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Type 1 Severe pain in the eye following intravitreal Eylea injection

C

Canadagal

Member
Messages
6
Type of diabetes
Type 1
Hi all

I have had type 1 diabetes for 32 years and have proliferative diabetic retinopathy which was treated with laser therapy and Avastin injections some years ago which kept things at bay. I have now been prescribed monthly Eylea injections for macular oedema. I had the first one last Friday and felt only minor discomfort during the procedure, however when the anaesthetic wore off, the post op pain was horrendous for around 12 hours to the point where I was vomiting. This had previously happened following my first Avastin injection but not with subsequent ones.

When I contacted the clinic the ophthalmologist was very dismissive stating I obviously had a low pain threshold. I have previously had a vitrectomy and epiretinal peel and consider my pain threshold to be quite high.

Has anyone else suffered unbearable post injection pain? If so after each injection or randomly? I am obviously dreading the next injections and would be grateful for any advice.

Many thanks

Carolyn
 
Hi Carolyn and welcome.

If you use the forum search facility (in the top right-hand corner) and type in the word Eylea you'll find some threads discussing the procedure, here's one of the most recent:

http://www.diabetes.co.uk/forum/threads/retinopathy-success.109419/

Do mention the pain again to the Ophthalmologist and ask if you can take some strong pain relief up to and after the next injection. Good luck.
 
Hi Carolyn,

Sorry your having problems.

I've just completed a 6 course eylea in the left eye for a swollen macula.. & had no issues of pain at all..

Not much help I know.
But from my experience found the eylea jabs were faster dispersing than the course of Lucentis I previously had in the right eye With faster improvement to the point of gone before the course ended & no "Muppet eye" (I call it.) where a black disc swings about in the lower field of vision for the best part of the day with the Lucentis..

Maybe a little "sleep dust" & possibly an itch from the "cleaning process" of the eye after everything settles, (iodine involved?) but that's it.
 
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Thanks Jaylee

Having previously had some pain free Avastin injections and hearing your experience of Eylea gives me hope that I was just unlucky with this injection. Fingers crossed for next time!

Many thanks for replying

Carolyn
 
Hi there Carolyn
I had 1 avastin injection and 2 Lucentis injections back in 2013 for a macular odema in my left eye and unfortunately I found all 3 to be quite painful.:(
mainly the feeling was of about a handful of sand being poured directly into my eye

I took paracetamol and went to bed and tried to sleep it off.
 
Hi himtoo

Oh dear, that doesn't give me much confidence :( The afterpain I felt was like explosions of really sharp pain, like the dentist continually hitting a nerve when drilling ... Telling myself it's only once a month for a few hours and have paracetamol and ibuprofen on standby.
 
my pain was not really like that -- it was just like having loads of grit in my eye that would not go away for about 8 hours after the anesthetic wore off.
 
I've never really had pain that lasts more than a few hours , general discomfort sometimes. Just because the actual procedure isn't painfully doesn't necessarily mean you'll have no later after affect. Having had over 100 jabs of Avastin Lucentis eyelea the after affects have all been similar. Although Lucentis for me was quickEr acting than Eylea, it wasn't as long lasting. Alas , none of them last more than a couple of months for me, hence the amount of jabs. The plus side is other treatments are in the pipeline all the time. I'm sure 20 years ago I would possibly be blind by now. My worst after affect was when there was a high pollen count, and I was outside for some time, big mistake. If you do get big black floaters that look in my case like black snooker balls clanging about, especially when looking at the floor they are air bubbles which always break up and dissappear within 24 hours.
My way of coping , now a ritual for me is, straight home a couple of paracetamol, go to bed in a darkened room try and sleep for an hour or two. This usually works for me.
 
Hi petdell
Thanks for your response. Don't know how you managed over 100 injections! I think my experience is just hit and miss. Unpleasant procedure followed by one of two post event experiences. Hoping for normal post discomfort next time. Fingers crossed :)
 
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