so confused

[juleslittlegems]

Hello
I am new to this forum and hope i am typing this in the correct category. I was diagnosed with diabetes (professionals still not sure which type) in November 2011. I already suffer with Complex Regional Pain Syndrome (CRPS) and Fibromyalgia. My current medication is Novomix 30 8 units in the morning and 14 units at dinner time and 2 Metformin daily. We managed to get me settled when i came out of hospital but after a couple of months i started to have hypos before lunch time so we stopped the insulin in the morning. Gradually my blood sugars crept up again so i started on insulin in the morning again as well as all my other medications!! Happily sailed along on this until a couple of months ago i started to have hupos again - i have contacted my specialist diabetes nurse but she never gets back to me - if i go to the doctors they refer me to the nurse and i am going round in circles!! So i stopped insulin in the morning again and lo and behold up they have crept although they are sort of ok before a meal is due, wheni test my blood 2 hours after a meal they can be as high as 18!
CRPS is a nervous system problem which tells my brain i am in trauma all of the time so my pupils are constantly dilated, blood vessels constricted and in constant pain - i suppose maybe this could have an effect on my sugars?? There i am at a loss too because nobody knows very much about CRPS either which doesnt help. My vision is becoming blurry just like it was before dagnosis - i am constantly thirsty and weeing, nauseaous but nobody seems to listen and i mean really listen to me. Can anybody help even if it is just to let me know if blood sugars of 18 between meals is ok?? Many Thanks Julie

 

[Daibell]

Hi. I'm not a Type 1 on insulin but it does look like your surgery support is not very good for someone on insulin. There are many different types of insulin and dosage regimes so there may be a better match for your needs. I would suggest you insist on a referal to your local NHS diabetes unit if you have one. A reading of 18 is far too high and dangerous to your health. With a reading this high the surgery must take action and put you in contact with someone who understands treatment with insulin. If you are not already following a low-carb diet then do adjust your diet as this will help reduce your blood sugar; see the forums for diet advice or ask again for more information. Note that if your reading goes even higher be prepared to attend hospital A&E who may in turn refer you to the diabetes clinic for future support.

 

[BlindFaith]

I'm not the best person to advise on your blood sugar levels but if it helps to know someone has been there, I have. My sugars have been in the high teens/early twenties for about 2 months now and they're slowly going down with medication and a change in diet.

I also know how you feel with the chronic pain - I'm a fibromyalgia sufferer, with chronic fatigue and it's utter hell.
My heart really goes out to you, the trouble you're having with your blood sugars must be causing the fibromyalgia and CRPS to flare up something awful.

Hopefully someone who knows a bit more than me will be able to answer you but I wanted to let you know that you're definitely not alone.

(((HUGS)))

 

[xyzzy]

Yes agree with Daibell. 18 is too high and would account for many of your symptoms. I'd try reposting your question in the Type 1 area of the forum. Like Daibell am not on insulin but know vaguely there are different regimes and different types of insulin. Hopefully one of the long standing Type 1's can advise you on what questions you need to ask. Take care and good luck.

 

[juleslittlegems]

Thank you so much for your advice everyone i will repost my post as well as you advised. Thanks for the support it means so much as i really am at my wits end with it all and its nice to feel that you arent alone.
Julie x

 

[noblehead]

No experience whatsoever of Novomix 30 but hypo's are caused by too much insulin or not enough carbohydrates, in the absence of your DSN getting back or until some other member replies who has used Novomix you could try going back on your morning insulin and reduce the dose by 1 or 2 units to see if this stops or reduces your pre-lunch hypo's.

In your shoes Jules I would write a letter of complaint to the Diabetes clinic or Hospital Trust and ask why your requests for a call-back are being ignored by your DSN, failing that go down there and park yourself in the clinic and don't move until you are seen by a DSN.

 

[jopar]

I've added some information on your new post in the T1 forum!

 

[Dillinger]

Hi,

I agree that you need to push to be referred to the diabetic clinic at the largest hospital you can get to. If you have a choice go for a teaching hospital.

Novomix isn't something I know about; it seems a very old fashioned way of managing diabetes; you are essentially eating to your insulin and not taking insulin to cover what you eat.

I would reduce rather than stop though.

If you can get some proper help ask about a DAFNE Course and switching to a basal/bolus regime. Which means having background insulin and then taking variable amounts of short acting insulin to cover your meals.

Sorry you are getting such **** help.

There are answers and solutions; don't give up!

Best

Dillinger

 

[juleslittlegems]

Thank you all for your help i will be making an appointment with my GP armed with all my info and a food and BG diary - i think i may ask to be referred to Hope Hospital in Salford as i know as well as the diabetes clinic they have a rheumatology department that is researching CRPS (maybe - just maybe) they could work together?? - we shall see. Thank you all so much again its lovely to know you are all here. - Julie