Sweating like crazy, is pretty common when you drop too low. But people do experience different symptoms. If I drop too low I also get colored spots when I blink. I've had tingling on my tongue, anxiety. And some people get nausea when they drop too. Exercise will cause a drop easier. There are just all sorts of symptoms you can have and you learn to identify them.
Hot showers in the am makes my BG go up 60 points in a half hour with no eating. I now take all my showers in the afternoon or night. But I know people that their sugars drop instead. Things like that can vary person to person.
The problem is the honeymoon phase has some ups and downs, you produce some insulin some of time until you don't. My honeymoon phase probably lasted about 6-8 years?
But it sounds like you need a better handle on your insulin usage. Drops are from too much insulin and the highs are not enough at the right time. It does take constant calculating what you need when, because, exercise, stress, high fats all make you use insulin differently and then you throw in maybe sometimes you are still making some if you are still in any kind of honeymoon phase.
But frankly if you are just using a long acting insulin shot, it's just too easy to drop too much if you are taking enough to deal with your meals since when you're not eating and say exercising, it's still the same amount in your system? So that can cause a person to drop too much. And that means the same amount is in your system when you are sleeping, when you're not exercising or eating. What we call a basal is technically what you need because your liver produces glucose throughout the 24 hour day. The basal insulin, if you use long acting insulin is for about 24 hours. The bolus is what we take with a fast acting insulin (not that fast really) to deal with the food we eat and peaks at about 1 1/2 to 2 hours. Once you start a meal insulin (bolus) , you shouldn't need as much long acting insulin and will probably need to adjust that. Right now you are not taking that much insulin, but the long acting dose might be what is causing a problem when you are more active and you are dropping.
But as a type 1, LADA, you need insulin to deal with food, your body at some point will not be able to deal with even minimal carbs. Even protein will raise your BG level too. No matter how well you try to eat, it won't make insulin anymore, so even a bowl of broccoli will need insulin..............
The best thing? Get a CGM, a constant glucose monitor, Most of the insurance in the US covers it for a type 1. It's just some insurance companies require you have 3 months of logging 4 times a day numbers to show you've had some lows. Some don't. But it's very easy to do. Ask your endo about that. Instead of finger sticking all day, you can look at your phone or reader to know your BG 50 times a day if you want. It's just the best thing to know what your BG is doing.
You'll love the Dexcom it really is a great bit of kit. I had gone about 3 years of LADA without having to use insulin but that started to change a few months back I went from being 5.4% hA1bc to 8% in my 6 monthly checks in February. Now I just decided to bite the bullet and inject. I don't take long acting insulin at the moment only NovoRapid at meal times, so far it is working with me, Dexcom reports my hA1bc at 5.9% since I have been using it which is just a little over a month. I haven't finger tested at all in the last 3 weeks I have total trust in the readings from the G6.
My only symptoms when high is a bit of a headache and my face feels hot, however, I do get hypo signs, as I will sweat, I will shake and just feel bleh but after sorting out the low the symptoms go after 10 mins or so. I am still figuring out my insulin doses, during the morning and lunch I bolus fine but in the evening no matter what I do 80% of the time I will go low. Which I think is telling me I should not do the standard 1:10 ratio in the evening.
Anyway hope you are getting on with your G6 and your new life with Diabetes!
@NewlyLADA I live in the Pacific Northwest. Thank you for your descriptions of your diagnosis of LADA. It's reassuring to have an idea of what to expect if that ever happens to me. I do have one question. What part of the country do you live? Is your city large, average, or small? I'm so impressed that you were told at diagnosis (of what was initially thought to be T2DM) to start the low carb diet. That's so encouraging!
Welcome to the forum.
Oh wow! I live north of Seattle. We're practically neighbors AND we're in the same time zone! [giggle]
I facilitate a diabetes group here. Twice we've had someone new come into the group with a really, really high blood glucose level. After reading about your journey to get correctly diagnosed, I think I'm going to have a ketone meter on hand so I can check their ketone level on the spot. Your experience has been eye opening for me. You're tough to have pushed through those symptoms the way you did and equally smart for forcing them to recognize the seriousness of your situation. You're off to a great start in this new chapter in your life. Thank you.
So it was nausea, upset stomach, and weight loss despite having good glucose levels that led you to test your ketones. Thanks for clarifying that.
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