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Some advice plz

S

Shazza

Well-Known Member
Messages
163
Location
Scotland
Hi

Sons bs has me confused again and some advice would be appreciated. Went to see consultant yesterday and changed his units of insulin very slightly, will list this below, he has had usual carbs before dinner bs was 9.3, 2 hr after 11, then dropped to 5.2 at 8pm gave 2 slice toast (20 carb) thinkin he would go up as usual to 8, just did bs again and is 5.6 have given him another 2 slice of toast. He has alway went to bed around 8 and got up same maybe 5 lowest, im scared of night time hypos.

brekkie 5 novo was 4
lunch 2 was 3
dinner 4 unchanged altho DN said will poss need reduced

supper 5 half levimer unchanged

thanks
 
Hi Shazza,
has he been overly active today that would explain the insulin dropping him to those levels, or the type of carbs ie, pasta can cause highs then lows,or have you overlapped any of the timings of novo.
To be honest there really good bs numbers, but i can understand why your worried about night time hypos. Extra carbs before bed, or glass of fruit juice if he's not hungry shouldn't do him any harm.
We're having the opposite problem with Andrew at the minute, he's also 11, and is showing signs of puberty and his bs are going up again, yet he's having lows in the morning.
There's so much juggling to do, even after almost 4yrs, it still gives me the odd headache working it all out. I find if Andrew goes hypo in the night, his body naturally wakes him as if he's had a nightmare and he comes into my room, but i usually hear him first, and meet him on the landing, ready with his meter and lucozade. Let me know if i can help in any way.
Suzi x
 
Hi

He did do gym at school but felt as if he was having a hypo and stopped, he was 8 tho and I put it down to a false hypo as we,ve had a rough couple of days going to 20 after diiner (had bday party then was at his dads for meal) then needing corrections when home. No overlaps but we did yesterday because of correction ... could yesterday still be causing us probs? No pasta or anything diff for dinner, chicken casserole and roast potatoes 100g, good to know Andrew wakes with hypo, Ewan has never had a night hypo its always a worry. Thanks for the help Suzi youve been great since I joined this forum, hope Andrew bs settles shortly, does he start academy this year?

xx
 
Hi Shazza,
Andrew is in Yr 7 and should be heading to high school in Septembe,r but we have decided to emmigrate to Malta in June/July, so his new school year will start at the end of September at St Martins College, providing he gets accepted. We are going over in March for interviews at the school, and to find accomodation. I also have another son Stephen who is a stroppy 13 yr old and in yr 9.
Yesterdays overlap shouldn't still be causing problems, Andrews on Humalog and its profile works over 4-6 hrs, but we find it wears off in 4, like his Levemir seems to last only 18hrs, so were going to split it again. Kids, there so different, never text book!
Suzi x
 
I know how nice it is to sleep through the night but sometimes when changing doses it is just easier to get up and check rather than worry. You might have to get a few days worth of levels before making a judgement as to what is going on. I must say that Khaleb's diabetic team do not tell me what doses to give as they understand that they don't get the full picture. There are days with lots of activity or very little and it doesn't all just come down to the carb:insulin ratio or body weight:insulin ratio. Khaleb spiked to 14 the other day after stressing out getting his blood tests for thyroid function, coeliac screening and hba1c. He dropped to 3.7 yesterday after lunch - he'd had a big morning at playgroup that I thought I had accommodated for. I wish I was psychic sometimes.

This doesn't really help your problem but diabetes is what it is. Did the morning Levemir change also?

I'm sure you are doing great!
 
Hi Suzi

Oh lucky you living in Malta I am jealous :D I have 2 boys as well Liam is 8 and stroppy already lol Ewans novo wears off in 4hrs im not sure about the levimer but his consultant did mention it may need reduced but not now :? waiting on book coming so that should help me, altho as you say its going to be a constant juggling act

thanks x
 
Hi Jen&Khaleb

Your right I prob will check his bs tonight ive had 2 nights now sleepless worrying he is ok. I find it so hard to work out correct doses as because like you say some days they are active and others not, for instance how do I know if he will stand chatting to pals at lunch or play football, I feel as tho I,m muddling through but just :!: He stays with his Dad at the wknds so Its hard when he,s not here all the time. Ewans bs also goes up when he gets stressed ... going to the dentist he goes sky high. He only takes levimer at supper.

Thanks and wishing I was psychic too ... I,d def lose a few headaches

x
 
I have no idea how the medical professionals work out dosage but i just wanted to get some idea of how you think Ewan's dose came about. I only ask because Khaleb would have approx. 75-80% of his insulin as long acting (Levemir - 11 units split 7 morn & 4 night) and approx 20-25% short acting (Novorapid - usually 1 unit per 3 X day). This gives him a total of 14 units and he is about 15 kg. I suppose that is why I asked about his morning Levemir, even though he doesn't have any. With his Levemir being a small amount do you have to have a really small carb:insulin ratio also? Khaleb would be on about 1unit:20gr carb. Would you think you are still having a honeymoon or past that stage?

It is all very interesting the different combinations that work for different people. I should also mention that on the above regime Khaleb also has morning tea, afternoon tea and supper without Novorapid and they are all about 10-15gr carb. Khaleb stays under 10mml all day 90% of the time and the nights can be a little hit and miss.

I think we all muddle along to some extent. I am trying to teach daycare people how to look after Khaleb at the moment. It is very frustrating because they wont even get the book I gave them and read.
 
Hi Ewan is definetly still in the honeymoon period, he,s been on basal/bolus about 7 weeks now, I dont know how to work out the carb/insulin ratio his DN said they want to get his numbers level on daily basis then they will work it out .. or show me, his dietician has also said she will help. I have noticed tho that if he has dinner of 40 carbs he needs 4 insulin, if its 60 carbs its 6 insulin, but thats the only meal that makes sense as breakfast he def needs more and less at lunch :? He has 170g carbs a day, he,s the same as Khaleb he has morning & afternoon snack and supper with no novo.

x
 
That explains the low amount of long acting. At least if Ewan's pancreas kicks in you only have a couple of hours of sorting out his levels using mainly Novorapid rather than a whole day. Under the circumstances I would think you'd have a pretty hard time getting levels in small margins. You must be doing an incredibly great job with all the variables. At least I don't have to worry about Khaleb producing any of his own insulin as well as all the other things that happen in kids lives.

I'm going to be on guard today. Khaleb woke with bsl 4.9 :D at 5am :evil: (the twilight zone) and we are off to the pool this morning for a swim. He didn't eat all his breakfast so I hope he's keen for a decent morning tea. I've also shaved 1/2 unit off his Levemir to try and avoid a hypo later today and tonight.

At least it is a nice sunny, warm day! I can understand why Suzi and family are heading to Malta.

Hope you have a good day!!
 
Sunny warm day wow I forget what thats like we have just got rid of 3 weeks of snow and ice, now wind and rain for tomoro :( enjoy the swim, and hopefully no hypos, we have swim planned for next wknd, another experiment havent been since basal/bolus Ewan drops very quickly with exercise ... good excuse for KFC before swimming :D

Enjoy your day x
 
Swim was great. I find anything to do with water sends Khaleb low. I don't even bath him before dinner anymore. I also find that the low can happen many hours after the exercise including the night and the next day. I've got a good system of lowering the Levemir before and after to counter-act this now. Of course, this doesn't always work. Khaleb doesn't eat solid food properly yet so no KFC for him. Do you have to watch the fat content of that stuff affecting bsl's? A lot on here talk about splitting their short acting when eating fatty food and pasta. My 15 yr old liked KFC until the popcorn chicken gave him a really bad dose of food poisoning. Oops, you didn't want to know that!
 
Gosh i feel like a bad parent, can't remember the last time i took Andrew swimming!! He got a Wii for Christmas and it was the greatest thing for bringing his sugars down and letting him eat his fill out of the Roses tin, now when his high i encourage him to challenge me at the Wii ten pin bowling.
Andrews has 23units of Levemir at bedtime and 4units in the morning (it works for him and has totally comfused his consultant!) ratio is 1unit to 10g carbs at breakfast, lunch and dinner, which amounts to about 21 units a day, totaling about 45 units altogether, and as his 47kg thats about right, odd correction dose threw in some days when he's really hungry, and he is starting puberty, so its not always text book, and because he is also coeliac, i find his gluten free stuff works slightly differently in releasing the carbs. Don't honestly think i've got the correct ratio during meal times at present, it seems to change constantly, but am sticking to the 1:10 for now.
Our snow and ice has finally disappeared after 27 days, and last night we had gale force winds and torrential rain, roll on springtime. Northern Ireland gets far too much rain all year round and hardly any dry, extrememly warm Summer days, only 1 of the reasons to emmigrate to Malta.
Suzi x
 
The wii is great Suzi altho it doesnt seem to bring Ewans bs down much. We only go to KFC when swimming and thats not been for ages, he was on mixtard the last time we went and with the meal then swimming his bs was at 7 afterwards, maybe be diff now on basal/bolus that,ll be our next experiment lol Ewan isnt keen on pasta altho he has it occasionally at his Dads, I have noticed it causes him to spike .. same as pizza he loves that, havent quite worked out what I,m doing when he has that so its not on the menu much just now

xx
 
Hi Shazza,
When Andrew has his GF pizza, the carbs are roughly the same ratio, but because of the spike it causes we give half the carb ratio dose before meal and the other half an hour after he's finished, works for us, but as you know its all trial and error. As for pasta which he loves, its a mystery!! because there is so much starch in the gluten free stuff, i find myself changing the boiling water at least 3 times, by which time i have absolutely no idea of the carb content,and i guestimate !!
Suzi x
 
Hey Suzi, we all like the rice noodles. The ones I get are really fine and you only have to sit them in boiling water for a few minutes and they're done. Ever tried them? Have never looked at the carb content but will next time. Khaleb went for his blood test for coeliac screening and thyroid function. I've got my fingers crossed I don't have to make major diet changes.
 
Ewan also had another blood test to check his thyroid, the consultant thinks he has an underactive thyroid, we,re waiting on the results coming back, im expecting him to start taking thyroxine but they didnt mention changes to diet :( I hope not we,re just about managing just now, he,s so skinny i,m trying to get him to put weight on. Hope Khalebs tests come back clear :D

Both my boys love noodles the ones we have are a bit high tho
 
The diet changes would come if he tested positive to coeliac disease. He wouldn't be able to eat gluten (mainly wheat, rye, barley and oats). Suzi would know all the other things that contain gluten. Khaleb has had thyroid tests before and been okay but who knows what else could go wrong. Nothing would surprise me anymore. I'll let you know on Thursday if the results are back when we go to clinic.
 
Hi Shazza and Jen,
I hope both the tests come back negative for you both, fingers crossed. Andrews not keen on rice noodles for some reason, but loves spaghetti bolognaise and lasagne.
Your right Jen, coeliacs can't eat wheat, rye , barley and oats. We've added oats back into Andrews diet as some can tolerate them, he doesn't have any nasty effects after eating them, but we'll now for sure in June when i get his next Coeliac count. In his first year he got down from 350+ to 45 and last years was 11, very few get a zero, but where not that far off.
He was very skinny before diagnosis, had symptoms almost like ibs, and strong smelly no 2s, and lots of flatulance and diahhoroea. Now he justs farts alot lol, its def a boy thing!!!
Suzi x
 
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