How are you doing with the lymphoma now? To be honest, as a long term T1 who has been able to take advantage of the massive improvements in T1 tech since first diagnosed I am not expecting my T1 to kill me any time soon (touch wood) so in your position I'd be way more concerned about the lymphoma. I'm a little cynical about the motives of overseas stem cell experimenters. (Let's face it, there is no shortage of T1s seeking a cure so not sure why they would give you a place other than monetary gain, but I freely admit that I may be being overly cynical).
If I weren't happy with my current treatment (mdi plus self funded dexcom) I would probably push for a pump (maybe a closed loop system???) as my next attempt to improve my diabetic control. I believe that this is becoming available on the NHS? And please tell me that you have access to a libre? Even if your hospital team have discharged you to your GP care all T1s are supposed to be getting cgms or flash sensors now.
Like the others, I will be fascinated to hear what transpires if you go for stem cell therapy but I have severe doubts as to whether it is a productive use of your time or money.
Good luck, whatever you decide to do.
Hi thankyou for replying , I do have a libre sensor, but like some have to check every hour, I did look into a pump, but as I manage to control the uncontrollable hyper and hypos daily with holistic type treatments , it's an hour by hour battle, I not keen on taken insulin . Also some friends /colleagues over the years past away , thier relatives common compliant was that gps and consultants didn't do things in time or botched up things.
My lymphoma is not treatable , after bone marrow biopsy, results showed my immune is not so bad and the cancer is not yet in my blood , therfore discharged from the heamotolgy.
I looked at my medical records , some missing, but having looked at xray scans I have 10+ Lymph nodes in the pancreas. I also discovered that I had NALD , which nobody told Me started at the same time I was told type2 after a small car accident(not my fault) , I thought nothing of it at the time and went to work. Despite a small bump , the car was written off and given full value.
I asked to be refered to a specialist hospital that give treatment to alcoholic liver damage. I am still 2yrs waiting to hear from them , it appears NHS don't have any treatment for NALD .
Having paid over 2k for injections and a liver reset , my recent scan for liver shows its nearly in the green.
So I feel at any time I could go, and just today somebody reliable posted me a contact for a specialist who has apparently been doing stem cell again abroad and private , but will resherch into to find more info.
