Type 2 diabetic with major gut problems and my GP won't even see me

[Pipp]

How are you, now, @akindrat18

 

[akindrat18]

How are you, now, @akindrat18

I was doing okay for a week or so, until I went back into work today. Then my routine all fell apart as I wasn't able to cook myself any breakfast this morning as the power was off in the street. I ended up going to a Wright Pies van that comes to our office every morning and have some bacon and cheese oatcakes along with a chicken and bacon mayo wrap for lunch.

I couldn't tell what my blood sugar was this morning as from the same finger prick site, I had 5 different test results; 19.3, 15.4, 18.4, 12.5 and 12.2.

At 1:30pm, I started to feel dizzy and tired at my desk and had some chocolate as I thought I was having a hypo. Turns out my blood sugar was at 8.2. I then contacted my DN about the situation that i had who I'm yet to still hear from.

I'm on my last pot of 25 strips, until I get my prescription on 1st December and I'm still trying to find a pharmacy that has Ozempic stocked as I've ran out and every pharmacy that I've been too is all out of stock.

 

[AndBreathe]

I was doing okay for a week or so, until I went back into work today. Then my routine all fell apart as I wasn't able to cook myself any breakfast this morning as the power was off in the street. I ended up going to a Wright Pies van that comes to our office every morning and have some bacon and cheese oatcakes along with a chicken and bacon mayo wrap for lunch.

I couldn't tell what my blood sugar was this morning as from the same finger prick site, I had 5 different test results; 19.3, 15.4, 18.4, 12.5 and 12.2.

At 1:30pm, I started to feel dizzy and tired at my desk and had some chocolate as I thought I was having a hypo. Turns out my blood sugar was at 8.2. I then contacted my DN about the situation that i had who I'm yet to still hear from.

I'm on my last pot of 25 strips, until I get my prescription on 1st December and I'm still trying to find a pharmacy that has Ozempic stocked as I've ran out and every pharmacy that I've been too is all out of stock.

Can you put in a request for an extra prescription, bearing in mind the issues you are having?

If Ozempic is widely unavailable at the moment, I think you need to ask your GP to prescribe you something until it is. Even if the infill meds aren't ideal, they could very well be better than losing the full impact of your Ozempic.

 

[Pipp]

Ah, @akindrat18
I believe Ozempic is in demand, as a weighloss aid and can be bought without prescription. People who do not have diabetes are using it for weightloss, even though it is designed to be used by people with diabetes.

You would be able to receive more accurate advice and information from members here if your profile included the medication you are on. Although we can’t make diagnosis or advise on altering meds, it could be that the foods you are eating are those that should be avoided when taking Ozempic. Have a read of this…

What foods to avoid while taking Ozempic

Ozempic is a medication used to treat type 2 diabetes and consuming some types of foods may contribute to raising your blood sugar levels. While there are

www.nicerx.com

So, perhaps tweek your diet if you are continuing with the Ozempic?
Also, most surgeries now ask you to specify a pharmacy for prescriptions to be sent to. Your chosen pharmacy can then prioritise stocks for your regular prescriptions.

 

[akindrat18]

Can you put in a request for an extra prescription, bearing in mind the issues you are having?

If Ozempic is widely unavailable at the moment, I think you need to ask your GP to prescribe you something until it is. Even if the infill meds aren't ideal, they could very well be better than losing the full impact of your Ozempic.

I've put a request in on the NHS app, but I've heard nothing back yet from my GP.

Ah, @akindrat18
I believe Ozempic is in demand, as a weighloss aid and can be bought without prescription. People who do not have diabetes are using it for weightloss, even though it is designed to be used by people with diabetes.

You would be able to receive more accurate advice and information from members here if your profile included the medication you are on. Although we can’t make diagnosis or advise on altering meds, it could be that the foods you are eating are those that should be avoided when taking Ozempic. Have a read of this…

What foods to avoid while taking Ozempic

Ozempic is a medication used to treat type 2 diabetes and consuming some types of foods may contribute to raising your blood sugar levels. While there are

www.nicerx.com

So, perhaps tweek your diet if you are continuing with the Ozempic?
Also, most surgeries now ask you to specify a pharmacy for prescriptions to be sent to. Your chosen pharmacy can then prioritise stocks for your regular prescriptions.

I usually order my own on the NHS app, but with Ozempic being prescribed by the hospital, I have to be sent a prescription through the post every time.

I will also take a read of the website as I was put on Ozempic in February, but didn't get told about what not to eat.

 

[AndBreathe]

I've put a request in on the NHS app, but I've heard nothing back yet from my GP.


I usually order my own on the NHS app, but with Ozempic being prescribed by the hospital, I have to be sent a prescription through the post every time.

I will also take a read of the website as I was put on Ozempic in February, but didn't get told about what not to eat.

In that case, it may well be you have to call your Consultant's secretary if he/she is prescribing it. Have you tried your hospital's pharmacy? I sometimes wonder if they have priority of meds (although I absolutely don't know it).

 

[Pipp]

It should be possible to get the consultant to advise the GP to have it on your regular GP prescription list. That would save a lot of work for the HCPs , and ensure you could depend on a named pharmacy to maintain continuity of supply for you, @akindrat18 .
Hope youcan get it sorted soon, and are feeling better.

 

[Cropmeister]

Hello, it's been a while since I was last on here. I've been experiencing over the past few months problems with diarrhoea and abdominal pain in the left side of my tummy after I've eaten a meal. I've been in A&E four times now with the problem as the pain has been so excruciating some times. I've tried getting an appointment with my GP and I did yesterday, only to be turned around and be told "you've been seen at the hospital and referred to a Gastro consultant, why you come?"

I am Type 2 diabetic and I take fixed doses of Novorapid (54) and Tresiba (88) as well as Metformin (SR), Carvediol, Spironolactone and Tostran gel.

The abdominal pain and diarrhoea suddenly comes on after I've eaten a meal. I've been prescribed cocodamol and loperamide since Monday and it's helped until tonight, where I've opened up my bowels 10 times and counting. It's been affecting me at work several times now and I just want it to stop.

I've even thought about doing intermittent fasting whilst I'm at work, so that there is nothing in my system to digest, since my doctors won't see me for the problem.

Hi. It seems obvious to me now. I suffered the same symptoms. I was diagnosed with IBS and type 2 diabetes! To cut a 19 year story short, I actually have type 3c diabetes and chronic pancreatitis. The good news is that your digestive issues can be treated with a drug called Creon. It was a miracle for me. My "IBS" went away overnight. You need to get your doc onboard with this ASAP. It took a lot of persistence, but a scan revealed all eventually. Good luck!!

 

[Antje77]

The good news is that your digestive issues can be treated with a drug called Creon.

While this is worth looking into, creon only helps if you actually are a type 3C of have pancreatic insufficiency for some other reasons.
Very happy they found the cause and the right treatment for you!

But if your pancreas is working (like in most T1's and T2's), creon won't help with digestive issues because the pancreas will simply produce those enzymes.

 

[Cropmeister]

While this is worth looking into, creon only helps if you actually are a type 3C of have pancreatic insufficiency for some other reasons.
Very happy they found the cause and the right treatment for you!

But if your pancreas is working (like in most T1's and T2's), creon won't help with digestive issues because the pancreas will simply produce those enzymes.

Well, T1 and T2 diabetes dont cause digestive problems. It was this kind of thinking that caused me to be misdiagnosed for so long.
The digestive problems started in 1995 when I was told I had IBS. Then I got numbness in my left foot and was diagnosed with a trapped nerve. In 2000 I was diagnosed with type 2 diabetes. It took till 2014 to find I had type 3c diabetes and pancreatitis. Because it is rare, it isn't the first thought for GPs.
I now have permanent neuropathy because my treatment was delayed.

You would think the combination of digestive, nerve problems and diabetes would be good cause to check it out!

 

[letsgo182]

I heard metaformin can cause this if not taken with food. Guessing you have ruled that out?

 

[Cropmeister]

I was prescribed with metformin, but it did nothing for my blood glucose levels and made me feel bloated all the time.

 

[Daphne917]

I've put a request in on the NHS app, but I've heard nothing back yet from my GP.


I usually order my own on the NHS app, but with Ozempic being prescribed by the hospital, I have to be sent a prescription through the post every time.

I will also take a read of the website as I was put on Ozempic in February, but didn't get told about what not to eat.

Hi @akindrat18 could you not request that the GP does it. My husband is under various consultants but they instruct the GP what to prescribe who adds them to his prescription.

 

[akindrat18]

My gut problems have struck again. I was up on Wednesday from 11pm to 3am on Thursday with abdominal pain and diarrhoea that was black, sticky and tar. I decided to take my self up A&E, only for them to say that they can't find nothing wrong with my blood tests or ct scan of my abdomen. Since then I've had two more episodes; one on Friday evening whilst shopping and the other this morning, after having some scrambled eggs and bacon at Wetherspoons.

My blood sugars have been well controlled since the New Year.
My averages now are:

Mornings - 7.6 to 10.2
Afternoons - 5.2 to 8.9
Evenings - 6.1 to 8 4
Nights - 7.3 to 9.1

I am still waiting for the hospital to get back to me with my blood test results from December concerning if I am positive for Coeliac Disease.

 

[Antje77]

My blood sugars have been well controlled since the New Year.
My averages now are:

Mornings - 7.6 to 10.2
Afternoons - 5.2 to 8.9
Evenings - 6.1 to 8 4
Nights - 7.3 to 9.1

That's brilliant, well done!

only for them to say that they can't find nothing wrong with my blood tests or ct scan of my abdomen.

Have they taken a stool sample as well?

 

[akindrat18]

That's brilliant, well done!

Have they taken a stool sample as well?

They have and still waiting on a result

 

[Grant_Vicat]

Just a thought. High blood sugar readings can also cause diarrhoea and sharp pain. If you are able to bring your levels down I wonder whether you might notice a huge difference? Best of luck.

 

[Grant_Vicat]

Just a thought. High blood sugar readings can also cause diarrhoea and sharp pain. If you are able to bring your levels down I wonder whether you might notice a huge difference? Best of luck.

Sorry, several of the above posts did not appear on my screen until after I had written the above.

 

[akindrat18]

My parents think that it could be IBS and my sister has advised me to go get some gut health supplements.

 

[akindrat18]

Well, I think I may have found one of my triggers for diarrhoea and abdominal pain. Currently sitting on the toilet after having a small portion of spaghetti bolognese.