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Type 1'stars R Us

Being good tonight, home made soup, followed by tuna fish salad, maybe 30g of carbs. Thats the problem with home made soup difficult to work out exact carbs
 
Absolutely no idea.
Knowing that would require advance planning.
I do know the fridge contains hummus, corn on the cob, fishcakes, pasta, chard, red pepper, cheese, one egg, a bottle of wine, multiple bottles of beer, various chilli sauces and some fresh chillis.
I'm open to suggestions how to combine some or all if them.
I’d just have a cheese and wine party, tbh.
 
Absolutely no idea.
Knowing that would require advance planning.
I do know the fridge contains hummus, corn on the cob, fishcakes, pasta, chard, red pepper, cheese, one egg, a bottle of wine, multiple bottles of beer, various chilli sauces and some fresh chillis.
I'm open to suggestions how to combine some or all if them.


It has to be a beer, chilli, and fishcake party.
 
This is how I see @helensaramay evening going :D

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i had a couple of rounds of cheese on toast with worcester sauce not very hungry :hungry:well my sensor i got off clinic today is a dud abbot said i have to wait 24 hrs for it to kick start but its not happening ive got a red line and reading just says lo or scan again in 10 mins to say im dissappointed is an understatement they probably will replace it but i so wanted it to work because it was free after months of self funding oh well such is life enjoy whats left of your evening everyone ;)
 
Just had a hypo. The libre was saying about 4, and it didn't feel right, and I did a blood test and it said LO. My blood sugar did feel lower than 4, so I decided to act on that, rather than doing another one to check.

So I drank a little carton of orange juice, that I decided to buy, as a liquid glucose option, today. I don't usually have any, so that was a fortunate coincidence.

I've reduced my Levemir tonight, and am going to try and run at a nice comfortable 9, 10, or 11 all night, I've spent enough time in hypoland for comfort, for a few days.

I did quite a long walk this afternoon, and my blood sugar was resisting falling, so it might well have dipped suddenly. It does usually start to dip about 5pm, so it might have decided to dip more than usual. Don't know why the libre didn't show it, though.

That'll teach me not to dance around to Bruce Springsteen. It won't, but never mind.
 
i had a couple of rounds of cheese on toast with worcester sauce not very hungry :hungry:well my sensor i got off clinic today is a dud abbot said i have to wait 24 hrs for it to kick start but its not happening ive got a red line and reading just says lo or scan again in 10 mins to say im dissappointed is an understatement they probably will replace it but i so wanted it to work because it was free after months of self funding oh well such is life enjoy whats left of your evening everyone ;)


Thats a shame Karen, not much consolation but Abbot are very good/quick at replacing. Hope it all goes well once you have it
 
Just had a hypo. The libre was saying about 4, and it didn't feel right, and I did a blood test and it said LO. My blood sugar did feel lower than 4, so I decided to act on that, rather than doing another one to check.

So I drank a little carton of orange juice, that I decided to buy, as a liquid glucose option, today. I don't usually have any, so that was a fortunate coincidence.

I've reduced my Levemir tonight, and am going to try and run at a nice comfortable 9, 10, or 11 all night, I've spent enough time in hypoland for comfort, for a few days.

I did quite a long walk this afternoon, and my blood sugar was resisting falling, so it might well have dipped suddenly. It does usually start to dip about 5pm, so it might have decided to dip more than usual. Don't know why the libre didn't show it, though.

That'll teach me not to dance around to Bruce Springsteen. It won't, but never mind.

I love walking and will walk most weekends around 8--12 miles a day just gentle walks, no hills if possible. I have never leave home though without bottle of coke, biscuits, chocolate, tester, insulin. Then I have my camera, binoculars, packed lunch, bottle of water. You would think I would have huge muscles lugging that lot around. I have a huge fear of having a hypo when I am out and about as i tend to go to places where there are not many people about.

My worst hypo outside was in Outer Hebrides a few years ago when I had not seen anyone all day. Thought I was OK as I had taken plenty to eat but no, a 2.8. So downed about 2 bottles of lucozade as well as chocolate, taking absolutley no chances at all

I do find even with gentle walking my sugars will fall sometimes sharply, luckily with the Libre I can check every 30 mins or so to see if I need to eat
 
I love walking and will walk most weekends around 8--12 miles a day just gentle walks, no hills if possible. I have never leave home though without bottle of coke, biscuits, chocolate, tester, insulin. Then I have my camera, binoculars, packed lunch, bottle of water. You would think I would have huge muscles lugging that lot around. I have a huge fear of having a hypo when I am out and about as i tend to go to places where there are not many people about.

My worst hypo outside was in Outer Hebrides a few years ago when I had not seen anyone all day. Thought I was OK as I had taken plenty to eat but no, a 2.8. So downed about 2 bottles of lucozade as well as chocolate, taking absolutley no chances at all

I do find even with gentle walking my sugars will fall sometimes sharply, luckily with the Libre I can check every 30 mins or so to see if I need to eat

My walk was about 40 minutes, I tested far more often than half an hour. A libre test is easy, I usually test every ten minutes. But it just didn't fall while I was walking. So I thought it would fall when I got back, but it didn't, or not until a lot later. So it caught me out.

However I corrected with a small carton of orange juice 18g a banana which I'd started eating when I was still trusting the libre, because it didnt feel right, so that's about 15g, it was only a small banana, plus 3 wine gums, which is 12g.

So that's a total of 45g of carbs.

The LO was at 17:11
a finger prick test showed 8.2 at 17:36

The LO could have been an inaccurate reading, but I certainly felt uncomfortably weird, in a hypo sort of way, which was why I started eating the banana.

My experience is that the more carbs you eat during a hypo the faster they act.
 
I've had a sort all the paperwork kind of day, so was in all day until 4.00 p.m., then went to deliver a "Welcome to your new home" gift, and grabbed the insulin to take with me in case I felt like getting something to eat whilst I was out.

I did feel like eating some chips. I was saved from myself by the fact there wasn't enough Novorapid for such excitements. Oh well, there's always tomorrow with the new pen....
 
Just had a hypo. The libre was saying about 4, and it didn't feel right, and I did a blood test and it said LO. My blood sugar did feel lower than 4, so I decided to act on that, rather than doing another one to check.

So I drank a little carton of orange juice, that I decided to buy, as a liquid glucose option, today. I don't usually have any, so that was a fortunate coincidence.

I've reduced my Levemir tonight, and am going to try and run at a nice comfortable 9, 10, or 11 all night, I've spent enough time in hypoland for comfort, for a few days.

I did quite a long walk this afternoon, and my blood sugar was resisting falling, so it might well have dipped suddenly. It does usually start to dip about 5pm, so it might have decided to dip more than usual. Don't know why the libre didn't show it, though.

That'll teach me not to dance around to Bruce Springsteen. It won't, but never mind.

Liked out of sympathy
Hoping you are feeling better now Alison
 
Morning all, had a lovely meal last night of roasted veg (cauliflower, broccoli, green pepper and a little beetroot) with a whole sea bream roasted in lemon and goat butter - didn’t get the dosing right. Not sure if I underestimated the carbs, or the white fish protein or what. I’d estimated at 14g carbs, so took 1.35u for those as I was at 4.8; and an extra 1.65u over two hours for the 35g protein in the fish. Shot up to 8.6 in an hour and a half, and had to chuck in an extra 1.15u to bring it down - took five hours to get back into range. I didn’t prebolus for the veg, perhaps I should have? I don’t normally as I don’t eat fast carbs, but I don’t usually eat lots of beetroot either. So I think that caught me out! I’m boring myself here so shall shut up. Prawns for lunch, I do like being an ongoing science experiment...

@Moggely - forgive the lengthy reply! This is my personal opinion so I shall type it in purple. We are taught in our initial insulin use training and then later when we do a carb counting course like DAFNE (dose adjustment for normal eating) that we can eat what we want and dose for it. Personally (and I must stress that this is my PERSONAL OPINION that I try not to bang on about unless asked, but you asked so.... ;) ) I think it’s the biggest disservice they have done to T1s. While T1 is fundamentally different to T2 in that our metabolisms are very different - we basically have a “normal” metabolism but with major organ failure, our methods of trying to mimic the functions of a pancreas are very clumsy. A healthy pancreas starts shooting out insulin the moment food goes in the mouth pretty much, in order to be there for when the glucose hits the bloodstream, this takes a matter of minutes. There’s then a second phase a little later, to deal with the slower breakdown of the rest of the food. It then stops as soon as it’s not needed, it’s a very sensitive organ. Injecting an artificial insulin one or a half unit at a time and getting a snapshot of what the levels are with a blood test is like trying to mend a watch with a sledgehammer. Newer tools such as the Libre sensor and an insulin pump make it more like mending a watch with a domestic hammer. Still clumsy but it’s the best we have now, and fortunately technology is always improving, but being able to truly replicate the clever human pancreas is still a long way off. The insulin we inject hangs around for a very long time, up to 5 hours, so we need to bear that in mind as well.

Now, we have many people here, especially on this particular thread, who are successfully able to manage their carb intake and balance it with the correct amount of insulin taken at exactly the right time. Most of the fast acting insulins kick in somewhere between 20 and 60 minutes, so folk take it a little while before they eat (depending on their own personal timings), and calculate or guesstimate the amount of carbs in their food. As you’ll see from reading this thread, sometimes it works and sometimes it doesn’t. Brains might be able to do the numbers but bodies don’t always pay attention. What works one day might not work the next - our insulin response is affected by so many things: hormones, weather, if the day has a y in it, colour of underwear... I’m in quite a few T1 groups on Facebook, and there are many people swinging wildly from high to low, and in despair because it makes them feel so unwell. They just can’t balance their carbs and insulin, despite having all the tools to do it, supposedly - I’ve been there myself and it’s miserable. It doesn’t seem to have a consistent onset time for me, so pre-injecting has proved to be a dangerous game, with hypos before the food has had a chance to hit my bloodstream. I don’t do exercise, so can’t really comment on that, but if I’m having a busy day, my levels tend to run lower.

I was diagnosed twenty years ago, and was always told to eat what I want and inject for it. So I dutifully did as I was told, followed an NHS approved low fat, high carb diet, as far as I was able. To inject one unit of insulin for 10g carbs (but not to count veg, unless it was roots) at the time of eating, and only to correct at mealtimes. So I did all that and felt ill the whole time, taking massive doses of insulin to go with my plates of pasta, rice, etc. I’d be either high or low, and had some epic and frightening hypos, especially at night. HbA1c was usually in the double figures under the old system (over 100 in the new one), and my BG levels would regularly be in the 20s. So for me, following the official guidelines doesn’t work. After a very frightening hypo after I misread the raw and cooked carb values on a packet of spaghetti and needed paramedics to help me, I decided that I needed to try something different. I could see here how much low carb was helping T2s, and a few T1s were doing it too with great results. I started doing keto (<30g carbs a day) in January and dropped my HbA1c from 94 to 43 in five months. My sugar levels are great, I almost never hit double figures and hypos are rare unless I’ve been drinking. I’m having a few more now as I’m getting used to my new insulin pump and getting the settings right. But usually my glucose levels run in the 4s and 5s - I’m aiming for non diabetic levels. I mostly follow the Bernstein book, but not religiously. I really like his “small numbers” idea - fewer carbs means smaller doses of insulin and therefore less chance of a hypo. That works really well for me. I have a Libre sensor with a transmitter so I’m aware of my levels at all times, and an Omnipod pump, so I can fine tune doses down to 1/20 of a unit. However, I do need to dose for certain protein as well, usually at half the ratio I would for carbs, and over an extended period.

So while this is my personal opinion, and very much counter to the official guidelines, at all of my appointments at the hospital Diabetes clinic with a consultant, and dietician, they’ve told me (very much off the record) that they totally agree with this approach but have to push the NHS eatwell guide. My diabetes consultant says he’s rather I stayed out of ketosis because he has to tell me that, while literally shoving a prescription for loads of blood ketone strips under the desk so I can monitor them :D The dietician says my diet is very healthy, I print out a full food diary each month for my file and take it to my appointments - I use the MyFitnessPal app to calculate my carbs and protein for accurate dosing, and it provides full printable reports. Even the pump training lady (she’s a former DSN) looked knowingly at her colleague when I had some follow up Omnipod training last week and said “I told you this was the way to go for everyone, not just type two” when I explained how I was getting such good results. They all agree unofficially that they are doing all diabetics, including T1s a major disservice by telling them to eat so many carbs. Whether through insulin resistance or organ failure, we can’t process them without medical intervention, and that intervention isn’t nearly good enough to do the job. But it’s the government line, so they have to promote it.


Tl;dr - carbs and lots of insulin work for some T1s, but it doesn’t work for me :rolleyes:
@Mel dCP That was very interesting but so much hard work you have had to put into it. I'm really happy you have sorted yours out as most in here seems to have. This eat well plate really is a nightmare for all diabetic's it seems. I am happy i never went that way as i knew about low carb a long time before diagnose. Thanks a lot for taking the time to post all that to me. I have a niece and nephew that are type1 but never really had the chance to ask about it way back then. Shame really because it seems almost like it was taboo though i never really thought along those lines it just wasn't talked about. To me i feel that support is really important with this condition for both types but type1 seems to me the hardest and may i add you are all so strong it's inspirational. Thanks.
 
The answer to that is really a yes no one.

It is like a lot of things, yes we can eat most things but all things in moderation.

Insulin will cover, but you have to calculate for it and even then we can get it wrong espically if eating fatty slow digesting foods like curry, Chinese, pasta etc.

I think, some T1D gain weight before they are diagnosed because of the excess amount of sugar floating so the body will metabilise the stuff and store it as fat (I think thats how it works) but generally start to lose it once there on insulin and regain control of their BSL and also alter their diet.

And just to throw a spanner in the works, and no doubt upset some, I do eat anything. I survived the 70, 80 and 90's boil in the bag fish, £1 cottage pie etc. Now a days I do, with the help of Mrs K, watch what I eat simply because as I get older my metabolism is changing and my appetite is not as it was some 30+ years ago :)

On a side note I had a sausage casorole last night with couscous and green veg type things worked out the carbs and inject 2 units :eek: That has to be the least amount of insulin I have EVER injected for an evening meal and stayed in the 6s all night woke with a 7.3.
@Knikki thanks for the reply, it's all so interesting to me.
 
Hi @Moggely, I view it as a balance between food, insulin and weight (with exercise and stress on the sidelines making a nuisance of themselves sometimes). The more food, the more insulin is required to help the lid on BSLs.
So yes you can put on weight with insulin, and I have noticed that the mix insulins (ratio mixtures of say 30:70, 50:50 etc of short- and long-acting insulin in the one ampoule/pen) are more problematic weight-wise than others.
So right diet, right insulin, right doses doses with best BSLs and normal weight is the ideal - a real juggler's tale to be sure.
@kitedoc Thanks for that information and replying to my post. So much you guys have to think about with the mixing and matching your medications. All have you have done so well with a condition that you can never have a day off with. Thanks again.
 
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