cholestoral until I have discussed it and he again tells me my HB1 was good so does not want to prescribe anything - what about the bloody symptons I have been suffering with? The stupid nurse just handed me some booklet and told to take more starch - WHAT?!! The corner I thought I had turned, I have just gone back round. I just cannot take this any more.
 
Hi.

I think you should consider a new GP, either in the same practice or elsewhere. This is not acceptable. It is certainly not in accord with guidlines about when you should get an appointment. However, you too have to be flexible ? You might have to take time off for the appointment.

Ken.
 
Re: SCREAMMMMMMMMMMMMM! And 11.2 ?!!!

I have told him can do today and tomorrow. He doesd not seem to think that my levels are a problem but of course does not believe I should be testing. And have just done a test - ate a 9.00am - breakfast bar - my level is 11.2 assuming that is not good!!!!
 
Hi.

Just so you know the sort of levels a T2 should aim for here are the Feb 2009 guideline figures for Bg levels.

Fasting (waking) ....................between 4 - 7 mmol/l.
2 hrs after meals....................no more than 8.5 mmol/l.

A reading of 11.2 is not good at anytime really.

Ken.
 
Thank you Ken. But according to my GP my HB1 is good, which it obviously isn't if I am producing results like this! Just going round and round in one big massive circle, now, this is a big mess and I can't see a way of resolving it. See you are in Sutton Coldfield, I am Birmingham, nice to know there are allies in the West Mids, your posts have been very supportive, when my head is really not in the right place and my emotions are all over the place.
 
Hi Iolanthe.

Thanks for your kind words. :oops:

Do you actually know what your last HbA1c reading was ? This is only a snapshot over the last 3 months. Your daily readings are far more relevant. Have you tested each day on waking, before food, 1 and 2 hrs after foods ? These are the figures that will show what is really going on.

I can understand your frustration, happened to me too until I changed GP, got a referral to an Endocrinologist and got a fabulous (looking !!) DNS. :D Then came here and got great info. Haven't looked back since ! Try not to stress, it will get sorted.

If you wish you can PM me if you want to keep the numbers to yourself ?

Ken.
 
Hi

Thank you. Don't know what my HB1 is, it has referred to as excellent and good. My numbers are below. I am on diet,which I put myself on and started 9 weeks ago of 700 calories, basically, no fat, no potatoes, no pasta, minimum rice. Tend to eat fruit and soup (45 cals) during the day and salad at night. No alcohol, water and tea and one glass of fresh orange juice. That's pretty much the pattern for th day, so why are my number so over the place?

Today

Waking 7.1
2 Hr after Breakfast 11.2

Yesterday
Waking 6.2
1hr after lunch 8.9
Before dinner 5.3
Before bed 6.6

Day before
Waking 6.8
Before bed 8.7

Day before
Waking 6.8
Before lunch 7.0
2hr After dinner 10.8

Day Before
Before Breakfast 6.1
No lunch and no dinner 10.2
 
Just a quick look at that shows the readings are higher after your food.

This should be telling you something. Food consumption and what it is as well ?

In my own experience I have found that reducing the quantity and type of Carbohydrates helped to reduce my numbers greatly. I am not a pure low carb person.(before I get stoned to death)! One other thing is that Pure Orange Juice can cause your Bg levels to spike as well. Not good for a lot of us, although for some it can be healthy ? I can tolerate a very small amount sometimes.

So Iolanthe. Try keeping a food diary for a week. List all the foods by type. Quantity doesn't matter yet. Alongside that keep a record of the Bg test results as I advised earlier. Come back with those results. One other thing is what meds are you on ? They can also affect Bg readings ?

Well, that's the homework for today. Dismissed ! :D
Ken
 
Iolanthe

Ask to see a Dietitian - if you are following 700 calories you are putting yourself at risk - that is starvation and also it will be deficient in almost everything your body requires.

I would neve tell my patients to drink OJ and cuppa soups - ask your GP to refer you.

ally
 
Thank you for that. I will start from today and come back to you! In terms of meds, I am not on anything, my GP does not think I need them because of my HB1, not that I can get an appointment to talk to him! This was passed on through the really useless nurse, who dismissed all my symptons handed my some random booklet and told me to eat more starch. My other problem with all this is I suffer from something called Bile Salt Malabsorbtion, which means, most things go straight through, if you get me drift. This was another reason why I really need to speak to the doc about all this about all meds and also how to control this with the D2 and probably why I have such up and down readings. (When I mentioned this to the nurse she had never heard of the condition. You can see why I am now at my wits end with all this. :(
 
As ally states, you need a referral, preferably to an Endocrinologist who can juggle treatment for the other complications.
Be persistent.

Ken.
 
From this and your other posts, you sound pretty stressed out, Iolanthe, and without wanting to sound like I'm stating the obvious, it would help your blood sugar levels if you could find some way of calming yourself down. Try guided relaxation, deep breathing, warm scented baths, etc. Sounds corny, but those things can help a lot. Exercise can do wonders as well, even if it's just running up and down stairs a few times to get the endorphins flowing.
 
Ask for a second opinion or a referral to a specialist. they will probably wriggle, but I believe it's your right. If you don't get an appointment within a resonable time, complain to your PCT. their number will be on the web. Just google the name of your health centre and start looking there.
the care you are getting "Sucks!"
 
I checked and you have the right to ask for a second opinion, not necesarily a right to get one. I found this website
http://www.nhs.uk/chq/Pages/910.aspx?CategoryID=68&SubCategoryID=156 You may have to cut and paste, it might not work as a link
 
Thank all, this is really supportive and helpful and is the best advice I have had, because my GP is not exactly going out of his way to help! And I know I am getting very stressed, but I was just coming to terms and then I get knocked back again. Ironically I have private health care, so would be able to see a consultant fairly quickly, however I would need to get a referral letter from my GP and as I can't get an appointment and he would probably say no as my HB1 is "good", which it is clearly not and will be complicated by the Malabsorption. But will anyone listen to me no! I think I know my own body and I do want to take massive control of this but they don't seem to want to let me. I really don't what I would have done without all of you, seriously, I have never met any of you as far as I know, but the support is just fantastic. Thank you.
 
You should speak to your Private Health care provider or the Hospital you would be using and see if you can self refer.
It is not usual, but I have done it in the past at a BUPA Hospital near to me and got the appointment and eventually the correct NHS treatment by the self same Consultant.
You lose nothing by asking ?

Ken.
 
cugila said:
You should speak to your Private Health care provider or the Hospital you would be using and see if you can self refer.
It is not usual, but I have done it in the past at a BUPA Hospital near to me and got the appointment and eventually the correct NHS treatment by the self same Consultant.
You lose nothing by asking ?

Ken.
Click to expand...

Thats the route I took, consultation with a BUPA GP and a referal from him to a consultant.
 
I do feel for you as I was in a similar position not so long ago...... I honestly felt I could have murdered the lot at my practice. I wanted to help myself and get medical back up but it was not forthcoming and I had to fight to get what I wanted. Please, please, don't give up on asking for help though. Just stand your ground, as politely as possible, until you get some answers and a referral if possible. As someone who is trying to sort things, you deserve better treatment. I wish you well.
 
Okay, so Axa will not let me self refer to a consultant. However, now have appt with private GP tomorrow, with a specialism in Diabetes and will ask him to refer me to a consultant, will cost me £60 but worth it! Then Axa will pay for the consultant. So I have just faxed my surgery and asked them to fax across my blood tests to the unit, including my HB1A have said I have have health screening for work, handily, they are also a health screening unit, so hopefully they will be none the wiser. But I am expecting a call to say no! I can't believe I am going down this route but at least I feel I am doing something. Thank you ALL for the help and suggestions, will let you all know how I get.

PHEW!

:roll:
 
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