Statin Induced Peripheral Neuropathy

Bluetit1802

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The problem is, NICE says they have to offer them. (Offer being the operative word), so they do, probably because they could be sued if they didn't and their patients all had heart attacks. When it goes wrong is when they do more than offer. Some bully, and some patients that don't know any better just accept them without any further thought.
 
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JohnEGreen

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Dr. Stephanie Seneff says there are no circumstances that would cause her to take a statin in her interview with Dr. Mercola

I after watching said interview tended to agree with her.

 
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Mike d

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The overwhelming preponderance of evidence is they are dangerous ... PERIOD

How many times does this need to be said?
 

kitedoc

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Hi @Sophia78 and other respondents.
I would like to place this concern and discussion about medications, and statins in particular, into in some perspective and would ask moderators and others to be critical and discerning about of what I say so that the matter can be kept as objective as and accurate as possible. Any reference to people who have posted about this question is for reference only, not as any criticsm.
1) in the history of diabetes, peripheral neuropathy was a well described and known complication in diabetics before statins were ever first prescribed
2) The study mentioned by @tim2000s, compared 2 groups of people but only 39 people in each group and it was not clear to me whether the people in each group had had thorough testing to ensure there were no other health conditions which might explain why nerve problems might show up. For instances, why were the group on statins prescribed them ? All for the same reason? and were any of them diabetic? perhaps there is more information elsewhere about this study. but on face value the comparison has too many variables and too few people in it to make definitive conclusions.
3) The study mentioned by @sophie78, had difficulty being able to piece all the evidence together. but the problem then is how long would it take to do a study to answer the question more conclusively ? 5 years ? ,longer.
4) So, in regard two both reports, I personally would NOT be rushing out and take statins, but that I need more evidence to be forthcoming because statins from what I have read have been found to be useful for certain people ( but not maybe in the numbers and reasons for use that big Pharma was promoting).
5) before a medication such as a statin is released on the market it has had to undergo certain trials to make sure about its side-effects vs its beneficial effects. And no doubt many of us I have read about how some trials have been 'fudged' to minimise adverse results, or performed on only men or women, and not on a variety of persons from different parts of the world. So we have become cynical of Big Pharma and its reassurances about the safety of their drugs.
6) but there are medicines which have also undergone extensive trials and use in the world with studies done independent of the manufacturer. They still have side-effects but as drugs for certain use are more acceptable than others. So there may have been a time when administration of an antibiotic has made a big difference to someone's health. I do not doubt that some diabetics are prescribed a medication/drug which has been shown to reduce the risk of. or at least prolong the time before, kidney complications might show up.
7) sometimes despite all the testing and research a serious side-effect of a drug may take years to show up. This is not about trying to make apologies about drugs and their testing, and there will be occasions where big Pharma pushes so hard that a regulation authority releases a drug too soon.
8) So we have medications/drugs without which some of us cannot live, others that help us stay well or minimise the effect of some diabetes-related conditions, and devices that improve blood sugar control and monitoring etc.
9)
We also have HCPs who are trained to follow certain protocols for treatment which may be applied without sufficient discernment for the person involved, yet thoughtfully prescribed for just the right reason and purpose to another individual.
10) What we do not want is to treated by health authorities, health care practitioners, Big Pharma and device companies as mushrooms (kept in the dark and fed on BS) !!
 

Krystyna23040

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I was advised by my consultant in 2012 that statins were absolutely vital if I wanted to avoid heart attacks and strokes. Basically - if I didn't take them I would considerably shorten my life expectancy which really scared me as I had just been diagnosed with T2D.

26 days later I was in so much pain I could hardly crawl up the stairs. My medical notes state that I have a sensitivity to simvastatin causing myalgia. As soon as I stopped the statin the severe pain started to lessen but I was left with fairly severe muscle weakness. The consultant said this would more than likely take three years to recover from but as soon as I had recovered fully I would be put on a different statin. It has actually taken 5 years to recover from.

When I did a yellow card online on the government website it actually stated that people on the trials were pre-screened and anyone suffering a severe reaction were excluded from the proper trial. I did wonder how this could be an acceptable practice.

Of course I will definitely not take statins ever again and when I mentioned to another Consultant that I was worried that not taking statins would shorten my life - he said that they wouldn't extend my life by even one day.
 
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steve3756

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ooked into them
I was advised by my consultant in 2012 that statins were absolutely vital if I wanted to avoid heart attacks and strokes. Basically - if I didn't take them I would considerably shorten my life expectancy which really scared me as I had just been diagnosed with T2D.

26 days later I was in so much pain I could hardly crawl up the stairs. My medical notes state that I have a sensitivity to simvastatin causing myalgia. As soon as I stopped the statin the severe pain started to lessen but I was left with fairly severe muscle weakness. The consultant said this would more than likely take three years to recover from but as soon as I had recovered fully I would be put on a different statin. It has actually taken 5 years to recover from.

When I did a yellow card online on the government website it actually stated that people on the trials were pre-screened and anyone suffering a severe reaction were excluded from the proper trial. I did wonder how this could be an acceptable practice.

Of course, I will definitely not take statins ever again and when I mentioned to another Consultant that I was worried that not taking statins would shorten my life - he said that they wouldn't extend my life by even one day.

Like yourself I was told I needed to take statins when I was DX 'd probably about 12 years ago ... I took simvastatin for a few years and put down any problems to 'getting older'. When someone inadvertently mentioned that they had similar symptoms which he put down to statins. When i looked into them everything then made sense all the pains and weakness and other symptoms made sense. After stopping the statins the pain etc diminished over the next 6 months and my cholesterol was stable so I thought problem solved, untill I had an eye problem so the doctor then put me back on a higher dose saying I was in danger of more episodes, strokes, heart attacks etc . within 2 weeks I was virtually crippled again . I tried every type of statin over the following months but all had effects so I refused to take them. I have not taken them now for probably 5 years but always had some aches and pains which have now been put down to poly myalgia. I wonder if there was a connection...
 

Krystyna23040

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Like yourself I was told I needed to take statins when I was DX 'd probably about 12 years ago ... I took simvastatin for a few years and put down any problems to 'getting older'. When someone inadvertently mentioned that they had similar symptoms which he put down to statins. When i looked into them everything then made sense all the pains and weakness and other symptoms made sense. After stopping the statins the pain etc diminished over the next 6 months and my cholesterol was stable so I thought problem solved, untill I had an eye problem so the doctor then put me back on a higher dose saying I was in danger of more episodes, strokes, heart attacks etc . within 2 weeks I was virtually crippled again . I tried every type of statin over the following months but all had effects so I refused to take them. I have not taken them now for probably 5 years but always had some aches and pains which have now been put down to poly myalgia. I wonder if there was a connection...
You could well be right. I am pretty sure that I have read of some studies that show there is a possible link.

It looks as though your doctor used the same scare tactics to get you to take statins as my first consultant did.