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The future for type 1's.....

TROUBR

Well-Known Member
Messages
203
Type of diabetes
Type 1
Something mentioned on another thread reminded me about some questions I had that I am sure all you wise ones out there will know but that I can't seem to find in my books (finding them frustating anyway as they all talk about dealing with children there seems to be very little literature that gives guidance if you are diagnosed in full adulthood):

What is the life expectancy of a type 1 - I realise that this will change as time goes on but just wondered?
Do the future prospects alter according to at what age you are diagnosed (assuming good BG management is applied)?
Even if I am a good girl and control my BG ruthlessly can I still assume that I will have complications eventually regardless?

Sorry if this sounds morbid but I am a control freak and would like to know what to expect so I can prepare myself.

Thanks heaps
 
Hi Troubr

I too would be interested to hear an answer to this. Having been diagnosed at the end of Feb this year with type 1 I've been reading all the books I can lay my hands on. None of the ones I have found give an answer. Like you I am a control freak (testing constantly, keeping a food diary etc etc), so I'd like to have some idea of the likelihood of getting complications and an idea as to how many years have been "wiped out" (if any). I have looked on the internet and saw figures that were rather alarming. So alarming I'm not going to write it here but I'll wait to see what others come back with.

Sorry can't give you an answer but we can both wait to see what others say.

CLP
 
I think it's really difficult to get any accurate prediction on this, because you might get an average life expectancy for people dying now. but these peopel would have been diagnosed with diabetes long before modern insulins, home testing,and all the knowledge we have now. I know of a chap on another diabetes site who has had type 1 diabetes for 62years.

I would imagine the younger you are diagnosed the greater risk for complications earlier, just because of more years exposed to higher blood sugar levels.

The DCCT found that by having tight control really reduced the chance of complicaztions, but couldn't rule out getting them even if tight control was achieved.
I think that other factors must play a role, such as genetics, as there are people who have terrible control and seem to get away without developing complicaions.

For me, although i do think about complications and am marginally paranoid about my feet, whats more important is how I feel today. i need to do what I need to do to feel well today, if my blood sugars are all over the place then I don't feel well, highs and lows don't feel good. so keeping in range is right for me in the here and now, if it helps prevent future complications then great.
 
sofaraway said:
there are people who have terrible control and seem to get away without developing complicaions.
You're not the first person to notice this, sofaraway. I often wonder if this is an indicator of
just how important C-peptide is in the fight against diabetic complications. When you bear in mind that some type 1's will have some residual beta cell function(and the C-peptide protection that goes with it), while other type 1's have no insulin/C-peptide production whatsoever.

It may help explain why some well controlled type 1's end up with complications, and some
poorly controlled type 1's get off scot-free.

Be lucky,
timo.
 
Hey,

It is not the first time I have read about c-peptide and possible link in preventing complications. I know I'm probably being a little thick, but can you actually take c-peptide? In other words, is there a drug or even better, a natural alternative? If so, I would be really interested in taking it-as I am sure many other T1 would. I've only had T1 for 17 years and already have retinopathy! My control hasn't been that bad either-although much better the last few years. I'm starting to think that if it is down to genes I am probably screwed! :cry:

T x x x
 
Hello tasha,

C-Peptide can be manufactured synthetically, but can only be taken by injection.
It would be possible for pharmaceutical companies to premix it with insulin.

All us type 1's(and type 2's with shot beta cells) need to start making noise about it.
It's the squeaky wheel that gets the grease, as they say.

Here's a link to the company Eddie mentioned
:arrow: Creative Peptides Sweden Inc.

A few recent articles on C-peptide
C-peptide Emerging as Significant Factor in Nerve Recovery
A Role For C-Peptide

Regards,
timo.
 
Interesting stuff.

As for life expectancy... well, I'm in no hurry to pop my clogs but then again I'm not the kind of person who'll want to cling on for dear life while blind, crippled and unable to have a life. So in all honesty I hope my blood pressure one day (in the distant future) decides "oh you think you can keep me down?" and rebels, blowing my heart up in the process.
 
I think I remember reading somewhere that it could knock 10 years off as an average for Type 2 but don't know about Type 1 but who knows. It's probably best not to think about things in terms of "how long have we got". I'm more a believer in fate. Any of us on this site could die from totally unrelated causes. We could step out in front of a bus tomorrow, die from a terminal illness or live into a ripe old age with few or nocomplications. Personally, I'd rather go quick, from a heart-attack or similar, than die in prolonged pain or reliant on others to see to my everyday personal needs.
I hoped and hoped, when diagnosed at 45, that if i got complications, it would not be until I was old. To find only five years later and now on insulin, I almost certanly have neuropathy already, has really scared me but I'll not give in trying to keep my B.S. levels the best I can, to try and relieve the pain and prevent other complications setting in. I can then have no regrets as I age about not "trying" to control to my own health path.
 
As a type 2 for 10 years, & in my 70th year, my aim this side of death is to stay as healthy as possible, mentally & physically & SPIRITUALLY by using all available means.

I've made my will, I keep physically fit with walking, tennis, gym, & by having my music room 26 stairs above ground, & sing with three choirs, & by controlling diabetes by diet & medication.

I keep mentally fit by reading, study for preaching & disputing on the Internet, & word & number puzzles.

I keep spiritually fit by reading & prayer, & worship.

My health & mental powers are likely to deteriorate as I get older, but my eternal future is secured by Christ, & my faith in him who died for our sins & rose from the dead.
 
Like IanD I am a believer, but I know there are people out there, who don't get the EVIDENCE that the there is a higher power, so for them. Your quality of life is greatly enhanced by what you give to others.
So a few suggestions for getting more out of your life and making it feel long enough.
Try volunteering somewhere, could be a couple of hours a week in a charity shop, or something more direct. Can you pass on a skill? Can you help people with a difficulty. Could you "babysit" and free a carer for a couple of hours? Contact local charities and ask where you might help. Even walking dogs at a shelter. If you are a young parent, you could involve your children in that one.
to paraphrase an old saying "Never mind the length, feel the Quality"
 
hanadr said:
Like IanD I am a believer, but I know there are people out there, who don't get the EVIDENCE that the there is a higher power, so for them. Your quality of life is greatly enhanced by what you give to others.
Agreed, Hana, relationships with all sorts of people are so important. Family & friends & neighbours, clubs, can make so much difference to our attitude to life.
 
Thanks for all your replys, I shall look into the whol c-peptide issue when I understand more about all this. I didn't expect this question to go off at this angle! I envy those who have complete faith - I have never managed it. As for giving time to others , maybe at some point in the future but I currently work full time (with an 1 hour journey either way) am studying accountancy and have a 4 year old son and so currently only support charities financially (3 monthly). My spare time is spent visiting my inlaws or my family.

I had always hoped to have a long life (my nan is currently 98 and as fit as a flea) in fact all my female relatives have lived into their 90's so I was just wondering how I would most likely be affected.
 
Dear lionrampant.

I made a point of directing my suggestions so that they didn't refer to religion. so why the snide comment. didn't you read first?
 
I don,t see any thing wrong with your posting i am a beliver mybee not as strong as Ian to and at the end of the day we all have a right to are opinion. like the low carb stuff i don,t agree with it personaley but i would defend any one who did.
Wendie
 
The impact of diabetes on life expectancy is an extremely difficult question to answer, because although there have been many studies they are hard to interpret because they are trying to hit a moving target. The traditional view of the medical profession is quite gloomy. One of the main current endocrinology textbooks says:
"Patients with type 1 diabetes have premature mortality compared with the general population. It is said that on the day that a patient is diagnosed with diabetes their life expecancy is reduced by around one-third."
Holt, RIG & Hanley, NA (2007). Essential Endocrinology and Diabetes. 5th Edition. Blackwell
However (typically of textbooks), this doesn't say where - or more importantly when - this information has come from. Although this is a recent book, the first edition was published in 1983 - and I don't know in which of its five editions this statement originated. The technology for managing diabetes was much more primitive in 1983 than it is today - so it may well be unduly pessimistic (especially since such figures would have to be derived from data collected many years before this). Also, even if this figure is up to date, it doesn't make any distinction between people with tight control and not. It is horrendously difficult to design studies to put figures on such things, because to get meaningful results you would have to follow a group of patients who followed the same treatment regime over many years. In reality this never happens - people change treatment as they find ones better suited to themselves, and new treatments are developed - which are adopted by different people at different rates.

What it is possible to say is that diabetes (T1 or T2) is not an absolutely inevitable decline, and some people live to an extreme and relatively healthy old age despite the disease. There is always a certain probability of potentially fatal complications occurring, and these people have beaten the odds. As has been mentioned by others, it is currently looking very likely that the absence of C-Peptide in T1 diabetics makes it much more likely that side effects occur, but I have never seen any reliable figures put on this for a large population. What is certainly the case, though, is that the probability of developing complications or dying prematurely is directly correlated to BG control. It is all about probability - and the trick is to give yourself the best possible odds. If they have a really tight BG control then T1s are still much more likely to beat them than if their BG is less well controlled.

There are also many new treatments in development. Even ignoring all of the potential "cures", treatments like mixing insulin with synthetic C-Peptide might well have a major impact upon health and survival of T1s in the very near future. Asking by how much diabetes is likely to curtail your life really isn't a very useful question. Survival is always a lottery (after all, you could be hit by a bus tomorrow). The important thing is to do everything that you can to increase your odds so that you will be alive and healthy enough to benefit from new treatments (and there are many on the way). Too many people view diabetes as an "inevitable decline". Although T2s are luckier here, because so long as they can arrest the decline before their beta cells are completely fried, their fate is very much in their own hands. However, even for T1s, they can still do a lot to dramatically increase their odds - and ultimately that is all that survival is about.
 
On another site there was a recent article about life expectancy (but I can't remember what one). It said that for people diagnosed in their childood and teens life expectancy was on average 58 years. For those diabetics who also had eating disorders it was 47 years.

I know this is pretty gloomy. Rembember that this generation of diabetics did not have the access to blood monitoring and many treatments that we have now. The clear evidence that abnormal blood sugars causes increased mortality and debilitating complications was not a known thing then either. Also we now know that lower carb diets are the easiest and most effective way to get control of your blood sugars.

Live long and prosper. There is no reason why you can't.
 
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