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Starting Again

Jonathan CB

Jonathan CB

Well-Known Member
Messages
46
Type of diabetes
Type 1
Treatment type
Insulin
Been a Diabetic for nearly 4 years and for the last year it's been going downhill, is there any inspiration out there to get me going again?
 
I was just like you I wanted inspiration so I did everything the doctors told me to do when I was first diagnosed and it was stable, I then had to go to adult clinics and I got lost in the nhs system. I turned up to all of my appointments but my doctor he didn't seem interested. Last year I had a DKA my insulin pump wasn't working correctly and I had no insulin for 22 hours. After that I had terrible pains in my legs at my next appointment with him I told him exactly how I was feeling and he didn't listen. It took from June to December for someone to finally listen to me. I have now been diagnosed with peripheral neuropathy but because it took so long I developed autonomic neuropathy of the stomach and are now having tests to find out how bad it is. I am in constant pain and can't work because of the job I did I would be putting others at risks. Honestly there's some days now I really want to give up but I can't because that means am letting it win and would only make myself worse.

I guess what am trying to say is don't let it win keep going and talk to someone you trust to give you your inspiration - the push you need to help you over come this hurdle I've got a long way to go now but my goal is to not be in pain everyday and to get back to work. I hope you find your inspiration.
 
You're still young and the good thing about it is that you haven't had diabetes for too long yet. You were diagnosed just about as young as I was though, which is what we have in common. But this is the point where you really don't want to let your diabetes control go downhill and then in the next 5-10 years or so, be seated somewhere regretting how you never took better care of it. Because of the fact that I've gotten many complications already, I've been doing just that. As long as you have the desire to live, the finer things in life you really enjoy, people in your life you love and who love you, let that be your iron will to fight back against diabetes. Don't let it win, bro.
 
I've been type 1 for over 52 years and I've had problems in my early years,but,like you I came to my senses and turned things around,I now have only a couple of minor complications.Go for it and good luck.
 
Jonathan CB said:
Been a Diabetic for nearly 4 years and for the last year it's been going downhill, is there any inspiration out there to get me going again?
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Your future should be your inspiration Jonathan, you don't want to be sitting in 10 - 20 years time in a poor state of health wishing you had kept better control of your diabetes.
 
TPhoenix said:
You're still young and the good thing about it is that you haven't had diabetes for too long yet. You were diagnosed just about as young as I was though, which is what we have in common. But this is the point where you really don't want to let your diabetes control go downhill and then in the next 5-10 years or so, be seated somewhere regretting how you never took better care of it. Because of the fact that I've gotten many complications already, I've been doing just that. As long as you have the desire to live, the finer things in life you really enjoy, people in your life you love and who love you, let that be your iron will to fight back against diabetes. Don't let it win, bro.
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Well said !

It's hard to visualise the future and what the potential impact of what damage could be done. However it's easy with type 1 to become a victim and to succumb to this and not change or not look after your self properly, just dig deep into yourself and give yourself a big kick, no one else can do this for you, so if you're not winning shout and keep shouting at your DSN/consultant/doctor until your heard and do not give in. Good luck ;)
 
47 years, traveled the world, still healthy with no major effects. Get lots of exercise and go for moderate control when you have burn out. Step up your control when you can. Have hobbies and friends, and think of it as a condition you can live with rather than an illness. Don't think about "what might go wrong". Think about eating well, exercising and taking meds to make you feel good NOW. Then it becomes a positive incentive not a threat.
 
Jonathan CB said:
Been a Diabetic for nearly 4 years and for the last year it's been going downhill, is there any inspiration out there to get me going again?
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I think you've landed in the right place for inspiration.
Stick around ask questions help yourself help others.
I would have hated to have this when I was young ... a time I really was fancy free and the world was my oyster.
I hate seeing young people chained down by **** like this.
You won't get cured hear and you won't break the chains but I'm thinking you may be able to swap them for some very flexible elastic.
Lots of youngsters your age have found some inspiration and gotten more positive.
I pray you can too.
 
I love the idea of that flexible elastic.

Jonathan - Ruth is right, incentives are much better than threats. When you've got yourself a bit back on track, make it a positive aim.

Go go go - you really do have a whole life ahead of you, and once you've got some decent habits set up you needn't even focus on the D. Go out and be a person you would like to be.

All best, Lucy
 
Thank you so much everyone with your helpful replies i'm finally serious about changing it around and i started basically today i'm not expecting results straight away and if it goes bad i won't give up because nothing has to be perfect in life does it, oh and it has been a good start my blood hasn't been over 10 the usual mark for 2 days now, but like i said if it goes wrong it's not the end. All the best everyone
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Jonathan CB said:
Thank you so much everyone with your helpful replies i'm finally serious about changing it around and i started basically today i'm not expecting results straight away and if it goes bad i won't give up because nothing has to be perfect in life does it, oh and it has been a good start my blood hasn't been over 10 the usual mark for 2 days now, but like i said if it goes wrong it's not the end. All the best everyone
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Good man.
Diabetes won't stop you walking running jumping out of aircraft bungee jumping becoming a bank manager or a Hells Angel.
Nowt you can't do.
 
Hi Jonathan,

3 decades plus I have been type 1. Still got my limbs, toes and fingers, kidneys and heart still ticking along, eyesight not bad, and generally still alive and kicking. I do have some complications but heh !

I have worked full time all my life, enjoy meals out and socialising with friends and generally do everything that most people do.

This illness only becomes a big deal if you make a big deal out of it. Respect it and accept it and it will accept and respect you.

Keep it simple, no sugar, more exercise and right medication and dosage. Learn from your own knowledge, be your own expert but listen to good medical advice.

It's part of your life now but it's not the only part.

Get back on track and live. It's an illness not a death sentence. Good luck.

KevFitz
 
Not as impressive as some of the old guard, but I've been type 1 for 10 years and no permanent complications yet. I have had a few wobbles and DKA's but no Diabetes related ER visits in 4 years now.

I find it is good to talk about these things, which is why this forum exists, but also talk to your non diabetic friends about it otherwise you may feel isolated/depressed, I am sure you have to hear more than enough about their troubles.
 
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