So scared I'm going blind

Aww, i feel so bad. Im here to talk if you need it, but i wont be in here often and i just joined

 

I'm so sorry to read about your predicament. Anyone would feel sorry for themselves experiencing all that, and with all the uncertainties and worries about the future. How much professional medical support are you getting?

 

I'm sorry to hear what you're going through. it's must be terrible to feel that way and have this happening to you.Is there anyone you can talk to in person? A support group or a helpline? Your partner? perhaps there is someone here who will answer with that information.

 

In your place I think I would get my GP to refer me to see a consultant privately, as a one-off. Then you could take the time to ask all your questions.

 

Sorry to hear you're feeling down. It's not surprising under the circumstances - anyone would find it hard to be phlegmatic month after month. On the plus side, you've been referred to the right place where there is a team of expert people dedicated to doing their best for your eyesight. Regarding the haemorrhage, they can take months to clear and even if it doesn't clear up due to repeated bleeds there is a treatment available - vitrectomy. The whole process may seem interminable now but there are people of this forum who have had similar circumstances and come out the other side -if you use the search function you should be able to read their posts.

I appreciate it's difficult, but rather than using up all your energy on worrying about 'what if', it would be better to harness the energy to attend all your ophthalmology appointments and to keep your diabetic control as good as you can because this will help your eyesight in the long term.

 

Hi there. I know it is really scary as this happened to me about 17 years ago though I didn't go blind this is what my family and colleagues feared on my behalf and I was sent info about Guide Dogs by a well meaning friend.
The obvious thing to say first is are you on regular checks with the local eye clinic/screening service? Changes with eyes are usually slow so if you are getting those checks in spite of Covid etc. perhaps you could speak to your GP or a nurse at that clinic who may have a little more time and skill in reassurance.
I did suffer major sight loss after a retinal bleed but this was after a lot of treatment and due to a recent pregnancy with subsequent blood sugar roller coasters/hormones etc. I was told that I was pretty unluck.
I appreciate that my condition isn't totally similar to yours but at my most anxious, my GP did research on my part to reassure my family and i about the surgery I was facing (vitrectomy) which is not to say you are headed that way of course!
You may also be better trying Diabetes UK Careline than RNIB for a sympathetic and informed ear. this is what they are there for.
The other thing to say is that my surgery did result in my coming off the road (nit saved my sight) and at the time it felt like a major loss of independence as I was working and had a small child but I've adapted and partial sight loss is fine (bike, free bus pass and chauffering from my husband who hated the way I drove anyway!).

 

That's really good to know.

 

As per my post message me if you want to know more!

(edited by mod)

 

Good luck and I'd ask some questions when you go in e.g. success rate for the surgeon doing the op? Recovery process/duration etc as this wasn't the easiest process but things may have improved and after all you may not need it.
Mine was entirely successful and 17 years on all is well with no expectation of any further treatments required other than cataracts at some stage.
As you say your family will joyfully support you through this thing because they need you and love you!

 

Very worst case scenario, I was just listenig to a podcast interview with a totally blind chap who managed successfully to raise 2 small sons all alone after his young wife died. But you are certainly not there yet!