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We love the pump

Shell1

Shell1

Well-Known Member
Messages
388
Location
Manchester
Type of diabetes
Parent
Treatment type
Pump
Just like to say what a amazing difference the pump has made to my 9 year olds life !! Perfect blood sugars and one injection every 3 days .yes its hard work to begin ive been walking around like a zombie after testing every 2 hours every night but now the basal setting seems ok i think i will try 4 hourly tonight .


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Brilliant, I wish pumps were around when I was first diagnosed back in 1981, would have made mine and my parents life easier. But only got a pump in Nov last year, with no questions after being transferred, from Ashford(South East,Kent) to Kings, first app with Prof, you need a pump(no pleading, told I need one). Now I couldn't do with out it I LOVE IT, AND WON't, give it up with out a FIGHT. Glad it helps you and your child.
 
That is great news Shell, I bet all the other kids are curious to know what the pump is :)
 
Noble head all the kids at her school found it fascinating .she was a but worried at first said it made her look fat but we got the longer tubing so it can push round her back now ,funny the worries you have at 9 !! Shes off swimming now with her friend and friends mum just giving them a quick pep talk as chloe knows what to do but if im honest im having a little panic attack lol


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Brilliant news! I only got my pump in December last year after 30 years of mdi - I so wish I could've had one as a child, it would've made my life so much easier. It is true that if you put in the hard work now it will pay off in the coming months. Just imagine not having to worry about the possibility of night hypos!
 
Its funny you say that! Of the year shes been on mdi we rarely ever had a hypo now she has them every 2 hours nightly were soooo tired but they changed the settings slowly and last night was the first night without ! Basal one with a reduction on 10% it really is hard hard work but bloods are near perfect now esp in the day anyway not had a reading over 10


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All chsren under 12 diagnosed with T1 with our CCG will get an offer immeditely of a pump. Thank goodness!! You are proof (and child) that this is the future for childrens diagnosis... It is a brighter future for them


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I agree shame not so easy for adults... However I do agree with NHS targetting youngsters on this. They should be given opportunity to live better lives with less annoyance from foods, friends, liniting hobbies, jobs etc....

I personally if I was put in a room with a 10 year old n me and told to decide who got the pump... It would be the 10 year old... I know my experiences, i've lived through them and got through them... But in all honesty would ai want another teenager to go through my experiences.... NO. The kids to me are a priority...

I have no kids, so think it odd that I feel so strongly that kids should have pumps on limited nhs budgets.

There are a lot of things going on with nhs from govt etc, and it is all going to change... So I would prefer to know that future children can grab improvements now, rather than trying to struggle... And the struggles will be getting worse.

I know of a friend warning me of funding for pumps etc when PCT's became CCG's. I always said that wouldnt be a problem. And for me it hasn't. However, when you hear behind the scenes of tjings like... Senior partners (gps) will not get more money thsn normal partners in the future, gp's selling off there practices to "gp surveyors etc " and then renting them back... Then you start to realise that you as a pump person are luterally a number of a patient in a population.....and that there is a lot of things going on with NHS that the public just are not aware of.

So, me... Kids get priority to me.


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Shell1, yes esp in treatment, carb counting and blood glucose machines, instead of seconds, it used to be mins. I'll describe how they used to work, the strips used to be made by a company called Bohringer Manhiem, so called BM's for short. So prick finger, apply to strip wait 1 min, wipe blood of, put strip in meter and wait another min. So after 2 mins you, would get your blood sugar. Just one of many changes.
 
Hi julie, wow what a pain in the bum that must have been . Its all quite discrete and quick now so big improvements which helps to make me look to the future that things will get even better .


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Donnely dogs, ur right kids do need priority and also the better there control now the less complications in there future equaling less need for more nhs help . I still feel its a shame when adults have struggled sometimes all there lives with this and the pump would give them so much more flexibility and make life a lot easier .
Ive started saving incase anything comes up privately when shes 18?but my nurse reckons every upgrade now children will automatically get .we will see ...


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I agree. Kids are DEFINITELY priority. More to do with their froth and constantly changing insulin needs than anything else.

Doesn't stop me stamping my foot and saying I want one too though ;) I use the same amounts of insulin as a child..... I act like a child..... Maybe I should say they made a mistake and my DOB was actually 2005? ;)


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Shell1 said:
Hahaha that made me laugh ...i want u to have one too hale !


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When I was 17 they used me in a children's choir for under 12s, with no makeup I have a baby face so I blended in but my voice was strong enough to lead the kids. It'll be great when I'm in my 50s I'm sure!

Pump assessment is on the 18th. Trying not to get my hopes up because I don't think I quite for the criteria ENOUGH. I am skirting on the edges. Will just have to wait and see!

How has she been with the concept of moving site location? I know that was a concern before


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Haha that brill u must use oil of ulay lol

Oh and thats fantastic i will keep my fingers ....and toes crossed for u x
Shes had it in her tummy and been ok takes a while for her to press the insertion button but shes getting there very very brave an im so proud of her shes been amazing


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