• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

Type 1'stars R Us

porl69 said:
Its so annoying when you are doing loads to keep yourself in good control and then youir DSN tells you that! I dont know what to suggest to you sorry.
I am due to see a pump consultant on the 23rd October and in a similar situation. I am hypo unaware, very hypo unaware. I have just bought the MiaoMiao so that i get alarms when by BG is dropping low. So now I am in a dilemma....do I tell the pump Dr I have the MM and get alarms when my bloods are going low OR do I keep quiet and not say a word!?.....I think I am going to sat quiet :)
Click to expand...

Luckily I am still pretty hypo aware, so that may knock a few points of the criteria for me. I think for yourself I would keep quiet about the MM, as being hypo unaware is, IMHO more likely to help you fit into the criteria for a pump.

Good luck for 23rd lets us know how you get on when time comes.

Likewise I am due on 30 October for my appointment and will keep you updated
 
smc4761 said:
If ever I need advice on my diabetes I usually come to you guys. You are all so knowledgeable and have, "real life experience" of diabetes

So, I have an appointment with consultant at pump clinic to see if i will be a suitable candidate for a pump. I have been diabetic for 37 years and i am gradually running out good sites to inject. That and I experience dawn phenomenon on a fairly regular basis.

I was at hospital yesterday for my annual foot check and bumped into the DSN, who is very good and knowledgeable. She was asking how i was getting on, with Libre and diabetes in general. I explained my control was much better and i was now more confident about taking correction doses. I explained that if i see my dawn phenomenon coming I get up and take a correction dose. She was not impressed at all and said i should leave it till I get up and take correction dose with my breakfast. I should not be taking correction dose overnight.

I explained i was confident in doing this. her counter argument and i can see her point is. Pumps are like gold dust in our health area. If i keep taking correction doses and making my control better this could impact negatively on meeting criteria for a pump. After all if my control is good on MDI, they may prioritise others who do not have such good control.

So any thoughts, should i take a step back for a few weeks and not correct for my dawn phenomenon
Click to expand...
This is a really tricky question. You're obviously motivated because of the recent improvements you've made, but as you say, that could count against you in terms of one of the criteria NICE uses. The other, about hypos, refers to "disabling hypoglycaemia" which it then defines as "the repeated and unpredictable occurrence of hypoglycaemia that results in persistent anxiety about recurrence and is associated with a significant adverse effect on quality of life". Your recent unexpected hypo experience should add weight to this aspect, as, if I remember right, this has only occurred since you've been working so hard on getting your levels down. The argument you could make there would be that fear of repeating that kind of hypo is deterring you from continuing to aim for lower levels using MDI.
As you say, it's really hard to know how to play it for the best and hideous that there's a game to be played at all with something so incredibly important. Good luck with whatever you decide
 
Been to see consultant today as ive been having a fair few hypos a couple of them took 2 hours to raise bloods back up and when i say i had ate everything in sight to raise them it is not an understatement was expecting bgs to sky rocket but no only raised to around 8 when by rights they should of been about 28 the amount of food and drink id consumed any way checked injection sites they are all fine showed him my basal results they are all fine he said maybe got a bit of insulin of my own floating round and has said to drop my bolus half a unit to see how that goes .has anybody else had this problem was quite scary at the time
 
helensaramay said:
Do you do your night time (or any time) corrections form your Libre?
I don't find mine accurate enough and would feel I risk seriously over dosing.
I do take a Libre reading if I wake (and wearing a Libre :)) and use this to determine whether I need to finger prick and then correct from that. It is a bit more faffy but I feel if I am going to wake myself up enough to do a correction dose, I may as well make it as accurate as possible correction.
Click to expand...

Hi Helen, I do a correction based on my Libre however I have found the Libre I have been using to be fairly accurate. I would only correct if I went above 8 and even then only take enough to bring me down to around 6.

Most corrections I have taken have been around the 9+ mark
 
porl69 said:
Good morning. A strange night with alerts going off a LOT! Just found out I can turn them off for a set time lol. Woke to a 7.6 on MM, 7.5 on Librelink and 7.3 on BG :). Had a 2 unit correction for an 11 during the night (alarm woke me, glad it didn't wake the misses). Now on a 9.9 and slow rise, so a 2 unit correction dose.
Click to expand...

Welcome to the world of xDrip now days I only have the alarms on if I think there may be an issue because like your hey were going off a lot, so I switch them off now because I want my beauty sleep.

Saying that there have a been a couple of time when looking at the overnight Etch A Sketch where I wish I had left them on.

Hindsight is sometime wonderful :)
 
Cumberland said:
Good morning friends
Sunny up here and having a drive to Keswick

There’s a fantastic chippy there so that’s where we’re going for dinner

Have a good day peeps
Click to expand...

Ooh which chippy? Was there 3 weeks ago and had fish and chips from the one on the Main Street.
 
karen8967 said:
Been to see consultant today as ive been having a fair few hypos a couple of them took 2 hours to raise bloods back up and when i say i had ate everything in sight to raise them it is not an understatement was expecting bgs to sky rocket but no only raised to around 8 when by rights they should of been about 28 the amount of food and drink id consumed any way checked injection sites they are all fine showed him my basal results they are all fine he said maybe got a bit of insulin of my own floating round and has said to drop my bolus half a unit to see how that goes .has anybody else had this problem was quite scary at the time
Click to expand...

HMMM I have sometime had that where it has taken a while to come back up, and can't really put it down to anything, I tend to find that situation "inconvenient" and put it down to "just one of the great things about being T1D" :)

Yeah I know not much help, but it is just how I deal with things like that.
 
Knikki said:
HMMM I have sometime had that where it has taken a while to come back up, and can't really put it down to anything, I tend to find that situation "inconvenient" and put it down to "just one of the great things about being T1D" :)

Yeah I know not much help, but it is just how I deal with things like that.
Click to expand...
Agree with you on that
 
Fairygodmother said:
I picked up the latest Libre order from Superdrug yesterday: now £42 and next month will be £49.
Where do the rest of you who’ve not been given scripts get yours?
Another postcode lottery in this too, but why, when we all contribute equally are we not treated equally? (Yes, I know, some pigs etc etc, please resurrect Snowball.)
Click to expand...

Made a deal with my local chemist where I pick up my prescriptions. It is in my village. £45. He even made a note of it on the system so if he’s not there others will know. Never have to order them, he just has them on the shelf. Decided to remain with him when others were saying how cheap they were elsewhere. Glad I did.
 
Knikki said:
HMMM I have sometime had that where it has taken a while to come back up, and can't really put it down to anything, I tend to find that situation "inconvenient" and put it down to "just one of the great things about being T1D" :)

Yeah I know not much help, but it is just how I deal with things like that.
Click to expand...
Makes me feel better knowing im not the only one im not really a panicker and do tend to just get on with things it was just a bit scarey at the time i think hubby made me worse when he told me to lie on the couch and did i want him to get my insulin you can imagine what my reply was thanks knikki
 
karen8967 said:
Been to see consultant today as ive been having a fair few hypos a couple of them took 2 hours to raise bloods back up and when i say i had ate everything in sight to raise them it is not an understatement was expecting bgs to sky rocket but no only raised to around 8 when by rights they should of been about 28 the amount of food and drink id consumed any way checked injection sites they are all fine showed him my basal results they are all fine he said maybe got a bit of insulin of my own floating round and has said to drop my bolus half a unit to see how that goes .has anybody else had this problem was quite scary at the time
Click to expand...

Had this last week after weeks of stability. Felt washed out afterwards. Have in the past fortnight dropped my basal by 4 units in 1 unit increments every few days. Am nearly 5 years into this disease but am convinced that every so often my pancreas kicks out its own supply. Then just as quickly it puts up the white flag and runs away.
Have gone from 11 units to 7 basal and with my breakfast have dropped from 3 units bolus to 1 with my 10 carb breakfast. Go figure!
 
becca59 said:
Had this last week after weeks of stability. Felt washed out afterwards. Have in the past fortnight dropped my basal by 4 units in 1 unit increments every few days. Am nearly 5 years into this disease but am convinced that every so often my pancreas kicks out its own supply. Then just as quickly it puts up the white flag and runs away.
Have gone from 11 units to 7 basal and with my breakfast have dropped from 3 units bolus to 1 with my 10 carb breakfast. Go figure!
Click to expand...
Im very sensitive to insulin becca tried dropping basal by half a unit and bgs were sky high my carb ratio is 1 : 10 ive had this just over 18 months and your right it does wipe you
 
karen8967 said:
Makes me feel better knowing im not the only one im not really a panicker and do tend to just get on with things it was just a bit scarey at the time i think hubby made me worse when he told me to lie on the couch and did i want him to get my insulin you can imagine what my reply was thanks knikki
Click to expand...


Oooh that is a horrible situation Karen and I can totally relate to. My really bad hypo from 2 weeks ago, I woke up to LO, downed 2 x 500 ml bottles of coke, had numerous biscuits, toast laden with honey, chocolates, water with spoonfuls of sugar. I just downloaded my Libbre data from this and between 2.00 am and 4 am my bg went from 2.1 to 2.5. I have never experienced anything like that before. Luckily I was at my cousins home who just happens to be a paramedic and knew what to do.

I woke up again at 6 am and finally my BG went through the roof, as it should have done to over 20
 
I was pleased with my local surgery yesterday sorting my script so quickly, and whilst there I enquired if they'd look at my records to see what date in October '84 I was diagnosed, they said they'd ring today, which they did to tell me May 1990 which isn't right, so my question is, how will I find out and how will I have my GPs update their records?
 
becca59 said:
Made a deal with my local chemist where I pick up my prescriptions. It is in my village. £45. He even made a note of it on the system so if he’s not there others will know. Never have to order them, he just has them on the shelf. Decided to remain with him when others were saying how cheap they were elsewhere. Glad I did.
Click to expand...

I had a search around the town today and Asda are doing them for £44 so I’m going to try to cancel the Superdrug order for next month and move to Asda.
 
smc4761 said:
Oooh that is a horrible situation Karen and I can totally relate to. My really bad hypo from 2 weeks ago, I woke up to LO, downed 2 x 500 ml bottles of coke, had numerous biscuits, toast laden with honey, chocolates, water with spoonfuls of sugar. I just downloaded my Libbre data from this and between 2.00 am and 4 am my bg went from 2.1 to 2.5. I have never experienced anything like that before. Luckily I was at my cousins home who just happens to be a paramedic and knew what to do.

I woke up again at 6 am and finally my BG went through the roof, as it should have done to over 20
Click to expand...
I was checking with fingerpri ks as well as libre as i dont trust libre when it says lo me fingers are sore though these things are sent to try us glad your ok now
 
Back
Top