I don't think there's an alarming rate of children misdiagnosed as T1. This is usually a very straight forward diagnosis.
GP's aren't very knowledgable on T1 as a rule, which is why most of us are treated by a specialised team of endocrinologists and diabetes specialist nurses, especially when underage.
Other often seen members on those teams are dieticians and (child) psychologists.
Your GP is likely to refer you back to the hospital, where there is more knowledge on the subject.
Would you like to tell us a bit more on your feelings?
Hearing your child has a serious condition must be very, very hard on a parent, and it brings along a form of grief. Anger, denial, depression, bargaining are all part of grief.
Have you asked yourself why you are not accepting this diagnosis and are looking for however small possibilities it's wrong?
Regardless of the diagnosis, those blood sugars need to come down first and foremost, and insulin is the way to do that. Finding out the exact root of the high blood glucose comes second place.
Hi. I know of no reason why an HBA1C test can't be used with children as it's a non-invasive test apart from taking blood. A fasting test is of little use as a diagnostic but the HBA1C is very reliable. I'm afraid your child is T1 - sorry.
Oh absolutely. We wouldn’t changed anything before being told to. She’s having a Dexcom fitted tomorrow. I just feel I’ve got to explore every avenue. Why does the web say hbA1c shouldn’t be used for children?
With numbers like that, there's not exactly a way around it, and a second opinion won't change the labs. They're truly saving your child's life.
It's not easy, but she'll have your support. And you'll have the people on here who'll help.
Hugs,
Jo
It's early days, so even with T1 the pancreas might produce some insulin.I just need concrete evidence that the pancreas is producing little if no insulin at all then I can accept the diagnosis. How can this be obtained?
Wonderful!She’s having a Dexcom fitted tomorrow.
I appreciate your feelings on that.We go forward doing as instructed but I can’t give up the hope yet.
This is the reason why I’m questioning hbA1c
A child with blood sugars that high is per definition, not producing enough insulin, or she wouldn't be that high. There is no other possible reason. Misdiagnoses happen in adults, yes, because there's T1, T2, T3c, GD, Mody and LADA muddying the waters. But not in kids; there's just T1. C-peptide tests will be whatever other evidence you want, but those high blood sugars don't just happen for a variety of reasons. There's just one reason that drives them up to this extent. Type 1. I'm sorry, I really am, but this is your new reality.I agree. They dropped from 27 to anything from 3 to 12 whilst in hospital during the 3 days and on insulin. I just need concrete evidence that the pancreas is producing little if no insulin at all then I can accept the diagnosis. How can this be obtained?
. Can you understand my concerns?
I agree, but strictly speaking some (obese) children now get T2. That's more of a gradual process though.But not in kids; there's just T1. C-peptide tests will be whatever other evidence you want, but those high blood sugars don't just happen for a variety of reasons. There's just one reason that drives them up to this extent. Type 1. I'm sorry, I really am, but this is your new reality.
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