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Upgrading the 640g to 670g

Discussion in 'Insulin Pump Forum' started by aphex2k, Aug 26, 2019.

  1. Peter03

    Peter03 Type 1 · Well-Known Member

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    So sorry to hear all your problems, hope you get sorted with a new type pump and cgm soon, have a good few weeks off and hope you feel better in yourself soon
     
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  2. Gary61

    Gary61 Type 1 · Well-Known Member

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    Really sorry to hear about your troubles with the pump. I totally understand where you are coming from with the incessant alarms and all I can advise is to switch them all off except for the high and low blood sugar alarms. That helped a lot with me. I also think that what this pump proves is that our control is by no means a straight line which causes the majority of the alarms. Unfortunately as well, is that the stress you are experiencing adds to the difficulty in obtaining a reasonable level of control. I to have suffered with stress and totally understand how hard it can make staying in control each day. Just hang on in there pal
     
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  3. dancer

    dancer Type 1 · Well-Known Member

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    @aphex2k I'm sorry you're having such an awful time. To have problems with the sensor/transmitter is bad enough but the problem with infusion sets is too much. You've had such bad luck, no wonder you're so exhausted.

    Medtronic replaced my transmitter, as I was having to test and calibrate so often (every 3 or 6 hours) on the first day of a new sensor and then, after 6 months, also on the last 2days of a sensor. They wouldn't admit the transmitter was faulty, but said this happens with some people, though they couldn't explain why.

    During the first week of new transmitter, I was on manual mode and only had alerts for heading low. It was bliss. No unnecessary alerts to calibrate, no false lows, I slept like a baby. I dreaded going back on auto mode, in case it all started up again. On Monday I started a new sensor and switched on auto. Everything has been great in comparison to the first transmitter. It's not perfect. On the first day I didn't get 12 hours between calibrations, till after I'd calibrated 5 times. I asked my consultant if the fact I have eczema means I have less interstitial fluid than normal. He said it didn't. I still don't know why I still have to calibrate a lot on the first day but the new transmitter is certainly an improvement.

    Maybe when you see your endo they can suggest what could be happening. If it's not your sites or technique, it could be the equipment. I had someone fighting for me in the background, otherwise I don't think Medtronic would have changed my transmitter. Maybe, if necessary, your endo could fight for you too.

    Take care of yourself (on manual mode??) and rest. Everything feels better if you can get a decent sleep!
     
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  4. aphex2k

    aphex2k Type 1 · Well-Known Member

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    Sorry for such a long message but its really helping to talk /type my feelings down

    I managed to get an apt with an endo next fri. ive never met him and i doubt he'll truly get it. the gp letter said i "didnt think the pump was working properly" for some reason my gp referred my to an endo thats a good hour away. i found three that are 8 mins from my house. i just needed the gp to change the address and resend it, which she did.

    i hate having to take meds to calm me down but im taking 2.5mg diazepam prn because anxiety ******* sucks.


    i really think the pump is ok. i had bloods done this morning. i just cant stand the beeps, the lack of full good quality sleep and maybe tge dexcon cgm and smartphone app ./ smart watch app could be a game changer if the pump is in manual mode. with the 640g i felt like i was in control. now its the other way round, will chase my bloods and see if the prediction from tidepool/carelink is accurate but good hba1c is just a fraction of the picture of the whole person.

    dont worry for me, i will share my experience as even bad things can help others

    catch up soon everyone.

    OX

    oh - dancer this is a brand new transmitter - on my third of fourth sensor and the old one was barely 5 months old!
     
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  5. MeiChanski

    MeiChanski Type 1 · Well-Known Member

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    Hello I’m so sorry, sending you a huge hug! As hot as it sounds in Australia, could you share some sun please. Some of us need it during winter I’m very sad about the pump, I’ve been considered for the same pump and I’m worried that I will go through what everyone else and you went through - multiple calibrations, lack of sleep etc. The pump is demanding a lot from you and I feel that shouldn’t be the case. Let us know what the outcome is :)
     
  6. aphex2k

    aphex2k Type 1 · Well-Known Member

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    will do. update next fri!
     
  7. aphex2k

    aphex2k Type 1 · Well-Known Member

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    Just a quickie as I only was made aware of this last night. I had 2 pieces of plastic break off the pump on separate occasions. I assumed that the plastic pieces were coming off part of the reservoir. I had one night when the reservoir came unscrewed while I was asleep - so the pump thought I was getting insulin, but I wasn't. Hence super high BSL on waking.

    A member of a 670g user group pointed this warning:
    https://www.massdevice.com/medtroni...grfbIp-_yjVlAtO3Yx2-gjrZXsILhSFGP-gGhMijTcp2o

    And last night I saw this:
    http://www.startribune.com/medtroni...n-pumps-have-potential-safety-risk/565302702/

    I've just gone to change reservoir and 2 bits of plastic broke off but I think still it's the reservoir.

    I'll upload a pic in a minute. But to me, looking at the reservoir and the connector to the reservoir from the tubing, it looks like this is my particular issue. Whether this helps secure the tubing/reservoir into the pump, or some aesthetic reason, I'm not sure.

    What I'm furious about is seeing significant warning messages on websites and user groups, with absolutely no email, letter or phonecall from Medtronic. Both articles cite risk of hypo/hyper and even says someone died. It's not clear if this was in direct response to a faulty pump, but the warnings are there. I'm just curious as to if anyone in the UK has seen or heard the warnings or had any contact from Medtronic, of even if their care teams are aware?

    I will take a pic of the 2 pieces that have just broken off, and try to do a close shot of the new tubing I'm about to connect for reference.

    I don't wish to panic anyone, but I consider this a serious safety issue that people using the pumps should be aware of sooner, rather than a letter from Medtronic which may, or may not arrive.
     
  8. aphex2k

    aphex2k Type 1 · Well-Known Member

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    OK.

    On close inspection it seems the bits that are snapping off simply through normal everyday use in my case are the little tabs on the connector, not the pump. These tabs I would assume put some pressure on the reservoir and connector when in place and stop it from accidentally unscrewing. Obviously these are breaking off. It could be due to the temps and sun here in Oz.

    The batch number of the current infusion sets I'm using is LOT 5200064 but this has happened with previous ones too from different LOTS.

    I hope the pics are clear and explain. Just to confirm, the pic shows a NEW SureT infusion set connector and the two pieces that broke off the old one I was in the process of changing and adding a newly filled reservoir.

    [​IMG]

    [​IMG]
     
    #88 aphex2k, Dec 15, 2019 at 7:58 AM
    Last edited: Dec 15, 2019
  9. dancer

    dancer Type 1 · Well-Known Member

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    On Saturday I received a letter from Medtronic which had to be signed for. It show pictures of a faulty pump retainer ring. This can cause over or under dosing of insulin.

    @aphex2k for many years I have had bits of plastic fall off reservoirs when I remove them from the pump. This is different from the possible problem Medtronic has pointed out.

    When you receive your letter you will see the difference between a normal and faulty pump. To me, it would be quite obvious if there was such a problem with my pump, judging from the photos. Don't worry too much, I'm sure you would realise there were bits broken from the retainer ring, if it happened to your pump, and you could go back to using your 640G.
     
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  10. aphex2k

    aphex2k Type 1 · Well-Known Member

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    Well that's the big q..... When? No-one on the user group (over 700 people) have had any info from medtronic. A few have had info from their teams but it's very hit and miss.

    Was advised by one of the care team specialists at MT that once the reservoir is in, you're not mean to remove it until you replace it. This I find odd, as I used to check my Accu-Chek res didn't have bubbles in, or the insulin had gone cloudy or spoiled - it's averaging 34c here at the moment and insulin doesn't last long so I feel I need to check it. But apparently advice is don't.

    I've changed some alarms on my pump and told to just leave it be for 4 weeks. I have been phantom bolusing carefully when high ranges don't come down quick enough. It's counter intuititve for me to leave myself high, but on their advice I will do so, and see what happens over the next 4 weeks.

    Got an endo appointment on Friday. Chasing bloods too so I can compare my last a1c to my predicted new one. Althought it's not just about a1c looking at the big picture, it's about quality of life / sleep / stress etc.
     
  11. andyginn32

    andyginn32 Type 1 · Member

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    I’m on the 640G and haven’t had many issues if i’m honest.

    I use Medtronic MIO infusion sets to insert my cannulas and last night i had a high of 14 before dinner. I had dinner, injected waiting another 2 hours and was still 14..

    I went to bed and didn’t feel rough so no ketones were produced but the 14 still stuck so i thought it was my spaghetti long lasting.

    I woke up this morning at 18.2 and thought okay definitely something wrong, i check my site for my needle and the problem was the glue was coming off slightly, this meant when i layed down the needle had bent so barely any insulin was getting through.

    Waiting now to see if the new infusion set which alter my sugars! Stressful to say the least lol .
     
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  12. aphex2k

    aphex2k Type 1 · Well-Known Member

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    I definitely had more issues with the cannula working loose on the Mio hence the switch to SureT which generally area great, just 25 years of scar tissue and sometimes I hit an awkward spot and insulin flow is either slow or blocked. Unfortunately this takes an hour to really noticed when your sugars keep rising and your basal adjustments aren't working.

    Still - huge improvement for me over the Mio. I've never tried the Silhouette.
     
  13. andyginn32

    andyginn32 Type 1 · Member

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    Is this the SureT with the butterfly wings? If not can you specify? I’ve always had the sureT with the butterfly wings and self insert methods and the Mio sets. If there is better out there and more reliable to stay in me i would love to hear about it :)
     
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  14. aphex2k

    aphex2k Type 1 · Well-Known Member

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    Yup Paradigm Sure-T infusion set 6mm / 60mm tubing. Just need to space my insertion sites but often it takes 2 or 3 attempts to get it spot on. I try not to administer any significant amounts of insulin until it's been in for a good 60 mins to the initial swelling / soreness of a new site has settled. Most times it's OK first go, but there's times that yeah, 3 or 4 goes gets it comfortable and working. The success rate compared to the Mio is much better, but rolling around playing with kids under 8 who want to jump and wrestle with Daddy - they know the kit is there just sometimes they're too playful and the Mio's didn't stand up to that kind of jiggling around.

    Again, never had issues of cannula coming out at all with Accu-chek. Just an observation.
     
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  15. andyginn32

    andyginn32 Type 1 · Member

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    Oh wow brilliant, i changed to the mio because the SureT set would get tugged out despite the second sticker to help prevent it whilst i played football.

    I would train 5 times a week as i was in an academy and if the plastic tube came out i would know but the sureT would come out but instead of knowing i would have to stop because the needle would just keep stabbing me.
     
  16. aphex2k

    aphex2k Type 1 · Well-Known Member

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    I got mountain biking, 2 small kids, thai boxing. I leave the cannula in when training but the pump near by so I can keep the cgm in place. It's all about finding the right spots for the right sport/situation. I know a guy who trains BJJ and he has his CGM on the top of his butt, no dramas.
     
  17. Peter03

    Peter03 Type 1 · Well-Known Member

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    I hope you are feeling better and your 670g is not giving you too many problems, so relax enjoy christmas and put 6 white boomers on you music system, Merry Christmas to you and all Australians
     
  18. ronialive

    ronialive Type 1 · Well-Known Member

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    did you not have it insured as in uk we have to do this
     
  19. aphex2k

    aphex2k Type 1 · Well-Known Member

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    You "have" to? Who says?

    Home insurance is a little different here. I'd have to have my pump as an "extra" on my policy. For example, I have a $4000 mountain bike which is covered as an extra for loss or damage and that costs me about $45 extra a month on top of my building and contents insurance. It's not a pre-requisite that we have the pump insured and as well as paying for private medical insurance for me and the family, I really didn't plan to lose my 640g.... Or will lose another one.

    I've been a bit quiet over the last few months as the transition from 640 to 670 has been a difficult one. Constant alarms going off, pump wanting BG's in the middle of the night, alerts on high, alerts on low, battery low, cannula needs changing. It affected me hugely and left me sleep deprived and highly anxious. I've had three periods signed off work and my GP tried to get me an urgent endo appointment. Urgent being "we can see you in Feb". I organised my own appointment and changed a heap of alerts and alarms and which has helped, but the endo also started me on Lexapro to help with my anxiety which I initialy thought was work related stress, but combined with me panicking every time the pump beeped and really broken and poor sleep left me a bit of a mess.

    Things are looking a bit better but in the midst of this on Dec 1 I got a speeding ticket and have to go to court, with it looking very likely I'll lose my license. This happened at the end of one med cert and the plan was to go back to work on the Monday. A **** night meant I called in sick and got another med cert but I was stressing out about letting my colleagues down at a busy time of the year and worried about going back to work. I lost concentration as I tend to over think at the best of times, and got caught going over the limit by a covert speed camera. I've admitted the charge so wil just see how things go. Big fine and loss of license for 6 months, which hasn't helped my mood or anxiety one bit.

    I've been playing around with Tidepool, xdrip+ and Nightscout just to keep busy.

    Oh, in three months my a1c has gone from 7.7 to 7.2. I was expecting sub 6 but my endo says he's perfectly happy and I'd be "top of the class" re my current management. He also said that blood tests would vary from going to different collection centres - kind of like when you do a BG on one finger and it says 6.6 and another finger says 6.9. He told me to look at the big picture and to try try not to worry about "alarms" and just reframe my thinking as to them being gentle nudges of advice.
     
  20. aphex2k

    aphex2k Type 1 · Well-Known Member

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    Made it to Feb (yay)

    Having a little stint using the Mio's again as I ran out of Sure-T and the pharmacy had some Mio's in stock. First one was fine. Second one worked for a couple of days but seemed to have worked lose. Replaced one this morning and BSL creeping up for no reason. Just changed to a new one at work but noticed the "pin" wasn't straight after I took off the tape protector. It went in painlessly so maybe it went in OK, will find out in an hour or two.

    Having a few issues with the pump wanting me to enter BG at odd times. Seems to be something that happens every now and then. Bumped me out of auto a couple of times. Also had a "max delivery, please enter BG" a few times - I've not changed anything settings wise for some time.

    Might have a little spike tomorrow as it's my birthday and I'm going out for a meal. Which will include desert. Sod it! Happy 44 earth years to me! Sending sugar free / GF / lactose free / dairy free / carb free e-cake to everyone here.
     
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