Sounds horrendous being linked up to that.
Not too horendous, though the site did get very itchy in last weeks heat here, I was glad to get my own pump back because it is lighter, the newer version of the cgms/pump are in fact lighter
.. the cost is off putting to most too
unfortunately true
... and then it doesn't seem to help much
I actually got it because I suspected I had hypos at night,( was waking up sweating but when I tested I rarely found them.... it could have been menopausal). It confirmed the hypos but showed that they were very brief and (presumably) my liver kicked in to rectify the situation.. I changed to a much lower ratio of insulin to carbs for my evening meal( 1:11 to 1:15) The Cgm demonstrated that this was fine, avoided the hypos and I didn't, as I feared, end up with higher fasting levels because of it.
It was also useful and instructive to see just how quickly my glucose levels drop after exercise, and that I sometimes spiked far higher after meals than I thought (very briefly and unlikely to be detected by fingersticks) .
I am surprised at how much I miss it and knowing almost exactly where my levels are and where they are going
....will you have to report back your results as part of the deal or does it store them automatically for someone to download? Talk about Big Brother and all that.
Not Big brotherish at all, you can see small graphs on a screen of what has happened over the last 3 and 24 hours. I downloaded at the hospital and discussed it with my doc and the specialist nurse. Being in France at a small friendly hospital this was unhurried and very informal. If you had the system yourself you would be able to download to your own computer.
If you could know with some certainty how you feel or some other parameter correlated with a BG reading then maybe it would be worth it. Sort of self-calibration.
I think most of us can feel the very highs and lows, what we want to do is avoid them. Obviously you have to be able to link variations with the event that caused them. You can then experiment to find ways of avoiding the variations. It's very gratifying when you see an almost flat line on the graph.
Personally as my control is fairly good I don't think I warrant the expense of using one permanently but for people with control problems it could be invaluable. The newest model (Veo)can be particularly reassuring to parents or to people who have lost hypo awareness. It is linked to the the pump and shuts off insulin if there is a hypo alarm and the person doesn't respond to it
I was really interested to hear that resarchers have devised a long term inplanted CGMS, it's been used in a pig so far for almost a year.If it costs less (fewer disposables) this could be a great breakthrough