Spanielmum92
Member
- Messages
- 7
- Type of diabetes
- Type 1
- Treatment type
- Pump
Where do I begin, I really couldn’t think which category to post in as it’s more of a rant than to post anything useful, but I’m feeling quite useless with everything.
T1 for 15 years, lots of inbetween life stuff, single mum kids disabilities etc etc diabetes took a back burner.
The only time in my life I’ve ever tried really hard to get to grips is when I’ve been pregnant.
In 2017 I went on a pump (fought for this) by 2024 July I started tslim closed loop, first month okay, more lows but less highs, then I had really long lasting lows and it scared me.
Obviously tweaked basals, ISF etc, then running high… then low again, any walking plummets me despite suspending 2 hours before, shoving down sugar anytime I move, 3 replacement pumps due to occlusions which tandem couldn’t fix over the phone. Constant bent cannulas near dka, tried different cannula including steel which wouldn’t stay put.
Final bent cannula Saturday night and bam, enough is enough back to pens.
Basically guessed 10u tresiba as this is what I was on before pump land, anyway 12u seems to be ok, keeping steady providing I don’t eat of course. I’m finding I’m needing around 4x the novorapid for meals, I’m not sure I can deal with it. I’m used to 1u per 12-15g, now I’m finding a piece of toast needs 4u or so. I know about low carb and I’m considering this now, I’ve done it before and I know it works
I just wonder is this my last chance of controlling this, I’m fed up of being Ill.
I have PKD aswell which wrecks my kidneys so it’s a miracle I’m still functioning - just.
T1 for 15 years, lots of inbetween life stuff, single mum kids disabilities etc etc diabetes took a back burner.
The only time in my life I’ve ever tried really hard to get to grips is when I’ve been pregnant.
In 2017 I went on a pump (fought for this) by 2024 July I started tslim closed loop, first month okay, more lows but less highs, then I had really long lasting lows and it scared me.
Obviously tweaked basals, ISF etc, then running high… then low again, any walking plummets me despite suspending 2 hours before, shoving down sugar anytime I move, 3 replacement pumps due to occlusions which tandem couldn’t fix over the phone. Constant bent cannulas near dka, tried different cannula including steel which wouldn’t stay put.
Final bent cannula Saturday night and bam, enough is enough back to pens.
Basically guessed 10u tresiba as this is what I was on before pump land, anyway 12u seems to be ok, keeping steady providing I don’t eat of course. I’m finding I’m needing around 4x the novorapid for meals, I’m not sure I can deal with it. I’m used to 1u per 12-15g, now I’m finding a piece of toast needs 4u or so. I know about low carb and I’m considering this now, I’ve done it before and I know it works
I just wonder is this my last chance of controlling this, I’m fed up of being Ill.
I have PKD aswell which wrecks my kidneys so it’s a miracle I’m still functioning - just.
