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Type 1 Diabetic Neuropathy

J

jasmith1990

Member
Messages
24
Type of diabetes
Type 1
Treatment type
Insulin
Hi peeps,

I did a post in here before about neuropathy and I just wanted to do a follow post on it. I have completely reverse neuropathy so what they tell you about it's not reversible is untrue. I've had diabetes 22 years, I smoked for 17 of it, I didn't do a blood test for about 5 years in a row with no libre sensor. I've had burnout, I've got some background retinopathy which is under control. The problem I had was with my feet from the ankles down, I had numb cold feet almost 24 hours a day. My feet now are like they were before any of that happened. It took about 3-4 years of continuous exercise and taking vitamins every day along with getting insoles and taking care of my feet. It's not a ploy to make you think something, this is genuine. I was walking somewhere earlier and thought to myself it was like I never had it. I would suggest looking at the link below and copying that list of vitamins they use in the product as I was using quite a similar bunch to that, but now use exactly those ones they use in both the blue and gold ones. Better you use the root versions of each vitamin like they use in their products. I've spent hundreds of pounds doing this so it is expensive as that's a product you can only buy in America and I'm the UK. Probably well over a thousand over the last 2 and a half years just on vitamins. I also train my feet and calves in the gym and do it properly, but I do it with insoles and stuff that keep my feet protected. I still get the very occasional shooting pain, but all sensation is back, my feet are toasting hot like they used to be. I'm guessing the pain will completely go in the next year or two. I'll probably continue doing this on and off for the rest of my life to be sure, but thought people find it interesting.

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I also don't come here a lot, I just thought I'd let anyone know that might find it useful as I've never got a straight answer from anyone about what and wasn't possible I just took a risk and kept to it for 3-4 years straight. I also had my bloods between 4-8mmol for 80% of the time pretty much for as long as I've had a libre. That's another key to it. You blood sugar has to be bang on whilst you take the vitamins and do the exercise and exercise release stored glucose which raise your blood sugar and upper body releases differently to legs so its all quite complex. You have to know your body and what will turn it around when reaching 8 to keep it from going below 4 whilst you complete your workouts. If you do all that and you stick at it and your feet aren't completely destroyed (mine were bad tbh, it was like I was walking on tiny stilts on my ankles), you should have success doing that.
 

I would also suggest wearing a pair of these inside your house or flat/apartment when it's winter and cold months that fit your feet exactly and wearing diabetic socks whilst wearing them. In fact just wear them all the time cause your feet sweat when you have neuropathy, so you need bamboo diabetic socks as well. That's pretty much it. I suppose you could get another pair of thicker socks to wear on top of them as well, but that's everything I did. It's not a sale or me lying or trying to get your hopes up. Genuinely have done this.
 
I was probably one of the most unstable diabetics, but I opted for hypo's instead of hyperglycemia so I lost hypo awareness and things like that. I ran low too much which might have saved me, I did have some of my earlier years running high. My average for the last 90 days of my libre is 79% between 4 and 8mmol, 8% above 8mmol and 13% below 4mmol. It's been around that average for the last 2 years plus whilst I've exercised 3-4 times a week, 60-90 mins a session. Also did quite a lot of cardio and got my heart rate to bradycadia levels about 50bpm.
 
Hi @jasmith1990 , it's wonderful to hear you're doing so much better.

I've read your old thread, and from what I understand you not only started taking vitamins, but you also managed to get your blood glucose mostly in a healthy range for the first time in some 20 years, very well done on keeping this up!
I was wondering, what makes you so sure it's the vitamins and not the much improved diabetes management that made your feet issues improve?
I would expect the healthier BG over time to do much more than vitamins, unless you have vitamin deficiencies.

Tagging @KennyA , who also had neuropathy symptoms which improved with improving BG levels, but as far as I know without taking lots of vitamins.
 
My feet were numb. The skin on my feet is wrinkled from the sweating due to the neuropathy. I've cleaned it up a bit with some cream but it's aged more than the rest of my body. Obviously the blood sugars had to be bang on as well but it took a long time. It's really been the last 3 months that I've felt like they're 90% back what they were and I took every vitamin that encourages nerve regeneration for pretty much the entire time I did it. And thanks for the kind words.
 
jasmith1990 said:
My feet were numb. The skin on my feet is wrinkled from the sweating due to the neuropathy. I've cleaned it up a bit with some cream but it's aged more than the rest of my body. Obviously the blood sugars had to be bang on as well but it took a long time. It's really been the last 3 months that I've felt like they're 90% back what they were and I took every vitamin that encourages nerve regeneration for pretty much the entire time I did it. And thanks for the kind words.
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Hi, that's an interesting account. I did have quite severe neuropathy but mine was the burning/stabbing pains, no numbness. In addition it's quite common for T2s with painful neuropathy to report that their feet stop sweating - mine still don't sweat.

95% of my neuropathy vanished as soon as my BG came back to normal levels. It just went, in about the space of a week in February or March 2020. I still have a slight residual tingle sometimes (which is probably permanent) but it's really not pain. I didn't take anything or do anything apart from get my BG under control.

Although everyone knows that neuropathy goes along with T2 there seem to be precious little really known about it and how to stop it. My guess is (on reading the textbook) that there's at least some difference between the numbness neuropathy (which seems to be most common) and the painful neuropathy. And of course you can have both.
 
KennyA said:
Hi, that's an interesting account. I did have quite severe neuropathy but mine was the burning/stabbing pains, no numbness. In addition it's quite common for T2s with painful neuropathy to report that their feet stop sweating - mine still don't sweat.

95% of my neuropathy vanished as soon as my BG came back to normal levels. It just went, in about the space of a week in February or March 2020. I still have a slight residual tingle sometimes (which is probably permanent) but it's really not pain. I didn't take anything or do anything apart from get my BG under control.

Although everyone knows that neuropathy goes along with T2 there seem to be precious little really known about it and how to stop it. My guess is (on reading the textbook) that there's at least some difference between the numbness neuropathy (which seems to be most common) and the painful neuropathy. And of course you can have both.
Click to expand...
I don't really know a lot about the differences of type 2. Yeh I had shooting pains like what you're describing, I still get the odd one maybe one time in a month on one foot. They were a lot more constant than that before, even up to a year ago. It took over 18 months see progression that was obvious, I've just about finished 4 years this December from when I started doing this. That's when I joined the gym December 2019 and I've done it constantly since then. The rest of my was fine, I look like athlete physically but then from the ankles down I was bad. I knew they were coming off soon if I don't do drastic things to change it. I had a collapsing arch as well, I had to get arched insoles whilst doing it. It's all part of it. I did the research and did every single thing to a T.
 
jasmith1990 said:
I don't really know a lot about the differences of type 2. Yeh I had shooting pains like what you're describing, I still get the odd one maybe one time in a month on one foot. They were a lot more constant than that before, even up to a year ago. It took over 18 months see progression that was obvious, I've just about finished 4 years this December from when I started doing this. That's when I joined the gym December 2019 and I've done it constantly since then. The rest of my was fine, I look like athlete physically but then from the ankles down I was bad. I knew they were coming off soon if I don't do drastic things to change it. I had a collapsing arch as well, I had to get arched insoles whilst doing it. It's all part of it. I did the research and did every single thing to a T.
Click to expand...
Bilous and Donnelly (the text book I use) don't differentiate between T1s and T2s with neuropathy. It's all about high BGs causing nerve damage for them, and it seems to take people different ways.
 
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