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Should have joined this site 5 years ago :)

scallion

Member
Messages
14
Type of diabetes
Parent
Treatment type
Insulin
Hi All

Diagnosed 5 years ago with type-2 - managing ok with medication (metformin / glimepiride), blood sugar pretty much under control although have never been too disciplined with the dietary requirements.

Not the reason I have joined though. Daughter was diagnosed a few days ago with type-1. (I recognized her early symptoms with thirst/needing to 'go' two weeks ago, but glucose levels were normal). After a week of getting worse we checked again and very high (20) - she's been in hospital for the last 4 days, Mummy & me doing the 24/7 with her (but mostly mummy) .

So I'm here for both of us, will be checking out all the forums for dietary & lifestyle advice etc, just to communicate with other folk who have the experience . Never good to hear that your daughter has this but In a rose tinted glasses way, we'll be able to manage the whole diet thing together.
 
Hi All

Diagnosed 5 years ago with type-2 - managing ok with medication (metformin / glimepiride), blood sugar pretty much under control although have never been too disciplined with the dietary requirements.

Not the reason I have joined though. Daughter was diagnosed a few days ago with type-1. (I recognized her early symptoms with thirst/needing to 'go' two weeks ago, but glucose levels were normal). After a week of getting worse we checked again and very high (20) - she's been in hospital for the last 4 days, Mummy & me doing the 24/7 with her (but mostly mummy) .

So I'm here for both of us, will be checking out all the forums for dietary & lifestyle advice etc, just to communicate with other folk who have the experience . Never good to hear that your daughter has this but In a rose tinted glasses way, we'll be able to manage the whole diet thing together.

Hi Scallion, welcome to the forums.
Sad to read your news, but it seems to be affecting so many young people. You didn't say how old your daughter is, can she take any responsibility for testing/injecting herself or is she too young?
 
Hi scallion and welcome
I'll tag @daisy1 for you she will be along shortly with some info she gives to newcomers you may find something of use
Sorry to hear your daughter has been diagnosed and I hope she will settle with it ok youngsters seam to cope better than we do at times. Have a good look around the forum if you have any questions at all just ask we will try to help if you need us
Both of you keep safe stay safe JJ
 
Hi Scallion, welcome to the forums.
Sad to read your news, but it seems to be affecting so many young people. You didn't say how old your daughter is, can she take any responsibility for testing/injecting herself or is she too young?
Hi urbanracer - thanks for the welcome & glad to be here.

She is 8 and I'm so proud of her - very resilient with all these changes. She is doing the blood sugar pricks herself already. Today for the first time in hospital she did her own insulin injection (under direction from the nurse)
 
Hi scallion and welcome
I'll tag @daisy1 for you she will be along shortly with some info she gives to newcomers you may find something of use
Sorry to hear your daughter has been diagnosed and I hope she will settle with it ok youngsters seam to cope better than we do at times. Have a good look around the forum if you have any questions at all just ask we will try to help if you need us
Both of you keep safe stay safe JJ

Hi JAY1JAY1 - big thanks and that's why we are here. Like you say, kids pretty much cope with these things better than us. She isn't fazed at all - (So I cried in front of all the nurses, brought her so many toys to hospital in the way that Daddies just react lol-
It's a lifestyle change for her (and for me it's a wake up call to get with the plan and do the diet thing with her.)

Her big sister is being brilliant, with all the attention going to younger one (sorry, really don't want to give personal info out).
 
Sorry to hear your news, but a very warm welcome to the forum. Hope she is out of hospital, back at home and fighting fit soon
 
@scallion

Hello scallion and welcome to the forum :)

As tagged above, here is the information we give to new members and I hope you will find it useful for you both. Ask all the questions you like and someone will be able to help.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Good luck to you all ,your proud of your kids and so you should be make sure you give them lots of love and enjoy them as much as you can they soon grow up, and remember life is not a dress rehearsal, so keep them well and keep them safe ;)
 
Sorry to hear your news, but a very warm welcome to the forum. Hope she is out of hospital, back at home and fighting fit soon

Big thanks Sue - she has been moved to a different hospital - when I was there with her, there were so many other kids who had other more awful things. Diabetes type1 is manageable for our family. I'm so glad we joined this forum for support.
 
Good luck to you all ,your proud of your kids and so you should be make sure you give them lots of love and enjoy them as much as you can they soon grow up, and remember life is not a dress rehearsal, so keep them well and keep them safe ;)
Ditto
 
Hi Scallion

Although you are a type 2 and now have a type 1 daughter there are huge differences in regimes and testing and ongoing care really.

As an adult you may well deal with your diet and lifestyle ok.... However a child (i don.mt know age)... Is different, totally different. They will rebel, they will forget to inject and test at times..they will go through tough regimes for pregnancy etc...

Although you have type 2.. Injecting, testing, wanting to be the same as friends is totally different.

Your daughter may well appear as accepting now.. You shed tears... Away from you and in private she may well be thinking "why me?", "why didn't my sister get it"...

Despite having type 2 and managing your bloods. Type 1 is very hugely different, especially in a child who will go through hormonal changes, boyfriends, PE lessons, having different rules for her driving licence etc, parents refusing sleepovers etc.

It is definitely not all about "the diet thing".

T1's diets don't have to be any different to a
Non diabetic... Its the testing, the injections, the hypo's, the hypers that stress us...
 
Hi Scallion

Although you are a type 2 and now have a type 1 daughter there are huge differences in regimes and testing and ongoing care really.

As an adult you may well deal with your diet and lifestyle ok.... However a child (i don.mt know age)... Is different, totally different. They will rebel, they will forget to inject and test at times..they will go through tough regimes for pregnancy etc...

Although you have type 2.. Injecting, testing, wanting to be the same as friends is totally different.

Your daughter may well appear as accepting now.. You shed tears... Away from you and in private she may well be thinking "why me?", "why didn't my sister get it"...

Despite having type 2 and managing your bloods. Type 1 is very hugely different, especially in a child who will go through hormonal changes, boyfriends, PE lessons, having different rules for her driving licence etc, parents refusing sleepovers etc.

It is definitely not all about "the diet thing".

T1's diets don't have to be any different to a
Non diabetic... Its the testing, the injections, the hypo's, the hypers that stress us...

Hello donnellysdogs

Big thanks for the reply, info and advice. Yes on all counts - will be different for daughter than it is for me, but diet is one of the positive things I can help her with. Haven't even considered the adolescent stuff yet (hormones, rebellion, boyfriends) - she is only 8 and hopefully by the time these things come along her type-1 routine will be so much part of her life that we'll just be going through the same sort of teenage stuff that other families go through. Fairly sure she is not thinking "why didn't my sister get it" but comment taken on board and will be looking for any signs. At the minute, she is in a sort of 'honeymoon period' with the diagnosis. The disciplined (harsh word but can't think of a better one) regime of injections / testing / doctors appointments is something we will have to deal with - and any advice on this is 100% welcome

Thanks again.
 
@scallion

Sorry actually. I am blunt sometimes.. Infact, pretty much 99% of time...and that is how my reply seems when re read.

I am glad you won't have probs handling diet.. Lol!! One less thing to worry about as such!!

Be positive with your daughter, thats actually one of the things my dad did for me.
It wasn't as such a lie.. There was no internet in my day..and he bought every paper, every article was cut out with the progress to help us.
So "cure" in my life time isn't likely, but it is for your daughter.
To be honest, even though this is all available on internet.
I would start a journal for her (in private) of the developments from tbe day of her diagnosis. One day she will appreciate a hard copy to look back on and be able to realise the love and if it included even copies of things people write here.. Just printed in a journal.. One day she will as an adult appreciate it more..

Good luck with the journey... Of diabetes...
 
@scallion

Sorry actually. I am blunt sometimes.. Infact, pretty much 99% of time...and that is how my reply seems when re read.

I am glad you won't have probs handling diet.. Lol!! One less thing to worry about as such!!

Be positive with your daughter, thats actually one of the things my dad did for me.
It wasn't as such a lie.. There was no internet in my day..and he bought every paper, every article was cut out with the progress to help us.
So "cure" in my life time isn't likely, but it is for your daughter.
To be honest, even though this is all available on internet.
I would start a journal for her (in private) of the developments from tbe day of her diagnosis. One day she will appreciate a hard copy to look back on and be able to realise the love and if it included even copies of things people write here.. Just printed in a journal.. One day she will as an adult appreciate it more..

Good luck with the journey... Of diabetes...

Hey donnellysdogs, no worries, blunt is good, advice taken in the spirit meant, which was helpful.

Think journal is a great idea. She's home today for a bit for the first time since Monday, but has to go back to hospital tonight, hopefully home for good on Tuesday but we will see. Had a beautiful big 'get well' card for her from all her classmates at school, she loved it. We're preparing the essentials kit (little cans of full sugar drink (not sure about advertising here, need to get used to any rules lol) for potential hypos that we can keep in the places where she would be etc). Going through the carb count stuff to weigh out what snacks she can have between meals without having an injection. She's actually really clued up about it all, so impressed.

Re articles in newspapers - one today had a huge "Diabetes Breakthrough" cure. Bought it (of course) - and although the headline was sensationalist, the detail was also promising (using the BCG jab briefly allowing the pancreas to start making insulin again). Not going to ask your age, but you never know what will be available in the coming years.
 
My dad at the time kept every article, cut it out and put it into a scrapbook. I still have it in the loft!!

It truly is something when the days get tough (and they will) to even write a note in it how devastated you and siblings etc were and how you wish you could take it away from your precious daughter.

Record special days of how you all coped and enjoyed and not reflect on non diabetic life pre diagnosis at all. Don't include pre diabetic days..

You have a huge amount of positiveness in your post.. And that is wonderful to read.

It may even help to make a sort of journal for your daughter to reflect back on in 20 years and say "my family did this before the 'cure'..."

Thank you for not taking umbridge at my bluntness!!

Wishing you and your family good thoughts for your journey ahead.. And so glad daughter is allowed out for a while. My hospital sent me out just because they told me I'm not ill, i'm not going to die and I have to learn how to cope. I was never allowed to stay in bed etc. Had to get dressed, jab n go out!! Back for lunch, out again to meet my dogs for a walk, back to hospital and to stay in overnight.

Your daughter is having the best start to diabetes by being allowed out and to be normal...
 
Just to say a very big thanks again to all folk in this thread and on this site. A quick update, and then no longer needs to be in the "greetings and introductions" bit.

Daughter home from hospital today, ready to go back to school tomorrow. The hospital(s) and school putting in place a care-plan with us so that we can manage the new lifestyle. and @donnellysdogs, we have started a journal so special thanks for that idea.

Won't be replying to this (since it just bumps it up over other folk who have just joined and need advice), but will be seeing you all on the forum.
 
Not expecting a reply.. But so glad your daughter has come home now and a care plan is being put in to place.

Don't forget to claim DLA for your daughter.

Keep that journal going for bidthdays. Celebrations, changing schols etc... I love the fact that my dad took the time to do this for me.

My dad also knew he was dying and left a note to my mum and the children. To me he said "the last thing he could do for me was to ask that there were no flower donations but that money went to the then "BDA" British Diabetic Association..." It was a wonderful last gesture to help me and diabetics....

These memories are the best for remembering my dad and the love he had for me. Very special thoughts and memories.

Please let us know how you all get on as this does impact not only on your daughter but your whole family. I hope that everything goes smoothly...
 
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