VICTOZA users

Gaz

Newbie
Messages
4
Re: VICTOZA

Hi All
Just a little update, I'm into day 4 of Victoza on the 0.6 dose and as for side affects so far all I've had is a slight headache for a couple of days and thats it, no loss in apatite though :?
On the plus side my blood sugar levels in the morning have dropped from 14 to 7 :D
Roll on wed when I go up to 1.2

Gaz
 

Durbinwood

Newbie
Messages
3
Re: VICTOZA

Hi all, Day 4, queasiness but not nausea. Appetite dropped right off. Sugars loads better, Lantus down from 60 to 40 already, novorapid having to inject after a meal because I can't predict how much I'm going to be able to eat!
Some of you have mentioned needles - I got 5mm ones this week - fabulous - change your prescriptions! :D
 

anna29

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Re: VICTOZA

Hi. durbinwood. You mentioned 5mm needles! ??? What type n brand are they? Are they microfine? or novofine? or another type? thanks. Anna. x
 

Gaz

Newbie
Messages
4
Re: VICTOZA

Hi Anna
I'm using the 5mm micro fine needles and I cannot even feel them, pity the same cannot be said for pricking my finger lol

Gaz
 

Joanne80

Newbie
Messages
3
Re: VICTOZA

Hi have now done a full 2 weeks on victoza and apart from feeling sick am doing great have now lost a stone which is great just hope it continues!! My appetite has greatly reduced can only manage 2 spoonfuls of all btan for breakfast, a grapefruit for lunch and a small piece if chicken etc for tea !! Have not been tempted into snacking at all :D has anyone elses appetite dropped like mine??
 

Durbinwood

Newbie
Messages
3
Re: VICTOZA

Joanne80 - I am exactly the same after 5 days. Even when I think I want to eat, 3 mouthfuls in and I just can't swallow any more. Powerful stuff eh?
 

jezzer128

Member
Messages
10
Re: VICTOZA

Day three...I don't feel like eating at all,i feel tired but i havn't had any side effects other than constipation...if that is a side effect or due to me hardly eating i dont know :oops: .I have another 4 days on 0.6 then it doubles to 1.2...my bg is 7.1 and before victoza was 10.0...it will be interesting to see what happens when i double the dose :shock:
 

anna29

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Re:VICTOZA

Hi all. just an update. Been on increased dose 1.2 a week almost n it IS kicking in with real appeptite suppressant, hitting my digestive system with indigestion n wind n bit constipated also. Notthing serious just discomfort n am just nibbling tiny portions at meal times. First time today been bit queasy n taken stemetil for it [great drug for nausea] just wanted nibble bland food only. Am happy with things at the mo, BS only come down a bit am yet 10.6 in the morns [fasting] n vary evenings 13-16 so will keep eye on things. As been told will have to consider levemir insulin to get better BS control combined with victoza. They do know how loath n reluctant I am to go onto any insulin at all... due to weight gain n side effects etc... For those queries bout keeping pens in cooler enviroment what bout search on net for cool bags designed to store epi pens in transit n travel trips or is it possible to store in dust free container [sealed tupperware box] in your garage as could be cooler there than in your house. ? just an idea I thought of . . . What do we do in the warmer days of late spring n summer with storing pen being used in too warm a room temp? Am a newbie to injecting so am a bit green as what to do? Anna.x
 

Phil-bar

Newbie
Messages
1
Re: VICTOZA

Hi all, just joined the site, as did an online search and found it! amazing this internet marlarky! I thought I'd share my experience with you.

I've been on Victoza now since May 2010. Its a long and dull story but in a brief nutshell, for almost 14 years I'd been going to my GP saying I felt tired, my weight was increasing(going from 14 stones to almost 21 stone) - to such a point I couldn’t walk up the stairs without being breathless - as there is a history of thyroid problems in the family, the GP put me onto thyroxine, a low dose at first, but gradually over the 14 years it increased to 300mcg daily!! (far too much!!). I had always exercised regularly, eaten fairly well ( meaning no excess sugars, or fats, and always kept an eye on my calorie intake), did not smoke, and did not drink any kind of booze whatsoever

Things came to a head in October 2009, as when my weight topped 21 stones, I could barely walk with the pains in my knees and barely stay awake for longer than 2 hours - a problem being self employed! - I visited the GP and asked to be seen by an endocrinologist. I went to the appointment at the local hospital - needless to say it was a waste of time, as I was told by the results of my blood tests " everything is ok, in fact you're taking too much thyroxine," or in not so many words now shut up stop complaining and go home!!. I decided to stop taking my thyroxine, and this carried on for 6 weeks I felt great, pains were going, weight started to fall slightly and I had more energy, my wife was concerned about stopping the thyroxine, so she persuaded me to go back to the GP, telling her I'd stopped taking my thyroxine, feeling so much better etc, and was considering self medicating with porcine version of thyroxine from the internet, and again asking for a consultation to see an endocrinologist, this time at another hospital.

The appointment came through, and 2 weeks later went to see the consultant, I'd had numerous blood tests prior to going so he could see the state of things, this guy was far more professional in his approach (he wasn’t dressed like an electrician for one as the first consultant appeared to be!)
He confirmed I did have an under active thyroid, but would like 'other' tests done before any conclusion was made. I was given two tablets with instructions, this was to test me for Cushing’s Syndrome, also had a Sleep apnoea test, a glucose fasting test, and others I cannot recall now, but there is now more of my blood outside of me than in me!

Couple of days passed and the results came through I had diabetes type 2 and could I go to see my GP, I did this and initially I was very angry at being told I had this, finding it difficult to accept, the GP prescribed me Metformin 200mg daily 2 x500mg twice a day, also started me on Liothyonine a type of thyroid hormone. I was so angry at this I demanded I was tested again to make sure, as many years prior to this I'd asked if I had diabetes and the answer was a profound 'No!'. I had the fasting test and the litre of Lucozade (disgusting stuff!).

I went to see the consultant again and he confirmed I had type 2 diabetes, but good news was I didn’t have Cushing’s Syndrome. It was then he suggested I consider going either onto Byetta or the new Victoza injections, my a1c had been 18.8, and daily average mmol of 12. I decided to do the Victoza, as it was only once a day, the thought of an extra injection made me cringe!

I was instructed by a very patient, understanding, and caring nurse in the use of the Victoza, starting off on 0.6 for a week, and then increasing to 1.2 daily, I had few side effects, some stomach aches, and fuzzy headache, but nothing as bad as some people have mentioned. Within a month or so I noticed my appetite decline eating less feeling full for longer, measuring my BS went from 12 to 5.5 daily average. Within 3 months my next appointment to see the consultant I had gone from 133kgs to 100kgs, and was feeling fantastic and like I used to before this 14 year nightmare had started! I had boundless energy, felt great to be able to do 10 hours work, and still have energy to do other things without crashing out on the sofa knackered! My wife commented how my attitude had changed, being more positive about things etc.

I return to see the consultant next Friday 25th March, and although the weight loss has slowed I am around the 90kg mark now, I feel great, like a new me, my waist has gone from *large* to 32 inches and just relieved I stuck out and saw this second consultant as it has changed my life - an over used cliché - but very true and fitting in my instance. My BS for the last 90 days on the accu check in now sitting at 4.9mmol, so hopefully this will translate over next week once they check it to be something near the same.

Apologies for the long winded and rambling first post, but felt I had to share it and maybe in some way encourage others to 'keep' trying to get some kind of quality of treatment which we all deserve! and to try Victoza as to me its been a miracle!

Phil
 

Madame P

Member
Messages
15
Re: VICTOZA

Hi to whoever wanted to know about cool bags for pens.

click on link: (Link removed. Google.. Medical Shop)

I bought a pen bag for five pens to take on holiday with me but you can get them for two pens as well apparently. You also can buy VAT free :D

Regards, Madame P
 

saintsarah

Member
Messages
5
Re: VICTOZA

Hi everyone

I am really hoping that you can help me out here, I have recently had a major scare and would like peoples opinion as to whether they think like me this could be due to Victoza.

I started Victoza about a month ago on the lowest dose, everything was fine no real side effects unlike when I was on byetta, I had to stay on the low dose for two weeks just in case I had the severe sickness that I had had with the byetta, I started on the larger dose of 1.2, I started to notice within a couple of days the full feeling and being constipated but hoped this would pass - I then suddenly began to get severe and I mean severe left handed hip joint pain and within the space of about 36 hours was rushed into hospital with severe swelling of my face/tongue/throat.

My dilema is that I feel that this may be as a result of a reaction to the Victoza but no one is giving me any indication or assistance from the medical profession. My diabetes at the moment has gone crazy levels are barely below 20!!! Drinking like a fish, peeing like there is no tomorrow!!! the only positive thing is the weight is dropping off but then we all know that this is not good for a diabetic loosing weight because of high blood sugar.

Any advice would be appreciated, I am seeing my GP on saturday so any information I can go with would be a help.

Thanks

A ever increasing depressed Sarah :(
 

daisy1

Legend
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Re: VICTOZA

Sarah - please don't be depressed - you are among friends :) Someone who knows Victoza will soon be along to help you :)
 

trouty

Newbie
Messages
2
VICTOZA

Has anyone any advice on Victoza and Hypos in the evening when Victoza is taken in the morning.
What do you take to correct this? and how to encourage eating when nothing is wanted.
 

cugila

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Re: VICTOZA

Here is the information about Hypo's and how to treat them, scroll down to view treatment.......

viewtopic.php?f=20&t=18529#p168549

If you are on medication such as Victoza you may have to adjust your eating habits to suit the medication as well as your own preferences. I use Byetta and sometimes have to have a snack even if I am not particularly hungry, to avoid a hypo.
 

anna29

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Re: VICTOZA

Hi all. Am back in the UK n home again, had a lovely trip n break with my hubby, had no problems with victoza except was bit queasy n constipated on weds. For those who wish to know about hypo's n times to take victoza try taking it bit later in the morns rather than early morn, I personally take mine at 7pm n it suits me n my lifestlyle just great, tea has settled n washing up done! Always make sure you do have a light snack if you cant face a real meal, also even if you have a small glass of milk n couple of small biscuits or slice of toast it will keep you going n prevent a hypo. Always test ure BS n keep eye on readings so you have idea of low or high sugars. The best treatment is to take good care of yourself n have good awareness of your diet intake n BS readings. Victoza can be taken anytime during the day n evening as long as its the same time each daytime or evening, some people find taking it too early n NOT eating enough for the rest of the day it gives them a hypo which it will do n isnt a sensible or safe way to go with. Best to always eat a snack even if not hungry with victoza's appetite suppressant action. Am pleased n chuffed to bits with myself as I CAN tollerate victoza n Am losing weight still, my BS is yet high so am keeping eye on it. Am thinking bit more of accepting levemir to get better BS control [they want me to consider it n I was originally adamant I wouldnt need it] even bit swotting up on it too! They want me stay on victoza with bit of levemir to tweak down my BS levels. Levemir is split dose twice daily plus victoza will mean 3 jabs a day. [may need to bolus was told by my consultant] help... have no idea what he meant by that? anyone know? hope you will advise.... Anna.x
 

cugila

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Re: VICTOZA

All looking good for you so far Anna. :)

Levemir is a long acting Basal Insulin given once or twice daily depending in the GP/Consultant instructions.

A Bolus is when you need to inject a different quick acting Insulin to cover meals, before or after depending on instructions again. Did they discuss what that might mean for you regarding how many injections and what type of Insulin ? If it is Basal and Bolus plus Victoza that seems a lot.

Is your diet really as good as you think it is.........just a thought ?
 

anna29

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Re: VICTOZA

Hi ken. Have been told that I am real type 2 ... Asked him what he meant by that ... Was told my BS levels with a healthy diet are way too high n there are persons who abuse themselves with unhealthy diets self harming original good BS levels into high BS levels with gluttony. A real type 2 is someone who eats well n healthily n yet BS levels rise n change on their own accord... Also a nuclear meds specialist says exactly the same. I do have my own complex meds history too, see specialists weekly at hospitals n clinics. My bowel disease dictates a healthy diet or I am in 'trouble' n yes I do do low carbs I have too! make a lot of my own healthyh homegrown n made meals. [ I enjoy it luckily plus I have a swanky fancy range ] Losing a lot of weight lately since refused take gliclazide [october ] as had put 2.5 stone on in 1.5yr. What on earth is this bolus thingy with food meals n carbs eaten??? also does it mean more jabs?! Am i right or wrong ? Have been told that I am very insulin resistant with sensitive stomach n stubborn BS levels n BP. My stomach cant handle or take meds that arent sterate based. Can you help me to grasp this bolus thingy? Anna.
 

cugila

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Re: VICTOZA

Anna
Here is a link to the Community page information which might help explain things a bit better :

http://www.diabetes.co.uk/insulin/multi ... erapy.html

The therapy involves injecting a long acting insulin once or twice daily as a background (basal) dose and having further injections of rapid acting insulin at each meal time. Multiple daily injection therapy will usually involve at least four injections a day.

The Basal is just slow acting stuff over the day, however the Bolus or MDI means when you eat you will inject more Insulin to cover the food that you are consuming. More injections I'm sorry to say....

I fully understand about the diet problem, all you can do is your best, especially when there are other complications as you list. That just makes things so much more difficult. All I can suggest really is that you say low carbs, see if there is anywhere that you can tweak things a bit ? You may find some leeway.

As for the 'Real Type 2'........never heard of that one, interesting if slightly odd hypothesis. Think we might just have an 'interesting' conversation about that one if we ever met....... :twisted: :lol: Recently had a few 'strange' ideas put forward at a Course I am doing at the moment. Me, I enjoyed the 'discussion' and I think we called it a draw.......well, the DSN did anyway ! :wink:

One thing I forgot is that Insulin AND Victoza are not recommended, although some Patients are certainly on it but they should have been informed about the 'off licence' use beforehand ?