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The hardest thing about diabetes is dealing with the NHS

I can empathise with the last few posts as a T2. It is always best if you can educate yourself as much as possible and make hem understand hat ypu know what you are talking about.

What happens next is all down to luck. In my Practice the GPs want nothing to do with diabetes. All is left to the Diabetic Specialist Nurse. She is only interested in the T!s and those T2s she has managed to persuade o go onto insulin.
She knows nothing about T" medications {or very little} and doesn't want o know/ If you have a problem i means hat you ought o be on insulin whether your control is good or not and conversely if your control is good then there can be no problems!

Because I was fortunate enough to be referred to the Diabetic Consultant at the hospital by the Opthalmologist and to be given a letter seting out the way in which I should be treated in future I am in a far better position han other patients. This still means that I have noone to turn o for advice in general,

Not so long agao I had to research and suggest a change in medication and consulted one of the Gps directly.
Although she agreed wih my request and could see the rationale she obviously was uncomfortable with prescribing something withiout the DSNs concurrence. It was a very small dose of something which I had previously taken in lage doses.
This DSN has previously given me the wrong advice about medications even when I expressed reservations about sme of them based on my limited knowledge , she has assured me hey were safe.
She was wrong. I resisted insulin because I don't rust her . Now armed with my talisman letter I know she cannot put me on insulin but must refer me to the hospital so I can relax about that.

I previously had a very supportive GP in another Practice who was not he Diabeic Doctor but who had a great deal of experience gained elsewhere, in treaying diabetes.

It is very much the liuck of the draw I inform myself for self preservaion. Its all we can do. I wish I was able to have the opportunity to speak to a dibetes specialist even annually but I appreciate that I was ery lucky to be able to see someone twice amd only because of my complications.
The DSN would never have put me on "appropriate " medication as the consultant termed it - although she was able o do so she had told me he only alternative to insulin was something which is not to be given to people with my condition. So she was either lying to me deliberaely or knows little abou her job.

I just think of them as a toal nuisance . they can't and don't an to help and any contact with them, usually for their purposes is fraught because of their inefficiency. A simple attendance at a clinic urns into a saga. They have never helped me in any way. Just the opposite..
I understand that the hospital is referring all well controlled T1s back o the Practice although they may have been attending the hospital for years. Poor things. I pity them. It will be a toal culure shock.

I ofen wonder how oong it will be before we see the end of his DSN business as i is now. A great misake I think. I know hat some have a very good experience but I would rather see he money used elsewhere.
There may be a case for he well controlled beinng seen by a well informed Pracice Nurse liaising wih a designaed Gp but once difficulties arise I hink resources should be concentrated in one place- the hospital.

I often wonder what checks are carried ou on the local management of diabetes . I can't help feeling i is just a matter of hitting the targets.
My DSN recently appeared to be highly amused at her lack of knowledge regarding the newer drugs and treatments for T2s. I don't find it funny and pity those who aren' able o research these matters or o stand up to the bullying.
 
Unbeliever said:
My DSN recently appeared to be highly amused at her lack of knowledge regarding the newer drugs and treatments for T2s. I don't find it funny and pity those who aren' able o research these matters or o stand up to the bullying.

Give a person a uniform and a title, and that's often what you get. They also assume a level of knowledge because of their title that they often don't posess. You see that a lot with the comments and "advice" doled out by SOME of the non-diabetic HCPs you get as members on this site, often followed with a "PM me if you want to know more," implying "talk to me privately if you want proper advice from a pro."
 
Hi unbeliever

I would recommend downloading the various NHS diabetes documents from their website. There have been some excellent reports in recent months and the NICE diagnostic routemap including those from your local NHS group shows what GPs are guided to do for diabetes treatment. In general these documents are excellent and it's a pity many GPs & nurses don't follow them. In particular they indicate what meds to give depending upon tests, weight etc and what to try 1st, 2nd and 3rd level before insulin. My GP said she regards insulin 'as a last resort' for Type 2s; perhaps a bit extreme but the process does suggest relevant meds before insulin.
 
Yes . Thanks Daibell. As I said I am scarcely allowed near a GP and if I ever get under the net the Gp's are terrified to comment.

if I were to wave these documents at the DSN she would assure me hat she is perfecly familiar with them all. I never ask her advice and wouldn't dream of doing so as I have no confidence whatsoever in her.
I just turn up when required and these matters only come up in conversation when initiated by her .
Usually when she is trying to persuade me to do something which doesn't sound appropriate o me
but which I need o research later. This means that I never know what is going to be brought up but it is usually something connected to targets or funding. I would have o have prior knowledge
on order o take along he relevant literature..

I don't let her bother me now that I know what she is lke but it would be good to have someone available to consult if I needed o do so.

The insulin business was because here was a huge drive in this area and a cash incenive o move
T2s onto insulin a few years ago.. This was aimed at nurses. I know for a fact that many GPs disagreed with it - mine was horrified. I don't think the incenives are still tthere so we don't hear oo much about insulin these days . Just wish I could have prior knowledge of the likely next "threat"
 
"PM me if you want to know more," implying "talk to me privately if you want proper advice from a pro."
More likely: I am well aware that I'm not allowed to dispense medical advice on the forum so I'll do so by PM.

In any case, what's wrong with insulin? I'd rather get effective treatment now rather than going through 0th, 1st and 2nd line treatment that they know won't work ("WHEN control deteriorates" in NICE guidelines).
 
Insulinn is not necessarily a magic bullet for T2s . This was not on diagnosis but 3 years later.
She told me I would have to continue with my medication regime as well as insulin. My nurse has shown herself to be ignorant about medication why should I trust her about insulin?
As this included a high dose of glimepiride at the itime I am sure I would have ended up in hospital
 
the_anticarb said:
HLW you were told you were at risk of developing type 2 diabetes and you are already type 1? Please explain, I'm confused, didn't realise type 1s could also develop type 2
is this possible as i was allways led to believe only type 2 could go to type 1 ?
 
As far as I know, although I don't know much about it, I think Type 1s can develop Type 2 as well if they become insulin resistant. They will always remain Type 1 though. I'm sure there are other members who will know more about this.
 
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