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Type 2 Insulin dependent - So Frustrated!

Discussion in 'Type 2 Diabetes' started by debzg, Aug 7, 2013.

  1. debzg

    debzg · Member

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    Hello,

    I have had type 2 for approximately 6 years and been insulin dependent for 4 of those. I was very large when diagnosed, and then lost 10 stone before I was placed on insulin as despite losing the weight, I was still insulin resistant and had no level of control, despite being told that if I lost weight I would have better control.

    So, now I am on insulin (Levemir and Novorapid) and have put on 4 of the 10 stone back on. My control is still iffy, every 4 months or so I end up with an infection that sends my sugars sky high (this time it was a water infection and I am just starting to feel better after 3 weeks and a visit to A&E) and I get signed off work because the hyperglycemia makes me feel so rotten.

    I am also not 100% certain that I have type 2 diabetes as there was previously some doubt with my GP, but this was never followed up and also it runs in my family. I would like to find out for certain (if this is possible) and also find out if pump therapy would be an option for me given that I am currently on what feels like stupid amounts of insulin - 120 Levemir x 2 daily and 100 units of Novorapid at each meal and sugars are still erratic.

    I am seeing the diabetic nurse tomorrow, but I am kind of at a turning point now where I need to get this sorted out. It is not doing anything for my health, work and life in general. I am honestly feeling like I am at the end of my tether as it feels as though nothing I do works and allows the diabetes to be under control, and I can't afford any more time off work.

    So in addition to my insulin I am on 1g of Metformin x2 daily. I have already tried Byetta, Bydureon and Victozia with little success. I was also tried on Novomix before the Basal Bolus regime and prior to being on insulin, they tried various oral meds but these didn't help either.

    I don't want to come across as feeling sorry for myself but I just want to get this under control and start losing the weight again. But it always seems I am either too ill or too tired to contemplate doing any exercise and I think this is the key for my weight loss and control. Just feels like a vicious circle sometimes. :(
     
  2. dawnmc

    dawnmc Type 2 · Well-Known Member

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    How's your diet? Are you carb counting? A good book to get is Dr Bernstein's Diabetes Solution.
     
  3. phoenix

    phoenix Type 1 · Expert

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    Hi, I'm sorry that you are finding things difficult at the moment.
    I can answer your question about pumps but I am a T1 on insulin.
    Unfortunately, It could be extremely difficult to get a pump in the UK. The NICE guidelines say that pump therapy isn't recommended in T2 (basically there is very little research)so it's very difficult to get funding. In 2008 there were apparently 35 people with T2 on pumps in the UK compared with 5,667 T1s and some of those may have been self funded.
    There are a few consultants that will consider it. Using a pump can reduce insulin requirements in some people. However, going by your present doses, you would have to fill the reservoir twice a day since they only hold a max 300U. Some people use a stronger insulin (U500) which gets over this problem. This is only available on a named patient basis in the UK
    If you wanted to explore this further then you'd have to be seen by a specialist diabetologist/
    More on pumps in the UK and T2 here (they are worth contacting if you want up to date info)
    http://www.inputdiabetes.org.uk/type-2-diabetes/

    What could help is to learn about how to use insulin, you might like to look at this book
    http://www.amazon.co.uk/Think-Like-Panc ... 0738215147
     
  4. paul-1976

    paul-1976 Type 2 · Well-Known Member

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  5. Daibell

    Daibell LADA · Master

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    Hi. You don't say any thing about your diet. Am I right in guessing you could do better on this front? Yes, your insulin units are way over the top and a serious low-carb diet is the only way to try to get this and your weight down. Go for less than 150gm/day of carbs. Can you give us any idea of a typical day's meals?
     
  6. Unbeliever

    Unbeliever · Well-Known Member

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    hi, you say you are to see he Nurse. have you ever been seen by a specialist Diabeologist/ Poenix menions his would be necessary for a pump but it migh help in any event paricularly if you have doubts about your diaggnosis.
     
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