porl69
Well-Known Member
- Messages
- 3,639
- Location
- Pontypool, South Wales
- Type of diabetes
- Type 1
- Treatment type
- Insulin
- Dislikes
- Stupid people
Yes Karen I still have it. It helps no end with setting up basal patterns
Yes Karen I still have it. It helps no end with setting up basal patternsDo you still have the libre with your pump porl69?
Unless I go to the surgery at 8am and queue outside till half 8 then hope I can get to see a GP in the following 3 hours (I think I need to change my surgery!)
That is how I use my self funded Libre.
However, in theory, once your basal patterns are set, it may be harder to justify Libre because you shouldn't be needing to do as many corrections.
I will be doing a bit of pleading today so will see if there is any chance of a Libre. Last time I asked I was told my control was too good but I think this has changed recently.
Don't switch to mine then - exactly the same setup.
Just cancelled my 130% as I am back in range! My bloods are hectic overnite and in the morning BUT in the afternoon seems to stabilize and my cough goes then as well. My body being as awkward as it can@porl69 - are you finding 130% basal high enough? When I'm ill, I usually need 200%...
i was told when i get my pump they will take libre off me but there are ways to get it back after 8 weeksYes Karen I still have it. It helps no end with setting up basal patterns
Where are the "Oh My God" emojis??? ADMIN.......i was told when i get my pump they will take libre off me but there are ways to get it back after 8 weeks
Firstly, I apologise - this is going to be a long one - but I feel the need to download after my annual review.
Feel free to jump over this diatribe or just click on a random rating icon and move on.
My overall impression was "meh". I am not sure I gained much more than what I could get from just looking at my results.
The first topic I bought up was the unreliability of Fiasp.
(I'll tag @karen8967 in case she follows my instrictions above because she said she was interested in this).
The answer was "yeah, you're not the first to say it's unstable."
Then went on to say there is no perfect insulin. Nothing works as fast as we would like but if NovoRapid meant I had to pre-bolus 45 minutes before I ate, that's not good.
Eventually, the DSN suggested I tried Humalog. It is not as fast as Fiasp but more stable and I may react differently to it than I do to NovoRapid.
(OK, so I got something there but not a lot).
The next topic was my pump replacement.
This is likely to be in 3 or 4 months - they have a lot to go through because Johnson and Johnson are stopping their Animas warranty in September which will be less than the planned 4 years.
I will be getting a Medtronic 640G.
I tried to make the case for something smaller for me ... because I am small so unable to hide my pump.
The male consultant suggested I put it in my bra. My response was to look down and point out that would make me very lopsided as "I am small in most dimension and especially that one."
He then went on to blame the CCG for being tight. They only fund one pump and it is one of the cheapest with the features the diabetes team insist on having. But the CCG keep asking to reduce the costs of pumps.
The DSN said she would bring up my request for an Omnipod but is not confident they would make an exception for me.
Finally, I asked about the Libre.
Again, they blamed the CCG and explained the CCG have not provided any resources to do the administration. They have a backlog of training and coordinating with the GPs for the prescription.
This morning, they had a meeting and decided not to prescribe any new Libres until April.
They explained April is when the NICE change should happen but they do not think NICE has provided enough information to clarify how they are going to get more people on the Libre but hope there will be sufficient information to convince the CCG to fund the whole Libre process.
They conceded, I would now qualify for Libre due to my lower hypos sensitivity (but they didn't mention the number of finger prick tests I do each day and the lack of patterns in my readings) if they had not decided this morning not to give out any more,
The onus is on me to contact the DSN in April and ask again.
As for my blood test results, they were all fine. I was told my Hb1AC was "very good" at 48 but I pointed out this is only due to the high number of hypos.
They seemed happy with my blood pressure result which was done as soon as I arrived. But I didn't think it was a trie representation as I had just run there so my resting heart rate was very high and my diastolic rate (the bottom number) was a little elevated.
If anyone has made it this far, thank you for reading. I feel a bit better after putting fingers to the keyboard.
If you gave up a few paragraphs ago, you are not reading this so I can write whatever I want about you
Thanks for tagging me helen what a load of twaddle are you gonna change to the humalog on the off chance it that it may work better....when i was first diagnosed my bolus was apidra and at first that worked great till it didnt just like this fiasp now its not that its not working its that it seems to go off very quick but is only a quite recent thing i was given a chouce of 4 pumps so will look all of them up on size ease of use etc like you i am slim and wear close fitting clothes so anything bulky would stick out like a sore thumb i bet the consultant who said put it in your bra was a manFirstly, I apologise - this is going to be a long one - but I feel the need to download after my annual review.
Feel free to jump over this diatribe or just click on a random rating icon and move on.
My overall impression was "meh". I am not sure I gained much more than what I could get from just looking at my results.
The first topic I bought up was the unreliability of Fiasp.
(I'll tag @karen8967 in case she follows my instrictions above because she said she was interested in this).
The answer was "yeah, you're not the first to say it's unstable."
Then went on to say there is no perfect insulin. Nothing works as fast as we would like but if NovoRapid meant I had to pre-bolus 45 minutes before I ate, that's not good.
Eventually, the DSN suggested I tried Humalog. It is not as fast as Fiasp but more stable and I may react differently to it than I do to NovoRapid.
(OK, so I got something there but not a lot).
The next topic was my pump replacement.
This is likely to be in 3 or 4 months - they have a lot to go through because Johnson and Johnson are stopping their Animas warranty in September which will be less than the planned 4 years.
I will be getting a Medtronic 640G.
I tried to make the case for something smaller for me ... because I am small so unable to hide my pump.
The male consultant suggested I put it in my bra. My response was to look down and point out that would make me very lopsided as "I am small in most dimension and especially that one."
He then went on to blame the CCG for being tight. They only fund one pump and it is one of the cheapest with the features the diabetes team insist on having. But the CCG keep asking to reduce the costs of pumps.
The DSN said she would bring up my request for an Omnipod but is not confident they would make an exception for me.
Finally, I asked about the Libre.
Again, they blamed the CCG and explained the CCG have not provided any resources to do the administration. They have a backlog of training and coordinating with the GPs for the prescription.
This morning, they had a meeting and decided not to prescribe any new Libres until April.
They explained April is when the NICE change should happen but they do not think NICE has provided enough information to clarify how they are going to get more people on the Libre but hope there will be sufficient information to convince the CCG to fund the whole Libre process.
They conceded, I would now qualify for Libre due to my lower hypos sensitivity (but they didn't mention the number of finger prick tests I do each day and the lack of patterns in my readings) if they had not decided this morning not to give out any more,
The onus is on me to contact the DSN in April and ask again.
As for my blood test results, they were all fine. I was told my Hb1AC was "very good" at 48 but I pointed out this is only due to the high number of hypos.
They seemed happy with my blood pressure result which was done as soon as I arrived. But I didn't think it was a trie representation as I had just run there so my resting heart rate was very high and my diastolic rate (the bottom number) was a little elevated.
If anyone has made it this far, thank you for reading. I feel a bit better after putting fingers to the keyboard.
If you gave up a few paragraphs ago, you are not reading this so I can write whatever I want about you
Ive been looking at the ypos pump much smaller than the metrodinic one its fairly new and doesnt have as many features as some but does what it needs to il ask on pump forum for some feedback@karen8967 we agreed I would try Humalog but until I had worked out whether it works for me, there would be no permanent change to my prescription.
Unfortunately, the GP permanently changed NovoRapid to Fiasp so, if I want to go back, I have to get the consultant to write to the GP.
Thankfully, I kept a vial of NovoRapid to tide me over until the paperwork is done if/when I change back.
I am away this weekend and torn which insulin to take with me.
I’ll report back when I’ve tried Humalog.
Firstly, I apologise - this is going to be a long one - but I feel the need to download after my annual review.
Feel free to jump over this diatribe or just click on a random rating icon and move on.
My overall impression was "meh". I am not sure I gained much more than what I could get from just looking at my results.
The first topic I bought up was the unreliability of Fiasp.
(I'll tag @karen8967 in case she follows my instrictions above because she said she was interested in this).
The answer was "yeah, you're not the first to say it's unstable."
Then went on to say there is no perfect insulin. Nothing works as fast as we would like but if NovoRapid meant I had to pre-bolus 45 minutes before I ate, that's not good.
Eventually, the DSN suggested I tried Humalog. It is not as fast as Fiasp but more stable and I may react differently to it than I do to NovoRapid.
(OK, so I got something there but not a lot).
The next topic was my pump replacement.
This is likely to be in 3 or 4 months - they have a lot to go through because Johnson and Johnson are stopping their Animas warranty in September which will be less than the planned 4 years.
I will be getting a Medtronic 640G.
I tried to make the case for something smaller for me ... because I am small so unable to hide my pump.
The male consultant suggested I put it in my bra. My response was to look down and point out that would make me very lopsided as "I am small in most dimension and especially that one."
He then went on to blame the CCG for being tight. They only fund one pump and it is one of the cheapest with the features the diabetes team insist on having. But the CCG keep asking to reduce the costs of pumps.
The DSN said she would bring up my request for an Omnipod but is not confident they would make an exception for me.
Finally, I asked about the Libre.
Again, they blamed the CCG and explained the CCG have not provided any resources to do the administration. They have a backlog of training and coordinating with the GPs for the prescription.
This morning, they had a meeting and decided not to prescribe any new Libres until April.
They explained April is when the NICE change should happen but they do not think NICE has provided enough information to clarify how they are going to get more people on the Libre but hope there will be sufficient information to convince the CCG to fund the whole Libre process.
They conceded, I would now qualify for Libre due to my lower hypos sensitivity (but they didn't mention the number of finger prick tests I do each day and the lack of patterns in my readings) if they had not decided this morning not to give out any more,
The onus is on me to contact the DSN in April and ask again.
As for my blood test results, they were all fine. I was told my Hb1AC was "very good" at 48 but I pointed out this is only due to the high number of hypos.
They seemed happy with my blood pressure result which was done as soon as I arrived. But I didn't think it was a trie representation as I had just run there so my resting heart rate was very high and my diastolic rate (the bottom number) was a little elevated.
If anyone has made it this far, thank you for reading. I feel a bit better after putting fingers to the keyboard.
If you gave up a few paragraphs ago, you are not reading this so I can write whatever I want about you
Had my eye screen today. Discovered there was no chance of reading my screen after so bunked off work. Things back in focus now.
Night cumbs xGoodnight friends
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