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Starting to really struggle......

frazerl

Member
Messages
19
Type of diabetes
Type 2
I was diagnosed 6 years ago and have progressed from metformin to victoza, levimir and novorapid as well as metformin. So 6 injections per day and all the testing that goes with that. I have tried the freestyle libre system which is great but you still need to test in the conventional manner for DVLA purposes. To top it all I got today saying that I have background retinopathy. Just feeling like there is no light at the end of the tunnel
 
I'm really sorry to hear this. It must come as much a blow.

Have they said if the retinopathy needs treatment?
We do get people posting who say that their retinopathy responds well to treatment, or halts the deterioration, so it may not be anywhere near as bad as you may be feeling it is now.

Have a virtual hug, though, because this kind of thing really pulls the rug from under your feet, doesn't it?

I believe both @Jaylee and @ noblehead have received treatment and may be able to comment. Hope you don't mind me tagging you, guys?
 
Hi,

I can only comment on the treatment I receive.. My scans show (as they always have.) no retinopathy..
However there has been a slight macular degeneration in the form of fluid (slight swelling in this area.) on the right eye...

The treatment? I have undergone injections literally in the eyeball 6 of which once a month.. The 7th month scan was clear.. But the 8th? they took me through for another jab.. So far, the follow up scans prove clear every other month. To which I've had 10 jabs so far... I'm hoping they will become less frequent.. My googling throws up "macular degeneration" regarding the type of treatment I receive. Not every one I sit in the waiting room with is diabetic.. I may have got this regardless... My eyesight is that of a "fighter pilot" on a basics eye chart test, one month. (With glasses.) then degenerates a little the following....

Much respect & indeed love to @Brunneria for tagging me in. But lol, in some ways I've been lucky with the retinopathy.. I'm just dealing with a different issue.. ;):banghead: Call it diabetes related if you wish? I am diabetic.
Having said that. The eye professionals & support crew I can't fault.. After the first time? It gets easy!

As far as I know "retinopathy" requires "lazer treatment". Which is different to having a drug injected into the eyeball..

Though I believe @noblehead has had retinopathy treatment..
 
Sorry @Jaylee - obviously don't know enough about the difference between D eye issues!
Sorry for the derailment @frazerl :)

Not a poblem.. I just didn't think I could help @frazerl ? So sorry for my sort of off thread topic thing..

Having said all that earlier. I am in a band with a T1 bass player.. He has had lazer for retinopathy & it has been a success..

My advice would be focus on management of sugar levels.. This helps with any healing.. ;)
 
I was diagnosed 6 years ago and have progressed from metformin to victoza, levimir and novorapid as well as metformin. So 6 injections per day and all the testing that goes with that. I have tried the freestyle libre system which is great but you still need to test in the conventional manner for DVLA purposes. To top it all I got today saying that I have background retinopathy. Just feeling like there is no light at the end of the tunnel

Hi @frazerl

Your quite correct that you do still have to bg test for DVLA purposes. Regards to your retinopathy diagnosis, try not to worry as they'll monitor your eyes from here-on and will pick-up on any changes should it progress to the next stage, but much can be done to help prevent the retinopathy from progressing by keeping your bg, bp and cholesterol levels under control, it mentions all this and much more in the following link:

http://www.diabeticretinopathy.org.uk/back_diabetic_retinopathy.html

Best wishes and good luck.
 
Hi there, I do not know if you have received @daisy1 's info yet but I have tagged her to send it. If you have not read it it is good information for any diabetic to have. Good luck.
 
@frazerl

Hello and welcome to the forum :) Here is the information we give to new members and I hope you will find it useful. Ask as many questions as you like and someone will be able to help.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 210,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Optician told me yesterday that if I keep blood sugar levels low, my back ground retinopathy should not worsen and may even improve so all is not lost.
 
I was referred to hospital with retinopathy with a view to laser surgery. However in the interim I went LCHF and by the time I got my appointment some 3 months later it had cleared up. HBA1c was 5.3% at that point. The doc was v impressed.
 
I was diagnosed 6 years ago and have progressed from metformin to victoza, levimir and novorapid as well as metformin. So 6 injections per day and all the testing that goes with that. I have tried the freestyle libre system which is great but you still need to test in the conventional manner for DVLA purposes. To top it all I got today saying that I have background retinopathy. Just feeling like there is no light at the end of the tunnel

have you tried the low carb high fat diet... if not then give it a chance .... to try not get even worse... of cause not if you get too low then from your medications
 
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