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Son is T1

Suzyzirfas

Newbie
Messages
2
Type of diabetes
Type 1
Hello, I'm on here not for myself but for my son who has just been diagnosed with T1 last week. Me and dad are finding it very difficult at the moment as our son is 2 and clearly doesnt understand what is happening so will be looking r advice and help if possible
 
Hello, I'm on here not for myself but for my son who has just been diagnosed with T1 last week. Me and dad are finding it very difficult at the moment as our son is 2 and clearly doesnt understand what is happening so will be looking r advice and help if possible
Hello and welcome to the forum.

@daisy1 can provide you with some useful information to get you started:)

Please don't hesitate to ask questions, we have many knowledgeable and experienced T1's here who will be more than happy to help:)

You can also use the search bar in the top right hand corner to find prior threads that may be of use.
 
Sorry to hear this......my younger brother was diagnosed when he was 2 back in 1985.....

I was only a child so I didn't really know how my parents coped but with today's technology and support from forums like this you will be fine.....
 
hi there @Suzyzirfas
welcome to the forum !!

I have no experience personally ( I was the diagnosed child but was quite a bit older - 14 )

I am tagging @Skye's_mummy - she has a young child recently diagnosed with T1
hopefully she will be along to offer some support.

as you might get a better response in the -- Parents subforum -- would you like me to move your thread there ??
 
Hello, I'm on here not for myself but for my son who has just been diagnosed with T1 last week. Me and dad are finding it very difficult at the moment as our son is 2 and clearly doesnt understand what is happening so will be looking r advice and help if possible

Hi lovely, sorry I'm just replying we're currently moving house . Where do you live? If it's local to Derby, I would be happy to meet up, so you're son can see that type 1 is normal.
Is there something in particular you're looking for advice with?
 
Hello @Suzyzirfas Welcome to the forum :)

I personally think reading 'Think like a pancreas' is a great informative read to get your knowledge, it's written by a T1 so it offers very practical advice. however do lean on your diabetic team as much as you need to in supporting you, there is alot to learn and it can feel over whelming. We are also here to help and support you so please shout if we can help :)
 
Hello and a thousand welcomes
I was diagnosed aged 6 and am now 49 my sister was diagnosed aged 3 and is now 53.
I wouldn't know where to start with advice so i won't and leave it to you to ask.
There is loads of experience on here so don't think you are alone.

Kind regards

Tony
 
@Suzyzirfas

Hello Suzy and welcome to the Forum :) Here is the Basic Information we give to new members and I hope this will help you to look after your son. Ask questions when you want and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. They're all free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
Hi Suzy,
I'm sorry to hear about your little boy. My daughter was dx age 4 and is 6 now. It's tough to start with and continues to be a pain in the bum, but it definitely gets easier. My daughter takes it all in her stride and is a happy, healthy, normal 6 year old. She loves swimming, gymnastics, horse riding and fighting her siblings! It certainly hasn't held her back:)

The thing that has helped us most to manage t1 is getting dexcom G4. It's a continuous glucose monitor that enables you to see what the wearers blood sugars are the whole time. It's amazing, life changing and saving, and means you can relax at night in the knowledge that it will alarm if your child's blood sugars go high or low. We self funded for a year but have recently got NHS funding.

I would spend the foreseeable future researching and learning as much as you can about diabetes, treatments and technology. Diabetes is a self-managed condition and although some people are lucky enough to have fantastic teams to support them, a short clinic once every 3 months still leaves you as the parent needing to be the expert in your child's care. Which you will become extremely quickly.

Best wishes to you.x
 
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