To say I'm now somewhat confused is an understatement. Here's the history:
1) diagnosed 2003 as type one, mainly because ketones were off the scale
2) late 2003 I stopped using insulin, diagnosis then became type two
3) early 2004 started needing insulin again, various tablets tried, all made no difference
4) changed hospitals, New consultant did barrage of tests
GAD antibodies present
C pep very low
Diagnosis type LADA
5) insulin resistance rocketed up, C pep non-detectable, insulin dose up to one thousand units per day
6) 2016 went on pump with r500 insulin, insulin dose down to 500, but HbA1c >70
7) last week consultant ran more tests, HbA1c 82, C pep 435 !!!!
What the h@!! happened? I was type one, pancreas quit producing insulin but has now miraculously started again? And if I'm insulin resistant (and with that insulin dose I'm severely resistant) why is it now producing a 'normal' amount of insulin and not overproducing like it should be? And if the pancreas isn't overproducing, does that mean I'm not type two either?
I pushed the consultant for a definitive diagnosis. He said ' insulin dependent and severely resistant diabetes', and then agreed that was a non-answer.
My HbA1c is only ever getting worse, yet my bg test readings are getting better. One problem is that gastroparesis is causing vomiting attacks, during which it takes about an hour for my bg to go past 33 and stay there. I do take insulin, but there is a limit to the amount I feel safe taking if I can't guarantee to keep even liquids down.
My consultant is desperate to get me on the libre. Unfortunately for him there is no way I'm sticking my fingers eight times a day for three months, they hurt enough as it is. And technically I may no longer be type one, although I'm definitely insulin dependent. He's written to my GP asking her to prescribe the sensors, so we'll see.
1) diagnosed 2003 as type one, mainly because ketones were off the scale
2) late 2003 I stopped using insulin, diagnosis then became type two
3) early 2004 started needing insulin again, various tablets tried, all made no difference
4) changed hospitals, New consultant did barrage of tests
GAD antibodies present
C pep very low
Diagnosis type LADA
5) insulin resistance rocketed up, C pep non-detectable, insulin dose up to one thousand units per day
6) 2016 went on pump with r500 insulin, insulin dose down to 500, but HbA1c >70
7) last week consultant ran more tests, HbA1c 82, C pep 435 !!!!
What the h@!! happened? I was type one, pancreas quit producing insulin but has now miraculously started again? And if I'm insulin resistant (and with that insulin dose I'm severely resistant) why is it now producing a 'normal' amount of insulin and not overproducing like it should be? And if the pancreas isn't overproducing, does that mean I'm not type two either?
I pushed the consultant for a definitive diagnosis. He said ' insulin dependent and severely resistant diabetes', and then agreed that was a non-answer.
My HbA1c is only ever getting worse, yet my bg test readings are getting better. One problem is that gastroparesis is causing vomiting attacks, during which it takes about an hour for my bg to go past 33 and stay there. I do take insulin, but there is a limit to the amount I feel safe taking if I can't guarantee to keep even liquids down.
My consultant is desperate to get me on the libre. Unfortunately for him there is no way I'm sticking my fingers eight times a day for three months, they hurt enough as it is. And technically I may no longer be type one, although I'm definitely insulin dependent. He's written to my GP asking her to prescribe the sensors, so we'll see.
