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Type 2 and HIV.....

willhove

Newbie
Messages
4
Type of diabetes
Treatment type
Non-insulin injectable medication (incretin mimetics)
anyone else in this situation? Would love to hear from you as I would like to share experiences as online
there's nothing to be found.

Willhove
 
I seem to remember someone asking a question about HIV some time ago, but I have no clue how to find it again, as the search bar doesn't do short words. Not even completely sure it was on this forum and not in some facebook group.

I'll tag some random members/moderators who are online here a lot, maybe someone remembers. I'll tag @daisy1 as well for her excellent info sheet about diabetes. Might be you already know all this but it might be helpful as well :)

@Juicyj , @DCUKMod , @Mel dCP , @bulkbiker , @kitedoc , @archersuz , any of you remember this possibly non existing post?

I hope you'll find someone, @willhove , all the best with juggling two conditions that both need a lot of work.

(can it be you somehow have a double account?)
 
Hi @willhove
I have no personal experience of the HIV part although as a gay man with Type 2 I can help with that bit. I think that the thread @Antje77 is thinking of was a young gay Type 1 who was asking about PrEP and insulin without much luck. It seems that is a very small population indeed.
 
Hi @willhove - @bulkbiker beat me to it in commenting about the young man interested in a potentially preventative therapy.
 
My turn for a blank mind - one of our members used to be a HCP working with HIV patients. Now I just need to work out who it is...
 
Ha! Got there in the end... @rosco 2 ex-HIV specialist nurse. May be able to point you in the right direction.
 
Hello. I was a specialist nurse for HIV, now a retired woman with time to spend on sites such as these! Is there something I can help or support? I am no longer a registered nurse btw...gave up my registration several years ago bit that is not = to losing my marbles
 
F’ing predictive text. Bit = but. Nurses swear you know. Sometimes. In my case pretty often. Interestingly, I cannot remember anyone in our care who was HIV and diabetic. I was an east end of London bunny and a majority of our caseloads were either gay guys or African women...refugees from violence / disaster.
 
@willhove

Hello and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you want and someone will help.

BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
Welcome here Willhove hope you’ll stay here it is a great forum for advice on many aspects of diabetes and adding diseases , surely some of the conditions must be a bit similar to what a person with HIV is experiencing ... like controlling diabetes strict enough to not get infections at all , the low or very low carb can help a lot there
 
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