I wasn't aware of the issue with injection sites so it sort of makes sense, but a bum injection site can last just as long as another area........However I'm now wondering if pumps enable more 'exotic' injection sites to be used - ie not the usual stomach/thigh that suddenly changes their control (let alone the actual pump)?
Although it is not explicitly mentioned in the criteria, I wonder whether they will also do any unofficial means testing - if you can afford to fund the Libre yourself, there is no need for the NHS to pay for it
Diabetes patients must meet the access criteria, which have been expanded following a public consultation to include patients who are already self-funding these devices, as long as they can demonstrate they would have met the criteria when they began to self-fund.
This also applies to patients who have self-funded insulin pumps and continuous glucose monitors.
@Juicyj before I reveal my score I'd just like to point out that someone in the office (not me!) has a tub of Quality Street on their desk........................10.2(Must try harder, must try harder, must try harder.................)
Hospital appointment this morning. Saw my lovely consultant. HbA1c down 2 to 47. Going in the right direction. Thank you Libre (asked about availability again-as I thought, ‘pigs might fly!)
Also changing me to Fiasp to help with my problems in the morning. Am injecting an hour before I eat breakfast. It comes down painfully slowly which makes mornings hard work. 6 months to give it a good go and then will review. It also has half units, whoop!
Babysitting grandson tonight. Fingers crossed he stays asleep as it is the last episode of No Offence!
In other news, absolutely fabulous sunny, warm day here in Leeds. Hope everyone else has been similarly blessed. It makes you feel good to be alive.
Lucky you. Maybe, one day, my CCG will follow suit.
Currently, the Bath and North East Somerset, Swindon and Wiltshire policy does not include anything like this. It states
"Patients with Type 1 diabetes mellitus (DM), aged 4 years and above, or total pancreatic failure who despite intensive specialist input continue to have poor control (target HbA1c not achieved or inability to achieve target due to frequent episodes of hypoglycaemia (particularly at night) or disabling fear of hypoglycaemia overnight in children & their carers) of their blood glucose levels and meet one or more of the following:"
And then goes on to list the criteria such as 8 or more test strips (note, this is in addition to poor control), 2 or more incidents of DKA with hospital admissions, 2 or more severe hypos, etc.
I had 2 horrendous lipohypertrophy bulbs on my stomach the size of my fist when I was around 9 years old. I started rotating my sites after I seen them in a photo. They were gone by the time I was 15. Had 1 on the top of my right leg, was too stoopid to rotate around 5 years ago. That one has 90% gone nowI think this is a really difficult one. If I remember correctly, @smc4761 has had diabetes for over 30 years, same as me. When I asked the nurse consultant how long it'd take for my lipohypertrophy to disperse, shel ooked at me and said, 'how long did it take to develop'? as in, it's not likely to disappear in my lifetime. So I've scrabbled around for new sites and at the moment I'm managing. Injecting in some places, like my bum, is an option but it has problems for me: seeing what I'm doing in certain areas, and managing to keep track of where I've injected so I don't end up injecting repeatedly in the same place. I find that so much easier in my abdomen and to some extent my arms. Thighs are out as for some reason absorption seems quite erratic there. So even if it's working now for @smc4761 , if it was me I'd be wondering how long that would last. And I'm not sure how you measure who really needs a pump...
I don't know for absolutely certain as I was only sent the "Policy for Freestyle Libre® Flash Glucose Monitoring System use in Type 1 Diabetic Adult & Paediatric Patients."
However, I suspect there has been some editing at least as one of the Libre criteria is
"Those who meet the current NICE criteria for insulin pump therapy (HbA1c > 68mmol/mol (>8.5%) or disabling hypoglycaemia as described in NICE TA151) where a successful trial of Freestyle Libre® may avoid the need for pump therapy. If the patient ends up requiring a pump, the funding for Freestyle Libre will be reviewed."
So Libre may not be seen as a cheaper alternative to a CGM but is seen as a cheaper alternative to a pump.
By the way, the policy is a 4 page document. As well as describing the criteria for getting the Libre prescribed, it also includes the conditions for keeping a Libre.
On diagnosis I was told no arm injections and no pinching. My consultant asked today if I was pinching when discussing the marks I have all over. No I said. Good you shouldn’t was his answer.When I was diagnosed I was shown where I can inject. When I left my hometown and moved to Reading, my nurse said I was using the wrong sites and can’t use my arms?!
I have expressed how useless I think she is- so I use the back of my arm- but mainly stomach and thighs. Have others been told anything like this?
Parent teacher meetings all done1 day to go. #halfterm
Well you’re very naughty and not setting a good example as a mod.Was told not to use my back. I still do though.
Well you’re very naughty and not setting a good example as a mod.
Only one I haven't tried, seems awkward to do. Never really discussed this with my team aside from being advised on diagnosis not to use arms.Was told not to use my back. I still do though.
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