I'm a new member. My story is almost identical to yours, including the 7 months in hospital, codes and complications. I'm incredibly lucky to be alive. I have found the lack of information, education and understanding incredibly frustrating. I'm on Basalgar, Fiasp and Cotazym amongst a raft of other meds. I'd love to connect with others of a similar experience.I’m a rare visitor to this forum (sorry), so hadn’t seen the T3 sub-forum before. I’ve struggled for years to properly describe my form of diabetes to medics/nurses, with so many not properly understanding the fundamental differences between T1 and T2, let alone anything else. If I start talking to them about T3, the eyes will really glaze over.
My “journey” into diabetes started with misdiagnosis/mistreatment of a gallstone. Two visits to A&E with severe abdominal pains resulted in discharge and “not heart attack; something gastric; see your GP” advice. The third time (blue lights, sirens etc.) was taken a little more seriously, but too late. I was in hospital for seven months, in intensive care for weeks and “technically” died a number of times from multiple organ failure. Major surgery to remove my gall bladder and various bits of necrotic tissue followed a while later.
In the midst of all the drama, leaking enzymes “digested” various internal structures including 96% of my pancreas and beta-cells. On hospital documentation, I’m identified as having “severe acute pancreatitis”. I no longer produce insulin or digestive enzymes, so I require injections (Novorapid and Lantus) and Creon tablets to keep things ticking over.
I’m not sure whether or not that qualifies me as a member of the T3c club.
I have been using the Freestyle Libre sensor for almost 2 yrs.This is an amazing product! I was having to strip test more than 8 times a day previously. Now I know my glucose on demand. I have paired it with the DiabetesM app and scan the sensor with my phone. I couldn't be happier with this app. It has made an incredible difference in my control.Hello ... I have Diabetes due to pancreatic failure ans had major surgery and I’m constantly put in the type 2 category .. I’m insulin dependant and doctors have struggled to treat me for yearsvery frustrating as I’m not type 2.. some doctors have even looked at books whilst seeing me .. I now have the libre sensor which is helping greatly with my control ... anyone else have this ? And how are they getting on?
Hi skoz sort of similar chronic pancreatitis type 3c diabetes 3months in hospital lost 5 stone in weight. Real problems putting on weight started to graze constantly nuts, low carb and low/ no sugar snacks made some myself recipes on line hunt them out. Don't exercise, wait till things settle down and only then light exercise eg walking only after 5 months did I start to do things around the house and most importantly stop when you start to feel weak/tired and please give your self time in October it will be a year for me and I'm not even 50% now. Look after yourself and take it easy a sedatary lifestyle is now the way of life.I'm a type 3c due to Acute Necrotizing Pancreatitis. I have been left with virtually no pancreas plus a lot of other organ damage. Among a host of other meds, I was initially prescribed Metformin. I found that it resulted in horrible diarrhea. I have since stopped using it. I question the logic of prescribing it, since my understanding is that I process insulin normally, I just dont have a pancreas to produce any. Does anyone have similar experiences with Metformin or Glicozide?
I also struggle with weight gain since constant fatigue makes exercise difficult. My glucose also drops extremely quickly upon exertion. Anyone else have the same problem and/or strategies to help?
I am guessing I am type 3c although I have not been told. 9 years ago I was diagnosed with type diabetes then 3 years ago chronic pancreatitis was diagnosed, and px croon which I cannot do without. My bs were fairly ok below 10 after food and following a healthy diet. Now my bs levels are high 14-15 first thing in the morning and 18-20 at bedtime, taking 4x 80 mgs of gliclazide a day. Not able to tolerate metformin any more. So fed upAs type 3c is a rare form of diabetes, and as we now have our own sub-forum, I'm curious to know how many of us are accessing the forum! So are you a member of the 3c club?? Sue xx
I am guessing I am type 3c although I have not been told. 9 years ago I was diagnosed with type diabetes then 3 years ago chronic pancreatitis was diagnosed, and px croon which I cannot do without. My bs were fairly ok below 10 after food and following a healthy diet. Now my bs levels are high 14-15 first thing in the morning and 18-20 at bedtime, taking 4x 80 mgs of gliclazide a day. Not able to tolerate metformin any more. So fed up
Pancreatogenic diabetes is classified by the World Health Organization as type 3c diabetes mellitus (T3cDM) and refers to diabetes due to impairment in pancreatic endocrine function related to pancreatic exocrine damage due to acute, relapsing and chronic pancreatitis (of any etiology), cystic fibrosis, hemochromatosis, pancreatic cancer, and pancreatectomy, and as well rare causes such as neonatal diabetes due to pancreatic agenesis (1). Prevalence data on T3cDM are scarce because of insufficient research in this area and challenges with accurate diabetes classification in clinical practice.
In ordinary terms, damage to pancreas through, accident, illness, operation or genetic disposition, we are often misdiagnosed as type 1 as we are insulin dependant, we can go hypo/hyper for no reason.
Hi, gliclazide has made no difference to my blood sugars, I am about to go onto Trulicity, I have no problem with injecting but am nervous about the common side effects.From my personal experience, because the pancreas is compromised and gliclazide works by stimulating the pancreas, gliclazide did little to control my blood sugars. Quadrupling the dose made no difference to my blood sugars and I ended up on insulin.
Caused by damage to pancreas either through surgery or accident as far as I am awarenever heard of 3c diabetes... now I got to look and see what it is
Hi,thank you for explain this I never knew there was a type 3
I am so pleased to discover this forum. 9 years ago I was diagnosed with pancreatic cancer and had my pancreas removed,
together with my duodenum and half my stomach. I now inject regularly with novorapid and levermir and also
have to have creon everytime I eat. It has been a roller-coaster ride ever since! Not every diabetic
professional appreciates how different my situation is. I very much appreciate how lucky I am to have
survived! I left hospital on my 70th birthday! M y husband, three children and four grandchildren have been
marvellous throughout and I endeavour to 'just get on with life'.
We have isolated over Christmas and I had my Covid vaccination 10 days ago (no side-effects).
I hope we all have a better 2021 and wish you all belated good wishes for Christmas and warm wishes for
2021.
Tamar ,Good to hear from you and glad you are doing well and have a friend who understands!,
It is unnerving when highs and lows blood sugar readings happen for no reason. I have even tried
duplicarting days - same food and same routine to see what happens. One day I would have a hypo
and the next be fine with normal blood sugar readings. I now just get on with it and deal with whatever
happens. Off for my follow-up Covid vaccine on Thursday which is reassuring. New lockdown is a
bummer but shall just get on with it. The sun is shining so off for my walk. Keep well eveyone.
As type 3c is a rare form of diabetes, and as we now have our own sub-forum, I'm curious to know how many of us are accessing the forum! So are you a member of the 3c club?? Sue xx
We use cookies and similar technologies for the following purposes:
Do you accept cookies and these technologies?
We use cookies and similar technologies for the following purposes:
Do you accept cookies and these technologies?