1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2021 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
  4. Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Type 1 - No appetite/hunger pains

Discussion in 'Eating disorders and diabetes' started by Andrew0306uk, Jun 4, 2021.

  1. Andrew0306uk

    Andrew0306uk Type 1 · Member

    Messages:
    16
    Likes Received:
    7
    Trophy Points:
    43
    I’m 49 and got diagnosed type 1 about 8 years ago and also suffer with Emotionally Unstable Personality Disorder.

    When I go into mental health crisis I will refuse to eat/drink for multiple days with a combination of either taking 2x dose of Tresiba or none at all, but I never get hungry. I only start eating again when I can see the impact of worry on my family and/or the crisis passes.

    I fluctuate between carb counting every meal and taking a 4u:10g dose of Novorapid, to no carb counting while binge eating cakes/bread/sweets, to not eating. Majority of the time I will take the daily dose of tresiba to hold off a DKA but I do refuse that too on occasions.

    My previous DKA was caused by body-dismorphic and refusal to take any insulin for months (am I truly type 1 if I can go months without insulin?).

    My EUPD causes lots of issues with self-harming and suicidal thoughts which, because of my understanding of needing the insulin injects, turns that understanding into a weapon for immediate and long term self-harming due to knowing how much damage it could cause my body

    My main question is - is it normal to not feel hungry when Type 1?
     
    • Hug Hug x 3
  2. EllieM

    EllieM Type 1 · Moderator
    Staff Member

    Messages:
    3,876
    Likes Received:
    2,093
    Trophy Points:
    198
    Not that I am aware of, if you're managing your bgs reasonably well. (Obviously someone on the edge of a DKA is unlikely to be feeling anything other than pretty ill.) Though Dr google says that gastroparesis, which is a possible complication of diabetes, can cause loss of appetite.

    Adult onset /LADA T1s can go on producing a very small amount of insulin for a long term, so it can take longer for them to go into DKA if they aren't eating. (Before the discovery of insulin the only treatment available for T1s was basically a starvation diet to keep them alive for as long as possible in the hope of a cure.)

    But I suspect your lack of appetite is just as likely to be caused by your mental health issues as your T1. (It's pretty common among sufferers of eating disorders. Once you stop eating for long enough your judgement about food and appetite becomes compromised.)

    Are you currently getting any medical help for your mental issues? (Am guessing COVID lockdown did not help.) Not many folk awake on these forums at this time of day so here's a link to the various UK helplines if you need to talk to someone right now.

    Help for suicidal thoughts - NHS (www.nhs.uk)

    Good luck.
     
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook