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structuring insulin pump forum -suggestions

Discussion in 'Insulin Pump Forum' started by caius2x8, May 5, 2020.

  1. caius2x8

    caius2x8 Type 1 · Well-Known Member

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    Hello All

    I notice when looking at the posts in the pump forum well raised questions and answers arranged as a tangle of spaghetti, one subject next to different one.
    I wonder if it'd be easier if there was a structure.
    As a starter for 10, inputs welcome, it could be something like:

    Key
    + and -s indicative advantages and disadvantages

    Pumpers

    New Users
    +Potential NUs:

    + and -s of pumps alone over MDI

    Managing sugars with a pump - similarities and differences from MDI

    Pump Choices
    Considerations in choosing a Pump** (see related **)

    + and -s of pumps with cgm over pumps alone

    Cgm access rationing
    A review of user's justifications in trying to gain a cgm, successful and unsuccessful

    Open loop and closed
    What does it mean

    Open loop systems
    Commercial
    - system choices
    + and - s**

    DiY
    - system choices
    + and -s**

    Closed loop systems
    - commercial
    - system choices
    - + and -s for different systems**

    -diy
    - reason for diying
    - diy system choices
    - diy how to for each system
    - users experience and rating out 10 for system
    Accessing parts, setup costs, running costs, understanding use and optimal choice of different software and hardware options, readouts, alerts, durability, evolvability, rating overall

    I might try and draw this into a diagram to help aid intuition. I like diagrams :) or maybe a yes/ no decision tree.

    This area is really quite complex. I wonder if anyone with an interest in pumps would like to have a skype or whatsapp exchange of ideas if DIAB UK would implement the structure, otherwise we could set it up on face book or something. i have a feeling some of these things might be on FB already.
    However if there a big pointer to it on diab uk or the forum, i missed it. Isnt that the point.
     
    #1 caius2x8, May 5, 2020 at 8:52 AM
    Last edited: May 5, 2020
  2. Seacrow

    Seacrow LADA · Well-Known Member

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    I don't think it is needed. If there was a high enough volume of posts, then some categorization might be useful, but there isn't. If you are interested in a particular topic, then the search facility is there. My tablet is fairly slow to load, so I definitely don't want another layer or interstitial page to go through to get to the actual posts.

    ETA there are a few sites that go into diy looping in huge detail if you wander around the web with google
     
    • Agree Agree x 2
  3. MeiChanski

    MeiChanski Type 1 · Well-Known Member

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    Hello, I don’t think we have a large enough audience for that categorisation. I know with NHS, or some hospitals, they don’t approve of DIY looping and funding for CGM systems is quite narrow. There aren’t that many of us on the closed loop system :( Pump choices vary across England and Wales, so it depends on CCG. We can talk about different pumps but it may not mean that person is going to get their choice. Unless they fight for their choice with their diabetes team. I feel Facebook groups cover most of it, the Americans have a larger audience with both closed loop and CGM usage.
     
    • Agree Agree x 1
  4. Rokaab

    Rokaab Type 1 · Well-Known Member

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    That's happened to me - my hospital only offers one pump,. unless you have a very good reason why you need one with sensors, at which point you get a specific different one, but still no choice - ps. no I still haven't got mine (was supposed to get just before lockdown but due to some incompetance it didn't get there in time)
     
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