1. This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies. Learn More.
  2. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  3. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2019 »
    Dismiss Notice
  4. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Type 3c - how many are we?

Discussion in 'Type 3c (Pancreatic) Diabetes' started by mrspuddleduck, Nov 26, 2015.

  1. mrspuddleduck

    mrspuddleduck · Guest

    As type 3c is a rare form of diabetes, and as we now have our own sub-forum, I'm curious to know how many of us are accessing the forum! So are you a member of the 3c club?? Sue xx
     
    • Like Like x 2
    • Agree Agree x 1
  2. PatsyB

    PatsyB Type 2 · Well-Known Member

    Messages:
    2,617
    Likes Received:
    12,627
    Trophy Points:
    198
    never heard of 3c diabetes... now I got to look and see what it is :)
     
    • Like Like x 6
    • Agree Agree x 1
  3. ChristinaUK

    ChristinaUK · Newbie

    Messages:
    2
    Likes Received:
    2
    Trophy Points:
    23
    I'm type 3 because I stopped producing insulin after pancreatitis so I guess I'm in. Was type 2 before.
     
    • Like Like x 2
  4. jamesfitz

    jamesfitz Type 1 · Well-Known Member

    Messages:
    106
    Likes Received:
    47
    Trophy Points:
    68
  5. PatsyB

    PatsyB Type 2 · Well-Known Member

    Messages:
    2,617
    Likes Received:
    12,627
    Trophy Points:
    198
    always thought there was only two types of Diabetes ...we live and learn :)
     
    • Like Like x 2
    • Agree Agree x 2
    • Funny Funny x 1
  6. eddie1968

    eddie1968 Type 2 · Well-Known Member

    Messages:
    3,673
    Likes Received:
    21,181
    Trophy Points:
    178
    Never really heard of it until now. I will try and educate myself about this rare type of diabetes. Mmm, interesting.
     
    • Like Like x 2
  7. mrspuddleduck

    mrspuddleduck · Guest

    I must admit I think I should write a 'what is type 3c intro to this sub forum, I will try and get around to it in the next few days! Apologies! :)
    (Unless you fancy having a go @Shar67 ??!)
    Sue xxx
     
    • Like Like x 3
  8. Shar67

    Shar67 · Guest

    Pancreatogenic diabetes is classified by the World Health Organization as type 3c diabetes mellitus (T3cDM) and refers to diabetes due to impairment in pancreatic endocrine function related to pancreatic exocrine damage due to acute, relapsing and chronic pancreatitis (of any etiology), cystic fibrosis, hemochromatosis, pancreatic cancer, and pancreatectomy, and as well rare causes such as neonatal diabetes due to pancreatic agenesis (1). Prevalence data on T3cDM are scarce because of insufficient research in this area and challenges with accurate diabetes classification in clinical practice.

    In ordinary terms, damage to pancreas through, accident, illness, operation or genetic disposition, we are often misdiagnosed as type 1 as we are insulin dependant, we can go hypo/hyper for no reason.
     
    • Like Like x 7
    • Agree Agree x 2
  9. eddie1968

    eddie1968 Type 2 · Well-Known Member

    Messages:
    3,673
    Likes Received:
    21,181
    Trophy Points:
    178
    I'm T2 on insulin, can any T3c diabetic tell me symptoms and diagnostic criteria?
     
    • Like Like x 1
  10. mrspuddleduck

    mrspuddleduck · Guest

    Thank you @Shar67! @eddie1968 , type 3c never occurs in isolation it is always part of a wider group of pancreatic problems that effect both the exocrine and endocrine systems due to the extensive damage (or death to the pancreas). In type 1, the beta cells are damaged/destroyed but in type 3c it is both the beta cells and the alpha cells (liver) that are involved meaning there is no 'safety net' hence the sudden rises and falls in blood sugars for no apparent reason. This is quite a good linkhttp://www.pancreapedia.org/reviews/pancreatogenic-type-3c-diabetes
     
    • Like Like x 7
  11. eddie1968

    eddie1968 Type 2 · Well-Known Member

    Messages:
    3,673
    Likes Received:
    21,181
    Trophy Points:
    178
    Thanks, will read up on this
     
    • Like Like x 2
  12. Applenerd81

    Applenerd81 Type 1 · Well-Known Member

    Messages:
    205
    Likes Received:
    133
    Trophy Points:
    83
    Hi! Assuming I'm 3c as my insulin dependant diabetes is due to a pancreatectomy at 13....???
     
  13. mrspuddleduck

    mrspuddleduck · Guest

    If it was a while ago, you may have been told you were a type 2, it appears 'we' were only called 3Cs relatively recently (which is another reason why many docs have never heard if it). Are you on the Creon regime too?
     
    #13 mrspuddleduck, Dec 7, 2015 at 11:00 PM
    Last edited: Dec 8, 2015
  14. Applenerd81

    Applenerd81 Type 1 · Well-Known Member

    Messages:
    205
    Likes Received:
    133
    Trophy Points:
    83
    I only had part of my pancreas (tail)removed so only ended up needing insulin. Was told I may need digestive supplements but was lucky enough I think!
     
    • Like Like x 1
  15. Applenerd81

    Applenerd81 Type 1 · Well-Known Member

    Messages:
    205
    Likes Received:
    133
    Trophy Points:
    83
    Out of curiosity what is Creon regime?? Google didn't help!
     
  16. mrspuddleduck

    mrspuddleduck · Guest

    Most type 3Cs have significant endocrine deficiency so can not/ or struggle with the break down of food due to the lack of pancreatic enzymes. Creon is basically pigs enzymes which replace the ones that we can't produce. In severe cases there is often mal-absorbtion which can cause additional problems with controlling the diabetes. Long term many type 3Cs are high risk of developing additional conditions related to dietry insufficiency such as osteoporosis, pernicious anaemia etc.
     
    • Like Like x 1
  17. mrspuddleduck

    mrspuddleduck · Guest

    Believe me you would know! Three weeks after I developed the exocrine insufficiency, my weight had dropped to less than 6 stone!! Seriously if you only had part of your pancreas removed, its quite likely your remaining pancreas will happily produce the enzymes you need. Don't forget I'm not a doctor so I can't diagnose but I would guess you are a type 2 at the moment. 3C diabetes never happens in isolation, there are always other pancreatic function issues evident. Many people who become diabetic due to chronic pancreatitis or partial pancreatic removal are type 2
     
    • Like Like x 2
    • Informative Informative x 1
    #17 mrspuddleduck, Dec 8, 2015 at 10:20 AM
    Last edited: Dec 8, 2015
  18. tfishuk

    tfishuk · Active Member

    Messages:
    25
    Likes Received:
    15
    Trophy Points:
    23
    I guess that I am type 3c since most of my pancreas was removed due to acute pancreatitis caused by gall stones. I take Creon with all meals also. My consultant said I was type 1.5 so I'm confused. I am of course insulin dependant and am fortunate to have an insulin pump which makes life so much easier.
     
    • Like Like x 2
  19. Emma1980

    Emma1980 Type 2 · Member

    Messages:
    14
    Likes Received:
    32
    Trophy Points:
    53
    Hiya! I was classed as not type 2 nor type 1, someone here said we are type 1.5, but I have never heard of it before it was mentioned here.... If you search type 1.5 on this forum I am sure we have something set up for us under new classifications.

    Good luck x
     
  20. Emma1980

    Emma1980 Type 2 · Member

    Messages:
    14
    Likes Received:
    32
    Trophy Points:
    53
    Hiya, your situation sounds similar to mine, type 1.5 is relatively new. I am lucky I don't need any Creon right now, but I am told my pancreatic function is diminishing rapidly (probably due to being treated as type 2 incorrectly for too long). As part of your pancreas is working still, they probably won't class you as other than type 2 (weird I know).
     
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook