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Type 2 and PCOS and Metabolic Syndrome, Oh My!

Discussion in 'Other Health Conditions and Diabetes' started by BeccaJaneStClair, May 23, 2013.

  1. BeccaJaneStClair

    BeccaJaneStClair · Well-Known Member

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    What the topic says.

    I am feeling super overwhelmed right now and it's like I haven't had any time to process anything, either as it's been a very busy few months for us between visitors, planned weekends away, my chorus competition, my husband's father breaking his hip, losing two of my family members within 2 weeks of each other.....oh, it's been a nightmare. My food habits have suffered hard, too.

    But anyway.

    I have been trying to get a definite PCOS diagnosis out of my GP for over a year - in fact, it was last year while going through some of the blood tests that the diabetes was found which halted other tests for 12 months. I finally was referred to a Gynaecologist at the hospital, and all he would talk about was IVF. Ok, maybe this part belongs under the pregnancy header and not here, so I do apologize. I do not want IVF unless it's a last resort. I want to work out why my body isn't ovulating and see what can be done to fix that before resorting to IVF. The Gynae didn't seem to care, but sent me off for an HSG and ultrasounds.

    The first ultrasound was horrible. The TV one was painful (even with valium!) and the tech stopped without me telling her to and wrote in the letter to my GP that it was stopped due to patient discomfort. My left ovary was deemed okay, but my right ovary "couldn't be seen". Then, I had the HSG...which left me screaming (literally!) on the table. My husband and a nurse waiting with him outside actually wanted to bust the door down I was screaming so loudly. But, it got done and the upside was no blockages.

    I went in to see my regular GP (male) and he basically told me those results but there was nothing else he could do other than schedule me to see the Gynae again. He also told me that I would be no longer diabetic if my next HBA came back normal. This did not sit well with me at all. A few weeks later, I had a nurse appointment for a blood draw. The nurse asked me how I was doing and I burst into tears. Between her and one of the other nurses (actually, my diabetic nurse) they got the whole story out of me, and suggested I make appointments to see one of the female GPs at the practice who would be a bit more sympathetic to my situation. So I made the appointment.

    Female GP referred me for another TV ultrasound. This took ages to get scheduled (since it was no longer escalated) but when it happened I explained to the (different) tech the problem with the last one and she decided to only do the TV one and just get it done with. I told her no matter how much it hurt to just keep going because I absolutely needed images of my right ovary.

    And guess what? Ring of pearls.

    Meanwhile, my Hidridenitis Supporotiva flared up so I made an appointment and had it with the other female GP at my surgery. She took one look at my history and told me I had Metabolic Syndrome and she was shocked that my regular GP hadn't twigged on that yet. The way to treat Metabolic Syndrome is apparently Metformin, so I'm now on Metformin with a checkup in one month where I will be weighed to see if I've lost any weight.

    Even odder is that the GP I am now seeing thinks the Type 2 was a misdiagnosis and it was always PCOS. Really? So....a year could have been avoided AND I could have saved the NHS from sending me to all those diabetic specialists if my original GP had just carried on with testing me for PCOS? ARGH!! (though for now, she is still calling me Type 2 or at the very least, pre diabetic as it DOES run in my family, so it's inevitable at some point)
     
  2. Silvermagic

    Silvermagic Type 2 · Member

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    Hi, I'm a noob so I'm hoping its OK to say this.

    My daughter has/had PCOS and Metabolic Syndrome. She saw a gynaecologist who sent her to an endocrinologist. They told her she was infertile and the only hope of conception would be through IVF. She was put on a high dose of Metformin.

    She and her partner stopped being careful with contraception and she became pregnant within 18 months. Her GP wouldn't believe it and when he ascertained that she really was pregnant, he was so surprised that he filled out one of those yellow medication notification cards. She now has a gorgeous baby.

    Seeing the endocrinologist was the best thing that ever happened to her. It was a 'tertiary referral', ie from a Consultant to a Consultant.

    I hope things are going better for you now.
     
  3. Hameedah

    Hameedah Type 2 · Newbie

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    Hi, am new here I was diagnosed with polycystic ovarian syndrome (pcos) since I was 16 and I have Type 2 diabetes and I weigh 103kg am 23 years old now , lossing weight has been my problem , it kills me emotionally , am 23 bt I look 35 coz of my weight. Am scared . I need help . Thanks
     
  4. Indy51

    Indy51 Type 2 · Expert

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  5. Nimacado

    Nimacado · Active Member

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    I too have Type 2 and have had PCOS for about 20 years. My youngest daughter (18) has had HS for about 5 years. It's an awful, debilitating condition. Do you think there's some link between these conditions???


    Sent from the Diabetes Forum App
     
  6. Nimacado

    Nimacado · Active Member

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    I ordered the book today - I really hope it offers hope to my daughter xx


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  7. Indy51

    Indy51 Type 2 · Expert

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    I really hope it does. More and more the evidence is pointing to nutrition/food in relation to autoimmune disorders, particularly wheat. Hope your daughter finds it useful. HS sounds likes an absolutely ghastly disorder to have :(
     
  8. Nimacado

    Nimacado · Active Member

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    It's awful, I feel so desperately inadequate - Mums are supposed to be able to make everything better. I hope this Mother's Day I've stumbled across something that will change her life!


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  9. Karen.G.

    Karen.G. Type 2 · Well-Known Member

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    I feel for you. I was diagnosed with PCOS in 1997, hubby didn't want IVF so the hospital didn't want to know. Was told I was infertile and would never have kids and unfortunately I haven't. Never had any tests done since, so god knows what condition my ovaries are in now! I was diagnosed with Type 2 diabetes in 1998 - since then I have retinopathy and as of yesterday neuropathy. I've never actually heard of metabolic syndrome.

    I hope now that you've had a proper diagnosis you will be treated accordingly and get the help you need.
     
  10. Indy51

    Indy51 Type 2 · Expert

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  11. Nyxks

    Nyxks Type 1 · Well-Known Member

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    Been living with PCOS since around age 13 was told I was going to be infertile (didn't bother me then and still doesn't now I'm post menapausal). Got diagnosed with Diabetes when I was 26 after seeing a gyn for some some vaginal bleeding that wouldn't stop (took 5 years to get it stopped forever). While seeing her she noticed that my pcp hasn't dun anything about my ever increasing a1c needless to say 5 days after christmas in 2003 I got the news then started the roller coaster ride of saying no I don't have it, etc till it caught up to me and I couldn't ignore it any longer (honeymoon phase had ended).
     
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