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Sugars dropping repeatedly-help

Discussion in 'Reactive Hypoglycemia' started by Discovery22, Feb 4, 2019.

  1. kitedoc

    kitedoc Type 1 · Well-Known Member

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    Yes, moreso if you come to grief. You have BP readings similar to what lead a friend of mine to suffer a stroke. He had headaches before the stroke happened. Nose bleeds are in that danger list also if you read up on high BP symptoms.
    Not sure what your BSLs are like during your hypos but falls and brain damage are possible.
    Speak with your endo and get admitted. Waiting for blood tests results does not solve the immediate danger.
    Those who say your BP just goes down again are not the ones who will suffer. Ask them how sending you home prevents you having a stroke - and if that happens who do you blame ??
    You mention your Dad so there is a family history of heart trouble also and high BPs and low BSLs will not help that.
    Please get admitted..
     
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  2. DCUKMod

    DCUKMod I reversed my Type 2 · Expert
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    @Discovery22 - Sounds like a dire time at the moment, but if I may, I'd like to make a suggestion?

    Between now and your appointment, it would be fab if you could find the time to gather some stuff together yourself? I'm thinking about a comprehensive list of your symptoms, and when you have, or had them, including things that "used to happen", but maybe have changed? Also, I'm sure they could (read should) be interesting in your family history.

    I know when I went for an second, up the chain referral Endo appointment, for something that was (and to an extent is still) a maystery, the level of questioning and detail that guy went into was mind blowing. Actually, I learned a lot in that session (totally unrelated to me, but particularly in relation to my late father's medical history), but I came home exhausted from it.

    I also took notes (note taking time can also be your thinking time), so that I had a decent record of what transpired, but also so that I could expand my own reading when I got home.

    I'm a bit of an information sponge when it comes to learning, so it's not the same for everyone, but I would suggest now is a time to invest in your own health and well-being, and sometimes that takes the form of good preparation.
     
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  3. Discovery22

    Discovery22 · Active Member

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    Thank you for your help x
     
  4. Discovery22

    Discovery22 · Active Member

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    Hi. I've already started taikng note of what happens and when and when this happens I feel like this...ive also had times where my ankles and feet have swollen too. Plus my husband will be coming with me so he can support how bad I've been. I spent the whole day in bed yesterday feeling unwell. At one point I was having a hypo and my BP was high and my pulse was over 100 too and I felt so rubbish and desperate. It really wears me out. Thank you for your help x
     
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  5. Atlantico

    Atlantico Reactive hypoglycemia · Well-Known Member

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    You are in my thoughts, it must be awful to feel so dreadful. I keep checking your thread hoping you have got some help. I find it so sad that you can't get help NOW. I have sent you a virtual hug xx
     
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  6. Discovery22

    Discovery22 · Active Member

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    Thank you. The support on here is amazing. I don’t think people realise how rubbish hypos make you feel. I had a good blood sugar day yesterday with absolutely no problems with it so today I’ve eaten exactly the same at the same time yet today I’m having hypos again
     
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  7. KarenTh

    KarenTh Reactive hypoglycemia · Active Member

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    I am really feeling for you as all these symptoms sound horrendous. It sounds as if your pancreas is extremely sensitive and overreacting to many food types. After being placed on a 4 month waiting list to see an endo and feeling so ill I opted to go privately and was seen in 3 days. Is that an option for you? I got an immediate diagnosis of RH as it was very obvious to the consultant and all was confirmed after a 5 hour GTT. So pleased your husband is going with you. I was so tired and confused at the first consultation. I took nothing in - brain fog and low BS. Cutting out all carbs and sugars has saved me but it has taken 4+ months to start to level out. Keep us posted and get help ASAP.
     
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  8. KarenTh

    KarenTh Reactive hypoglycemia · Active Member

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    PS porridge for breakfast is the only thing I can eat without my BS dropping. And eating every 2.5 to 3 hours. No bread, rice, pasta, potatoes, root veg, sugar, caffeine (very important) and no exertion as this lowers BS very quickly. Definitely no glucose tablets for me as this just sets up another spike and crash. Keep a supply of oatcakes with you at all times including your bedside table for during the night. My endo swears by oats!
     
  9. Discovery22

    Discovery22 · Active Member

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    Thank you for your help. I’ll have to ask my endorsement about the oats and I’m not supposed to eat them with my diverticular disease. No harm in asking though
     
  10. KarenTh

    KarenTh Reactive hypoglycemia · Active Member

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    I really hope you can. There are many variations and I find pin head/steel cut oats from a health food shop work the best.
     
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  11. Discovery22

    Discovery22 · Active Member

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    That was supposed to say endo not endorsement...predictive text ‍♀️
     
  12. kitedoc

    kitedoc Type 1 · Well-Known Member

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    Please - you can get help now - please go to hospital !!!
     
  13. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    Yes, a five hours test will give you a Hypoglycaemia diagnosis. But it is not a complete diagnostic in detail. In my experience a 72 hours fasting test, will only give the true diagnosis of which type of RH you may have.
    This test, will give your endocrinologist, the proof that it definitely is RH or another pancreatic condition. The tests are only ruling out other conditions until it cannot be anything else but RH!
    I don't mean to put down your endocrinologist, but not doing the fasting test could be because he is unaware of hypoglycaemia, RH and its many types!

    I'm really glad you have got really good control and not suffering as many hypos.
    My endocrinologist was really hoping I could go back to having oats as a healthy option for breakfast, unfortunately, oats are only another spike waiting to happen for me. But because before diagnosis oats was my saviour, you see my GP, then my endocrinologist (twice) noticed that I was having a hypo during appointments and convinced them something other than my misdiagnosed T2 was happening to me!
    Also my endocrinologist advised me to try a list of so called healthy foods that are not well known, but contains low amounts of carbs and contain high fibre and good nutrition, such as pumpernickle bread, but alas, after showing him the results from my food diary, he too had to admit, that for me, I'm carb intolerant.

    Best wishes
     
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  14. Discovery22

    Discovery22 · Active Member

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    Hi all, 2 days ago I had a severe hypo that happened in just a couple of minutes. Luckily I managed to get 3 fast acting glucose tablets down me before collapsing on the bed. My other half came home and although I could hear him I couldn’t move or talk. He suspected a hypo and checked my blood but I couldn’t tell him that I had used the hand he was testing on to eat my glucose tablets and would have residue. With a reading of 4.4 he thought I was ok and went downstairs. Once I could move I went down and told him and he asked what my levels were now (which were 3.1). I advised him to wash my finger before testing if it happens again.

    Well today my other half came with me for my appointment and you was right. The endocrinologist wants me back in hospital to do a whole load of tests....further ones for Pheochromocytoma and a 72hr fasting glucose test. He said this situation is far too dangerous and will try to find me a bed as soon as possible. He advised if I have another bad hypo in the meantime to go to A&E or call an ambulance

    I really don’t want to go back into hospital but he said it’s too dangerous to do the tests he wants as an outpatient

    Thank you all for your advise and support. It has stopped me feeling quite so lonely and it helps knowing that people understand how rubbish hypos make you feel
     
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  15. Brunneria

    Brunneria Other · Moderator
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    I am so glad you came back and updated us!
    And incredibly glad that your endo is taking this seriously and moving urgently.

    Please be careful, and ring the emergency services if you need to.
     
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  16. Atlantico

    Atlantico Reactive hypoglycemia · Well-Known Member

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    Very pleased to hear that you are now going to get some much needed help. Please keep us updated.
    Thinking of you. xx
     
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  17. Discovery22

    Discovery22 · Active Member

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    Update: I was admitted for the 72 hr test and it has confused the drs even more. Overall my sugars dropped to 2.7. During the test I discovered when laying on my left side me sugars dropped. When laying on my right side they went up and walking up and down stairs made them go from 2.7 to 3.8! Yet other times my sugars drop quickly and even slow walking makes it worse. So my consultant is wondering if this Pheochromocytoma/paraganglioma (a new suggestion) is causing even more problems than first thought. By the way, I had a hypo on the way home from the hospital

    He said he may re-admit me and repeat the test. I’m due to have a 24 tape as my heart rate spiking has got worse. The other day I was rushed to hospital with chest pain and my pulse was around 158 for nearly 2 hours while resting. They discovered this is also caused by postural tachycardia (by standing) and that I also have postural hypertension.
    While I was in there he took blood to test my adrenals and said it’ll take a while to get the results as it’s a rare test and is only processed in 2 places in the uk
     
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  18. Brunneria

    Brunneria Other · Moderator
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    Goodness, I hope they get to the bottom of it - and thank heavens your symptoms appeared on command, so they believed you.
    Glad they are investigating properly.
     
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  19. Discovery22

    Discovery22 · Active Member

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    Trouble is they couldn’t complete the test as they can only test C Peptide apparently if they go on or below 2.2. Forgot to mention he has now started me on metformin 500mg twice a day and if I’m honest it seems to have improved it. I’m still getting drops but they don’t seem to drop below 3.0. Not sure if it may need increasing?
     
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