CrumblingWall
Well-Known Member
- Messages
- 71
- Location
- London
- Type of diabetes
- Don't have diabetes
- Treatment type
- I do not have diabetes
To be honest I think it’s either just in your head, or that your problems are not blood sugar related. Because blood sugar above 6.5 mmol are completely normal and should not under any circrumstances cause symptoms, because it is normal. Also 8-9 mmol are NOT high, and it is normal for non diabetic to reach levels of 10-11 mmol if they eat something with high GI. If you had 20 mmol I understand if you felt ill, but 8-9 are really not high, and pretty normal for non diabetics when eating something with high GI.
I think your discomfort have other causes and are not blood sugar related.
I will supply a short TL;DR here so people don't have to read post history. 2017 December - googled my symptoms, thought it is diabetes and went low carb. 2 weeks later had an OGTT, which shown diabetic levels of sugar. Tested for antibodies for type1, normal hba1c and fasting. Endo said it is not diabetes and probably caused by insulin resistance due to low carb. c-peptide was below normal range at 0.68 ng/ml though ... onwards we go on low carb diet, to today.
Essentially, was told to eat carbs that have GI < 60. I am thinking of buying a freestyle libre, put it on for a month and see if my pancreas will actually wake up and handle the carbs (that is doctor's and endo theory). Otherwise, it just do not see a need to put out much insulin on low carb....
Feel quite alone in this. Should I consult a dietician or another endo? Problem is, my GP will never refer me to one because I don't exhibit diabetes symptoms...
For non diabetics I suspect the Eatwell plan, if adhered too, is adequate. But it is so easy to stray away and overindulge with carbs.I will supply a short TL;DR here so people don't have to read post history. 2017 December - googled my symptoms, thought it is diabetes and went low carb. 2 weeks later had an OGTT, which shown diabetic levels of sugar. Tested for antibodies for type1, normal hba1c and fasting. Endo said it is not diabetes and probably caused by insulin resistance due to low carb. c-peptide was below normal range at 0.68 ng/ml though ... onwards we go on low carb diet, to today.
A week ago, I decided to go to a doctor for other issues, and her attention was peeked by this story. She mentioned that since I was not considered a diabetic, I should try to get out of low carbing. My c-peptide was re-tested at 1.0 ng/ml which is in normal range. Thing is, I did occasional tracking of my glucose. I noticed anything above 6.5 mmol/l after a meal makes me experience symptoms like: sweating, feeling hot, headache and face pressure (don't know how else to describe it), and feeling slightly thirsty. It always comes down but late, like 3 hours+ since food consumption. My doctor thinks this is still insulin resistance due to delayed glucose clearance, but I have lowish c-peptide for it to be resistance?!
Essentially, was told to eat carbs that have GI < 60. I am thinking of buying a freestyle libre, put it on for a month and see if my pancreas will actually wake up and handle the carbs (that is doctor's and endo theory). Otherwise, it just do not see a need to put out much insulin on low carb....
I am just afraid of taking this step because low carbing kind of works - my BG is normal, my weight is fine, not too much GI issues. I tried a few times to eat some complex carbs, went to 8-9 mmol/l which makes me feel ill. Thing is, I will not know if it is a pathology or physiology until I actually carb load myself and see what happens to BG curves. Normal people are expected to experience high BG for a few days until their metabolism switches to glucose burning, while people with diabetes will continue seeing high BGs all over the place....
Feel quite alone in this. Should I consult a dietician or another endo? Problem is, my GP will never refer me to one because I don't exhibit diabetes symptoms...
Isn’t a truly normal response to high GI (e.g. 75 grams of pure glucose) supposed to be to stay under 7.8 at all times? And below 6.1 at two hours?
I would think that briefly going up to 6.5 wouldn’t be a cause for concern, but 10-11 for non-diabetics would be quite high. (Pre-diabetic levels are also high).
2 weeks later had an OGTT, which shown diabetic levels of sugar.
Thing is, I will not know if it is a pathology or physiology until I actually carb load myself and see what happens to BG curves.
Isn't that what the OGTT is for. What were the actual results?
No, it is a truly normal respons to food with high GI for non diabetics.
I think healthy people with normal blood sugar should stop making an illness out of it, and rather be thankful for having a pancreas and body that manage to keep blood sugar within normal range. To be honest I think it a little bit offending ovenfor diabetics that really struggles with their blood sugar to complain about blood sugar less than 11.2, and act like it makes them sick.
An OGTT with 75g carbs have these markers:
Non diabetic 4.0 - 7.7 mmol after 2 hours.
Pre-diabetic are 7.8 - 11.1 mmol after 2 hours.
Diabetic is 11.2 or greater after 2 hours.
All these values are after 2 hours, so non diabetics can still reach 11 mmol after 15-30 min when the blood sugar are at its highest.
So well, it is a myth, and wrong that non diabetics always has blood sugar under 7.8 mmol at all times. I have many friends that have tried to measure their blood sugar 15-30 min after eating, and well I’ve seen many of them reaching almost 11, and they are not diabetics. The difference are that the blood sugar either continue to raise, or use longer time before falling in diabetics.
Having a random reading of 10 mmol does not mean anyting.
If your blood sugar are either less than 7.8 after 2 hour, or you never had several reading above 11.2 mmol you are completely healthy and not diabetic.
And how do these friends spiking towards those values feel? Sleepy, carb coma? Any sweating or feeling weird? It depends on your standards. Do you want to heed advice of science that claim above 7.8 starts inflicting damage and keep inflicting it? Or do you analyse the data and see what satisfies your targets? Occasional spikes to 11 is not harmful. But every day will start adding up.
Also, if it makes one feel really ******, then why keep feeling ******? Why not use this knowledge and control the bgs such that one feels okay most of the time?
There is a documentary from Japanese scientists somewhere on YouTube if you search glucose spikes Japanese documentary, they tell you research shows how damaging those spikes are. They give advice for people to eat low gi foods and do a short walk after lunch.
Overall, I want to find out what is the real state of the pancreas. I think libre would give me that info
All the friends that «tested» my meter and got «high» values didn’t feel anything unusual. And I think I speak for most diabetic, you do not get diabetic symtoms with only 10-11 mmol in blood sugar, and definitly not anything with just 7-8 mmol. Also sweating are not a symptom of high, but of low blood sugar.
I think it lays more in your head, and that you do overanalyse things, really. And no, 11 mmol are not harmful, most type 1 diabetics experience often 11 mmol without suffering any complications. I would agree with you if you said 15-20 mmol are dangerous on long term. But 10-11 mmol are pretty normal, most people, if not anyone would get those values shortly after a high glycemic meal.
You do NOT have diabetes or any blood sugar related problems. Really. If you can’t get your mind at ease you should get help for it, and talk about your concern with your GP, so you can feel more calm.
Keeping track of blood sugar, or getting hung up on it when you’re health are not good for you, and won’t help you. I think you should let this go for your own sake. Take care
I see your video, but in all honest I trust my gp and diabetes team more, when I say there is nothing wrong based on the values you posted here.
All the friends that «tested» my meter and got «high» values didn’t feel anything unusual. And I think I speak for most diabetic, you do not get diabetic symtoms with only 10-11 mmol in blood sugar, and definitly not anything with just 7-8 mmol. Also sweating are not a symptom of high, but of low blood sugar.
I think it lays more in your head, and that you do overanalyse things, really. And no, 11 mmol are not harmful, most type 1 diabetics experience often 11 mmol without suffering any complications. I would agree with you if you said 15-20 mmol are dangerous on long term. But 10-11 mmol are pretty normal, most people, if not anyone would get those values shortly after a high glycemic meal.
You do NOT have diabetes or any blood sugar related problems. Really. If you can’t get your mind at ease you should get help for it, and talk about your concern with your GP, so you can feel more calm.
Keeping track of blood sugar, or getting hung up on it when you’re health are not good for you, and won’t help you. I think you should let this go for your own sake. Take care
I see your video, but in all honest I trust my gp and diabetes team more, when I say there is nothing wrong based on the values you posted here.
Emile,
You are not addressing a type 1 diabetic on insulin. Type 1s have an autoimmune condition that means their beta cells are being (or have been) killed off by their own immune system. Therefore, raised blood glucose is not going to do more damage to beta cells than their own body is already doing with its own immune system. Therefore, higher than normal blood glucose has (in some ways) a different effect for type 1s than for people with high numbers of beta cells.
For those of us with non-autoimmune diabetes, pre-diabetes, or no diabetes, then the preservation of our existing beta cells is very important, and there is significant evidence that beta cells and organs can be cumulatively damaged by blood glucose levels above 7.8mmol/l
For more information on this, the www.bloodsugar101.com website (which is aimed at type 2 diabetics) has an overview and explanation of this research.
https://www.bloodsugar101.com/organ-damage-and-blood-sugar-level
The same website, has some very informative information on what is truly normal blood glucose for non-diabetics.
https://www.bloodsugar101.com/what-is-a-normal-blood-sugar
People whose blood glucose does not fit these profiles (and there are many, many people eating the modern diet who do not fit these profiles) are at increased risk of metabolic syndrome, heart disease and type 2 diabetes.
https://www.sciencedaily.com/releases/2018/11/181128115045.htm
People may have blood glucose readings of 10 or 11 but that does not make it healthy.
I do not want to trash on that website, but I honestly heard doctors mention it is bunk. The studies cited their are highly contested. However, that website is playing on safe side - it has high standards for normal glucose levels and I think is very right.
My own doctor mentioned that non-diabetics don't really spike above 8.5 mmol/l even after lots of cake. But then, CGMs studies are sparse on non-diabetics. We do not know what is really normal. So many people have metabolic syndrome and glucose variability is very large. They could be moved to a normal bracket when in reality they suffer from a beginning disease. It is all very complicated ....
Motivated people, or obsessed like me, educated themselves on current research. It looks like it really depends on people standards. Do you agree with people like Bernstein, or do you think a1c of 5.7% is ok? Or are you more strict and go for high 4s?
Decisions you make right now could influence your health in your 40s. People live normal lives and then, bam, diabetes out of nowhere. But foundations have been laid for decades for that to happen. You did not wake up with significant beta cells damage one day. It was a slow process.
https://kresserinstitute.com/normal-blood-sugar-isnt-normal-part-2/
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